PLATINUM2024

ALS United Mid-Atlantic

Compassion - Integrity - Urgency

Fort Washington, PA   |  https://alsmidatlantic.org/

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Mission

To unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS.

Ruling year info

2024

Executive Director

Mr. Jeffrey W Cline

Main address

1015 Virginia Drive Ste 110

Fort Washington, PA 19002 USA

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Formerly known as

ALS Association Greater Philadelphia Chapter

EIN

23-2387205

NTEE code info

Diseases, Disorders, Medical Disciplines N.E.C. (G99)

Alliance/Advocacy Organizations (G01)

Nerve, Muscle and Bone Diseases (G50)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Arthur and Lea Powell Care Services Program

Real people providing real help. This is our commitment to you. To do that, the Arthur and Lea Powell Care Services Program supports you and your loved ones with a skilled and compassionate team of health care professionals to walk this journey with you. Our team provides tangible assistance and guidance to ensure you have the services and equipment that you need.

ALS United Mid-Atlantic provides compassionate care to ALS families across Eastern and Central Pennsylvania, Central and Southern New Jersey, and all of Delaware. Our team of experienced healthcare professionals is dedicated to providing people with ALS and their loved ones with compassionate and professional care services, free of charge.

We offer critically-needed information and resources which are proven to increase longevity, enhance quality of life, and help with the daily challenges of living with ALS.

For more information, please contact us by email at [email protected] or call 215-643-5434.

Population(s) Served
Adults

The Howard I. Abrams In-Home Care Grant Program provides grants to assist a person with ALS who is registered with us, resides in the our service area, and does not have the financial resources needed to obtain adequate personal care.

If you are exploring your in home care options, please contact your social worker. They are happy to work with you in finding the best available solutions to meet your needs, or those of your loved one.

You may also call Care Services at 215-643-5434, option 3 and we will be happy to assist you.

Population(s) Served
Adults

Wheelchair accessable transportation to clinic and medical appointments.

Population(s) Served
Adults

At our ALS clinics and ALS certified treatment centers, our multidisciplinary care model brings together a team of health care professionals specially trained to address the needs of people living with ALS, allowing them to receive care from each discipline during a single visit. The care team typically includes a neurologist, physical therapist, occupational therapist, respiratory therapist, nurse, dietitian, speech language pathologist, social worker, and a mental health professional.

Population(s) Served
Adults

ALS United Mid-Atlantic hosts Support Groups throughout our service region to provide an opportunity for those living with ALS, caregivers, families and friends to be mutually supportive, exchange practical information, and share their experiences. We also provide support groups specifically for caregiver and bereavement support. All groups are free of charge.

For questions about a specific group, please contact the facilitator of that group. For general questions about our support groups, please contact Steve Spaulding at [email protected] or 215-664-4131 (call or text).

Population(s) Served
Adults

Durable medical equipment necessasary for patients living with ALS can be provided, free of charge, for as long as needed.

Population(s) Served
Adults

Today, the Mackler Program enables persons with ALS to have access to assistive technology devices and services which are often not covered by insurance policies. The Chapter also identified the need for assistive technology services to be an integral part of our clinic environment. An assistive technologist is available to consult at all clinics.

Population(s) Served
Adults

Where we work

Affiliations & memberships

Community Health Charities 2004

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of people provided assistive technology

This metric is no longer tracked.
Totals By Year
Related Program

Scott A. Mackler, MD, PhD Assistive Technology Program

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Number of people accessing aids or adaptations as a percentage of the number of people receiving a service from the Occupational Therapy service

This metric is no longer tracked.
Totals By Year
Related Program

Marjorie Shimer Durable Medical Equipment Loan

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Number of timely caseworker visits

This metric is no longer tracked.
Totals By Year
Related Program

Multi-disciplinary Clinical Centers of Excellence

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

At ALS United Mid-Atlantic, we are dedicated to addressing all of the needs of ALS families throughout our territory in Pennsylvania, New Jersey, and Delaware through compassionate care programs and groundbreaking research.

For over 40 years, ALS United Mid-Atlantic has worked tirelessly to ensure every person affected by ALS can access the support they need as we come together to find new treatments and a cure for ALS.

People living with ALS and their families come first in everything we do, and everything we do supports the search for effective treatments and cures for ALS. ALS United Mid-Atlantic is committed to our mission, to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS.

ALS United Mid-Atlantic exists to ensure that anyone facing ALS has someone to turn to for expert advice, essential equipment and support, community, caring conversations, and so much more. Now and always, we remain committed to meeting the needs of individuals and families facing ALS that we serve in eastern and central Pennsylvania, central and southern New Jersey, and all of Delaware.

In 2023, ALS United Mid-Atlantic delivered a wide range of care services programs to enhance the quality of life for individuals and families impacted by ALS.

1,440 patient visits either through telemedicine or in person at the 8 ALS Clinics.
25,547 hours of care delivered to 95 people with ALS through the Howard I. Abrams In-Home Care Program.
259 pieces of equipment such as power wheelchairs and shower chairs loaned throughout entire service areato 184 patients through the Marjorie Shimer Durable Medical Equipment Program. We helped install 48 ramps and stair glides.
345 Assistive Technology interventions through the Scott A. Mackler, MD, PhD Assistive Technology Program.

Financials

ALS United Mid-Atlantic
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

ALS United Mid-Atlantic

Board of directors
as of 04/02/2024
SOURCE: Self-reported by organization
Board chair

Mr. Daniel Quinn

Patti Lake-Quinn

no affiliation

Ellyn Phillips

no affiliation

Laurence Delaney

Regina Earnest

Dale Miller

Benjamin S Ohrenstein, Esq.

David Ricci

James Passaro

Tom McGivney

Al Slipakoff

Sandra Sage

Crystal Goodwyn

Dan Quinn