Amyotrophic Lateral Sclerosis Association

A world without ALS

aka ALS Association Greater Philadelphia Chapter   |   Ambler, PA   |  www.alsphiladelphia.org

Mission

To discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.

Ruling year info

1990

Executive Director

Mr. Jeffrey W Cline

Main address

321 Norristown Rd Ste 260

Ambler, PA 19002 USA

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EIN

23-2387205

NTEE code info

Diseases, Disorders, Medical Disciplines N.E.C. (G99)

Alliance/Advocacy Organizations (G01)

Nerve, Muscle and Bone Diseases (G50)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Arthur and Lea Powell Patient Services Program

ALSA covers all the bases - research, patient and community services, public education and advocacy. The Greater Philadelphia Chapter supports seven multi-disciplinary centers of excellence, located at Jefferson Hospital in Philadelphia, PA; Penn State Milton S. Hershey Medical Center, Hersehy, PA; Lehigh Valley Hospital, Allentown, PA; Geisinger Hospital, Bloomsburg, PA and Wyoming Valley,PA; Peninsula Medical Center, Salisbury, MD; and Jersey Shore Hospital, Neptune, NJ.  In addition, we provide support groups, a wheel chair accessible transportation program, a loan program for durable medical equipment, in-home care, educational seminars, in-service programs for medical professionals, recreation programs and more. Contact us at 215-643-5434 or visit our website at www.alsphiladelphia.org

Population(s) Served
Adults

Up to 12 hours per week of in-home custodial care is provided to registered ALS patients living in our service area.

Population(s) Served
Adults

Wheelchair accessable transportation to clinic and medical appointments.

Population(s) Served
Adults

Seven ALS-specific clinics throughout our service area provide case management and care for anyone diagnosed with ALS.  Each visit, patients are seen by a team of up to 12 medical professionals to evaluate and provide guidance for patients and families.  Clinical trials are often available through the clinics.

Population(s) Served
Adults

Thirteen monthly resource groups are provided throughout our service area.  Need-specific groups such as men-as-caregivers, women patients and bereavement are also available.

Population(s) Served
Adults

Durable medical equipment necessasary for patients living with ALS can be provided, free of charge, for as long as needed.

Population(s) Served
Adults

Today, the Mackler Program enables persons with ALS to have access to assistive technology devices and services which are often not covered by insurance policies. The Chapter also identified the need for assistive technology services to be an integral part of our clinic environment. An assistive technologist is available to consult at all clinics.

Population(s) Served
Adults

Where we work

Affiliations & memberships

Community Health Charities 2004

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Goal1: Grow funds raised by meaningful margin year over year by developing a stable,
long-term set of development relationships with donors/sponsors/partners.
Goal 2: Improve the quality of life for patients and their families by providing informed,
impactful and cost-efficient supportive services.
Goal 3: Support and encourage meaningful ALS research on a continuous and
substantial basis.
Goal 4: Enhance the participation, effectiveness and productivity of the Board of
Directors.
Goal 5: Increase recognition of the ALS Association, Greater Philadelphia Chapter and
its programs involving research, advocacy and patient services, in order to further our
fundraising and program initiatives.

Goal 1
-Actively develop the Corporate Sponsorship/Relationship aspect of our development efforts
Goal 2
-Provide comprehensive ALS information to the Community. Increase outreach/awareness of Chapter resources.
-Maximize efficient and effective delivery of Patient Services. Obtain ongoing demographic data, and tailor services accordingly
-Maximize/improve clinical support services. Where possible, increase services at clinics. Consider additional clinics.
- Improve/increase transportation services in other Chapter geographies.
- Expand communication and adaptive technology programs. Pursue grant funding for iPads. Maximize use of online communications for meetings and patient contact. Produce Chapter video for online distribution.
-Expand Abrams In-Home Care and Cox Accessibility Programs.
Goal 3
-Commit to a ratio of at least 25% to 75% of Research to Patient Services of program expenses.
-Continue to strongly advocate and support ALS Research
Goal 4
-Promote education, fundraising, research or advocacy during a dedicated segment of the Board of Overseers Meetings
-Develop Board service criteria
-improve Board orientation.
Goal 5
-Integrate a new branding initiative
-Develop program to provide impactful marketing materials at all venues/opportunities
-Improve communication partnerships with outside groups

Talent base and skill sets are monitored continuously and currently meet the needs of our strategic plan. We continue to broaden our talent base with the addition of one care services associate and a senior development associate.

To date, all aspects of the strategic plan are on track and in accordance with goals and strategies. Revenue performance is above goal.

Financials

Amyotrophic Lateral Sclerosis Association
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
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  • Compare nonprofit financials to similar organizations

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Amyotrophic Lateral Sclerosis Association

Board of directors
as of 02/07/2022
SOURCE: Self-reported by organization
Board co-chair

Ms. Ellyn C Phillips


Board co-chair

Mr. Daniel Quinn

Patti Lake-Quinn

no affiliation

Ellyn Phillips

no affiliation

Laurence Delaney

Christopher Munyan

Regina Earnest

Melissa Ludwig

Dale Miller

Benjamin Ohrenstein, Esq.

Jeff Oppenheimer

David Ricci

James Passaro

Tom McGivney

Al Slipakoff

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes