DEATER FOUNDATION INC

Dedicated to funding HSAN1 medical research in order to find a treatment and cure

aka DFI   |   White Deer, PA   |  www.deaterfoundation.org

Mission

Deater Foundation Inc. works to provide funding and support for medical research on HSAN1, a hereditary sensory neuropathy, with the goal of advancing understanding, awareness and helping to bring about a potential treatment/cure for this disease.

Ruling year info

1991

Principal Officer

Mr. Eric Newcomer

Main address

PO Box 255

White Deer, PA 17887 USA

Show more contact info

EIN

23-2612906

NTEE code info

Private Operating Foundations (T23)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Sign in or create an account to view Form(s) 990 for 2002, 2001 and 2000.
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Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Creating awareness about the disease, HSAN1, and raising funds for medical research in order to find a treatment and cure.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Medical Research

Medical research pertaining to the advancement of a better understanding of HSAN1 causation, mechanisms, treatment, and a potential cure for this disease

Population(s) Served
Adults

Deater Foundation Inc. helps to sponsor International HSAN1 Symposiums every few years, where top HSAN1 researchers around the world meet together to present and discuss their findings, making great progress in the advancement of HSAN1 research

Population(s) Served
Adults

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Total dollars loaned to organizations

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Related Program

Medical Research

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Money given directly for HSAN1 medical research or to fund international HSAN1 symposiums.

Number of conferences held

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

International HSAN1 symposiums held at MGH where top researchers in the field from around the world attend to present their work.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Supporting HSAN1 medical research to ultimately bring about an effective treatment and cure for this debilitating disease.

Raising funds through donations, fundraising, company grants, and matching grants.

Utilizing donor lists, fundraising ideas and sites, company grants, and company matching grants.

Accomplishments include the financial support of medical research, as requested, for the past 20+ years, as well as the sponsorship of four International HSAN1 conferences. Areas where we would like to expand include increased donor generation/retention as well as expansion of our electronic/social media presence to promote increased awareness.

Financials

DEATER FOUNDATION INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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DEATER FOUNDATION INC

Board of directors
as of 11/22/2021
SOURCE: Self-reported by organization
Board chair

Eric Newcomer

DFI

Nancy Newcomer

DFI

Tami Murphy

DFI

Ellen Burns

DFI

Gary Newcomer

DFI

Tonja Cooper

DFI

Kyle Newcomer

DFI

Jon Ellsworth

DFI

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 11/22/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male
Sexual orientation
Decline to state
Disability status
Decline to state

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data