PLATINUM2024

Living Beyond Breast Cancer

aka LBBC   |   Bala Cynwyd, PA   |  www.lbbc.org

Mission

To connect people with trusted breast cancer information and a community of support.

Ruling year info

1994

CEO

Ms. Jean Sachs

Main address

40 Monument Rd Suite 104

Bala Cynwyd, PA 19004 USA

Show more contact info

EIN

23-2734689

NTEE code info

Cancer (G30)

Alliance/Advocacy Organizations (G01)

Community Health Systems (E21)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2022, 2021 and 2020.
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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

We serve women and men who are impacted by breast cancer as patients and caregivers. The American Cancer Society estimates that 240,000 women in the United States will be diagnosed with breast cancer this year. The burden of diagnosis and treatment for this disease on American women and their families is devastating and often goes unrecognized.

Some women are frightened and confused by the complex decisions they need to make in order to regain their overall health and well-being. Others have difficulty accessing physical and psychological support services once their primary treatment has ended. Women need a reliable source of support to help them sift through complicated medical information and make informed choices about treatment and life after breast cancer. Studies show that women want be connected to other women affected by breast cancer for critical emotional and peer support. Everyone affected by breast cancer share a need for information and support tailored to their situation

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Education

Living Beyond Breast Cancer is a national nonprofit organization that seeks to create a world that understands there is more than one way to have breast cancer. To fulfill its mission of providing trusted information and a community of support to those impacted by the disease, LBBC typically offers in-person experiences and online psychosocial and evidence-based content. Nearly 30 years since its inception, the organization remains committed to creating a culture of acceptance— where sharing the diversity of the lived experience of breast cancer fosters self-advocacy and hope.

Population(s) Served
People with diseases and illnesses
Caregivers

Where we work

Affiliations & memberships

Best Breast Cancer Blog - Healthline 2022

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of people impacted by breast cancer we reach each year to provide information and community.

This metric is no longer tracked.
Totals By Year
Related Program

Education

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Calculated based on a set of measures including number of participants at in person and virtual programming and events, users of our Helpline and LBBC.org and recipients of print publications.

Number of volunteers

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Related Program

Education

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Volunteers include our trained Breast Cancer Helpline volunteers, our Leadership Volunteers (Hear My Voice and Young Advocate) and event volunteers

Total number of volunteer hours contributed to the organization

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Number of unique website visitors

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Context Notes

Our strategic plan will be implemented in 2020 to increase reach for newly diagnosed women (early stage and metastatic). We anticipate this increasing.

Number of website pageviews

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We are revising our website and its 12000 pages of content to be more user-friendly, and in the midst of implementing a new strategic plan.

Number of website sessions

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses, Women and girls, Working poor

Related Program

Education

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Total dollars received in contributions

This metric is no longer tracked.
Totals By Year
Related Program

Education

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Number of donations made by board members

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Context Notes

100% of the board supports the organization financially.

Number of clients who report adequate participation in their own treatment

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Related Program

Education

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Our mission is to connect people with trusted breast cancer information and a community of support.

Living Beyond Breast Cancer is a national nonprofit organization that seeks to create a world that understands there is more than one way to have breast cancer. To fulfill our mission of providing trusted information and a community of support, we offer on-demand emotional, practical, and evidence-based content that is meaningful to those newly diagnosed, in treatment, post-treatment, and living with metastatic disease.

For over 30 years, Living Beyond Breast Cancer has imparted wisdom and connection via conferences, events, a peer-to-peer helpline, and more. Today, we remain committed to creating a culture of acceptance—where sharing the diversity of the lived experience of breast cancer fosters self-advocacy and hope.

Double our national impact by reaching more than 600k people impacted by breast cancer
• Improve virtual programming: website enhancements, digital publications, online and livestream programs
• Hold two national educational conferences
• Hold in-person programs in communities across the country

Bring resources to underserved populations, especially Black women diagnosed and living with breast cancer
• Develop new resources: publications and programs
• Build partnerships to reach underserved women

Expand recognition as a thought leader.
• Serve on national committees
• Increase media outreach
• Publish results and opinions

Increase funding from major donors, government sources, corporations, and foundations

Ensure that LBBC is a high-performing organization
• Improve infrastructure
• Expand internal capacity
• Identify and take appropriate business risks

For over 30 years our staff and dedicated volunteers have focused on developing and delivering programs and services to share information and build community for women and men impacted by breast cancer. Our work is informed by research to define the specific needs of women and men with breast cancer and their caregivers and is medically reviewed by members of our national medical advisory board. We consistently review and analyze the impact of our programs and services to ensure that they meet the needs are of the people we serve in content and delivery. We have recently focused on strengthening our marketing and communication capabilities including rebuilding on website and increasing our social media reach.

In 2022 we have reached nearly 600k women and men impacted by breast cancer in the United States. Every day we focus on our vision of a world where no one impacted by breast cancer feels uninformed or alone.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify bright spots and enhance positive service experiences, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We act on the feedback we receive

  • What challenges does the organization face when collecting feedback?

    We don’t have the right technology to collect and aggregate feedback efficiently, The people we serve tell us they find data collection burdensome

Financials

Living Beyond Breast Cancer
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Living Beyond Breast Cancer

Board of directors
as of 06/06/2024
SOURCE: Self-reported by organization
Board chair

Ms Megan Rutt

Jean Sachs

CEO

Felicia Johnson

Patient Advocate

Megan Rutt

Finance Consultant

Robert Stiles

Co-Founder, Aurdan Capital Management

Gina Range

Senior VP, Opera Philadelphia

Crystal Thompson

Vice President, Commercial Operations, Cardinal Health

John Riesch

Managing Director, Protiviti, Philadelphia

Andrea Drucker

Drucker Law, LLC

Donna Noce Colaco

CEO, Executive Chairwoman, Matilda Jane Clothing Co.

Atiba Page

Senior Manager, Bristol Myers Squibb

Nancy Lyskawa

Executive VP, Global Client Onboarding and Client Care, Rimini Street

Walter Kowal

Vice President, Business Operations – Hospital-Based Services, Nemours Children’s Health

Caroline Abi-Khattar

Lawyer and Patient Advocate

Roberta Albany

Founder, Cancer in the Know

Amy Burkholder

Writer/Producer

Christiane Campbell

Partner, Duane Morris LLP

Amy Gavin

Impact Manager, Gavin/Solmonese

Jason Geipel

Group Strategy Director, Oncology, Grey Group

Sameer Gupta

Clinical Assistant Professor of Medicine, Jefferson Medical College Attending Physician, Hematology-Oncology, Bryn Mawr Hospital

Reshma Mahtanai

Chief of Breast Medical Oncology, Miami Cancer Institute, Baptist Health South Florida Member, Memorial Sloane Kettering Alliance

Abby Match

Patient Advocate

Neeta Mehta

Partner, Bridge Partners, LLC

Valerie Miller

Retention Executive, Workplace Investing, Fidelity Investments

Chelsey Pickthorn

Patient Advocate

Amy Reichbach

Hearing Officer, Massachusetts Bureau of Special Education Appeals

Jamil Rivers

Founder, The Chrysalis Initiative

Marissa Thomas

Cofounder, For the Breast of Us

Keya Williams

CFO, Spring Point Partners

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 6/13/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

No data

Transgender Identity

No data

Sexual orientation

Disability

No data