Living Beyond Breast Cancer
Programs and results
What we aim to solve
We serve women and men who are impacted by breast cancer as patients and caregivers. The American Cancer Society estimates that 240,000 women in the United States will be diagnosed with breast cancer this year. The burden of diagnosis and treatment for this disease on American women and their families is devastating and often goes unrecognized.
Some women are frightened and confused by the complex decisions they need to make in order to regain their overall health and well-being. Others have difficulty accessing physical and psychological support services once their primary treatment has ended. Women need a reliable source of support to help them sift through complicated medical information and make informed choices about treatment and life after breast cancer. Studies show that women want be connected to other women affected by breast cancer for critical emotional and peer support. Everyone affected by breast cancer share a need for information and support tailored to their situation
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Education
Living Beyond Breast Cancer is a national nonprofit organization that seeks to create a world that understands there is more than one way to have breast cancer. To fulfill its mission of providing trusted information and a community of support to those impacted by the disease, LBBC typically offers in-person experiences and online psychosocial and evidence-based content. Nearly 30 years since its inception, the organization remains committed to creating a culture of acceptance— where sharing the diversity of the lived experience of breast cancer fosters self-advocacy and hope.
Where we work
Affiliations & memberships
Best Breast Cancer Blog - Healthline 2022
External reviews

Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of people impacted by breast cancer we reach each year to provide information and community.
This metric is no longer tracked.Totals By Year
Related Program
Education
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
Calculated based on a set of measures including number of participants at in person and virtual programming and events, users of our Helpline and LBBC.org and recipients of print publications.
Number of volunteers
This metric is no longer tracked.Totals By Year
Population(s) Served
Adults
Related Program
Education
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
Volunteers include our trained Breast Cancer Helpline volunteers, our Leadership Volunteers (Hear My Voice and Young Advocate) and event volunteers
Total number of volunteer hours contributed to the organization
This metric is no longer tracked.Totals By Year
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Number of unique website visitors
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Context Notes
Our strategic plan will be implemented in 2020 to increase reach for newly diagnosed women (early stage and metastatic). We anticipate this increasing.
Number of website pageviews
This metric is no longer tracked.Totals By Year
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
We are revising our website and its 12000 pages of content to be more user-friendly, and in the midst of implementing a new strategic plan.
Number of website sessions
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses, Women and girls, Working poor
Related Program
Education
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Total dollars received in contributions
This metric is no longer tracked.Totals By Year
Related Program
Education
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Number of donations made by board members
This metric is no longer tracked.Totals By Year
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Context Notes
100% of the board supports the organization financially.
Number of clients who report adequate participation in their own treatment
This metric is no longer tracked.Totals By Year
Population(s) Served
Adults
Related Program
Education
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Increasing
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Reports and documents
Download strategic planLearn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Our mission is to connect people with trusted breast cancer information and a community of support.
Living Beyond Breast Cancer is a national nonprofit organization that seeks to create a world that understands there is more than one way to have breast cancer. To fulfill our mission of providing trusted information and a community of support, we offer on-demand emotional, practical, and evidence-based content that is meaningful to those newly diagnosed, in treatment, post-treatment, and living with metastatic disease.
For over 30 years, Living Beyond Breast Cancer has imparted wisdom and connection via conferences, events, a peer-to-peer helpline, and more. Today, we remain committed to creating a culture of acceptance—where sharing the diversity of the lived experience of breast cancer fosters self-advocacy and hope.
What are the organization's key strategies for making this happen?
Double our national impact by reaching more than 600k people impacted by breast cancer
• Improve virtual programming: website enhancements, digital publications, online and livestream programs
• Hold two national educational conferences
• Hold in-person programs in communities across the country
Bring resources to underserved populations, especially Black women diagnosed and living with breast cancer
• Develop new resources: publications and programs
• Build partnerships to reach underserved women
Expand recognition as a thought leader.
• Serve on national committees
• Increase media outreach
• Publish results and opinions
Increase funding from major donors, government sources, corporations, and foundations
Ensure that LBBC is a high-performing organization
• Improve infrastructure
• Expand internal capacity
• Identify and take appropriate business risks
What are the organization's capabilities for doing this?
For over 30 years our staff and dedicated volunteers have focused on developing and delivering programs and services to share information and build community for women and men impacted by breast cancer. Our work is informed by research to define the specific needs of women and men with breast cancer and their caregivers and is medically reviewed by members of our national medical advisory board. We consistently review and analyze the impact of our programs and services to ensure that they meet the needs are of the people we serve in content and delivery. We have recently focused on strengthening our marketing and communication capabilities including rebuilding on website and increasing our social media reach.
What have they accomplished so far and what's next?
In 2022 we have reached nearly 600k women and men impacted by breast cancer in the United States. Every day we focus on our vision of a world where no one impacted by breast cancer feels uninformed or alone.
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
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Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Living Beyond Breast Cancer
Board of directorsas of 06/13/2023
Ms Megan Rutt
Jean Sachs
CEO
Lou Lovino
Digitas
Phillip Browne
FS Partners
Sandy Grimes
Barre 3
Liz Santarsiero
Novartis
Meridith Swartz Dante
Ballard Spahr
Felicia Johnson
Patient Advocate
Megan Rutt
Finance Consultant
Robert Stiles
VP Haverford Trust Co.
Gina Range
August Wilson African American Cultural Center
Crystal Thompson
John Riesch
Managing Director, Protiviti, Philadelphia
Andrea Drucker
Drucker Law, LLC
Linda Brassington
Donna Noce Colaco
CEO, Executive Chairwoman, Matilda Jane Clothing Co.
Atiba Page
Senior Manager, Bristol Myers Squibb
Nancy Lyskawa
Executive VP, Global Client Onboarding and Client Care, Rimini Street
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
Gender identity
No data
No data
Sexual orientation
Disability
No data