Macula Vision Research Foundation

aka MVRF   |   West Conshohocken, PA   |  www.mvrf.org
This organization has not appeared on the IRS Business Master File in a number of months. It may have merged with another organization or ceased operations.

Mission

The Macula Vision Research Foundation (MVRF) is a 501 (c)(3) organization dedicated to finding a cure for macular degeneration and other retinal diseases. To reach this goal, MVRF funds groundbreaking research projects conducted by the world's top scientists with the hope of improving the lives of millions of people affected by visual impairment. What makes MVRF unique is that 100% of every dollar donated goes directly to research. All administrative and fundraising expenses are underwritten by the Karen and Herb Lotman Foundation, allowing MVRF to allocate all donations towards finding a cure. Along with funding research, MVRF also provides education and outreach to those with visual impairments through our SupportSight seminars and newsletter.

Ruling year info

2004

Executive Director

Ms. Dawn Prall George

Main address

One Tower Bridge 100 Front Street, Suite 300

West Conshohocken, PA 19428 USA

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EIN

23-2876473

NTEE code info

Eye Diseases, Blindness and Vision Impairments (G41)

Eye (H41)

Fund Raising and/or Fund Distribution (H12)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Research Grants

MVRF funds a wide-range of basic research on macular degeneration, with the goal of advancing the understanding of the genetic, molecular and cellular basis of macular degeneration and use this information to develop improved diagnostic tools, preventative measures, and therapeutic treatments. What makes MVRF unique is that 100% of every dollar donated supports research to find cure. The Karen and Herbert Lotman Foundation pays for all administration and fundraising expenses, making MVRF the only national vision research foundation that can make this claim.

Population(s) Served

MVRF's SupportSight patient education/outreach program has three pieces:

Free seminars are held throughout the country with 200+ participants. Led by retina specialists, researchers and low vision and healthcare experts, reaching thousands each year and available online to a worldwide audience.

Our newsletter has a circulation of 30,000+ nationwide and is available electronically at mvrf.org. It is reader friendly for the vision impaired and is an invaluable resource for the low vision community. It includes research and treatment updates and practical information.

SS Resources includes our toll free number, outreach, mobile app, website, referrals, access to disease-specific information and clinical trials.

Population(s) Served

Where we work

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Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

MVRF’s mission is to find the cause, prevention, treatment and cure for macula vision disease with the goal of saving sight and to provide public education, advocacy, and support to those with macular degeneration. Our mission is to restore the gift of sight by curing retinal diseases. Our grants fund groundbreaking, innovative research conducted by the world’s top scientists who are working feverishly to find treatments and a cure for retinal diseases, including macular degeneration and congenital childhood blindness.
MVRF’s work is extraordinary in that 100% of every dollar donated goes directly to fund the mission.

We are laser focused on finding a cure for age-related macular degeneration and other retina-related diseases and we do not deviate from our mission. We do this by remaining diligent to our purpose and patient in our quest. Since 1997 MVRF has awarded grants totaling more than $21 million dollars to the world’s brightest vision scientists who are at the cutting edge of pioneering macular degeneration research.

Our business model is simple and effective. We are a national charity that has two decades of experience and an international scientific advisory board made up of some of the leading retina research experts in the world who help guide our scientific program. MVRF is the best return on investment for donors. 100 percent of all the funds donated goes directly to fund the research to find a cure for AMD. All administrative expenses are underwritten by the Karen and Herbert Lotman Foundation.

Accomplishments:

1. Total grants awarded: over $21 million dollars
2. 23 research studies are now in progress
3. 145 grants have been awarded by MVRF over the past 18 years
4. MVRF has hosted 12 international research conferences attended by world-renowned vision researchers from all over the world.
5. 35,500 people from all over the country have attended MVRF SupportSight educational seminars
6. Funded research that discovered a good animal model of AMD
7. Funded research that successfully restored sight to patients with Leber congenital amaurosis (a form of childhood blindness)
8. Funded research that discovered a strong association of complement factor H with AMD
9. Continue to fund research that is advancing potential stem cell therapies

Goals:
1. The more money we raise, the more research we fund!
2. Expand the public’s awareness of the disease – macular degeneration, impact, causes, treatments and how they can make a difference in the
pathways to a cure
3. Expand educational outreach through SupportSight, our signature national education and outreach program

Financials

Macula Vision Research Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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Macula Vision Research Foundation

Board of directors
as of 9/10/2018
SOURCE: Self-reported by organization
Board chair

Shelly Lotman-Fisher

No affiliation

Term: 1997 -

Karen Lotman

Jeff Lotman

George Ginader

Marvin Sears Founding Scientific Director

Colin Barnstable

Dean Bok

William Hauswirth

Robert McInnes

Robert Molday

Philip Rosenfeld

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes