MYASTHENIA GRAVIS FOUNDATION OF ILLINOIS INC
Support * Education * Awareness * Research
Programs and results
What we aim to solve
Individuals who have myasthenia gravis often have their lives turned upside down by debilitating muscle weakness. They may need help in sorting out the emotional and financial challenges of chronic illness, identifying strategies for daily living, finding a doctor who understands MG and its treatments, and finding hope for a cure.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Patient Education Seminars
Each year Conquer MG hosts two patient seminars, giving MG patients and families time to meet others and learn about this rare autoimmune disease. Presentations by recognized experts cover various MG topics and are held generally in the Chicago area. Topics include explanations of MG pathology, symptoms and treatment, latest MG research, MG and issues like nutrition, exercise, sleep, and mental health.
Patient Assistance Program
We help MG patients who are residents of Illinois, Indiana, and Wisconsin who struggle with the high cost of medical care. The Patient Assistance Program will cover up to $1000 in medical costs for qualifying individuals.
Myasthenia Gravis Support Groups
These groups are run by experienced leaders. They offer resources, information, and caring assistance to MG patients and family members.
Where we work
External reviews
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
To serve myasthenia gravis patients with programs of support, education, awareness, advocacy, and research funding for a cure.
What are the organization's key strategies for making this happen?
Our strategies are to identify myasthenia gravis patients by making connections to neurologists in the Illinois, Indiana, and Wisconsin area, publicizing articles about MG, getting patients connected to services and peer support, partnering with other MG associations to gain the farthest reach with minimal staff, and to fund research for a cure.
What are the organization's capabilities for doing this?
We are staffed by an experienced executive director and support team, have a team of volunteers who want to serve others, have a dedicated mission-driven board, and have a strong, viable Medical Advisory Board. All work together to bring new ideas for access and service to the table, and then act on these strategies.
What have they accomplished so far and what's next?
We continue to work at reaching underserved populations who have complex problems. The rising cost of medical care and prescription medications is a huge challenge, and our Patient Assistance Program is providing some help.
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
MYASTHENIA GRAVIS FOUNDATION OF ILLINOIS INC
Board of directorsas of 03/11/2023
Bob Rosecrans
Conquer Myasthenia Gravis
Tammy Carter
Conquer Myasthenia Gravis
Robert Ratzel
Conquer Myasthenia Gravis
Julie McCracken
Conquer Myasthenia Gravis
Tracy Shackelford
Conquer Myasthenia Gravis
Jim Dee
Conquer Myasthenia Gravis
Maria Zepeda
Conquer Myasthenia Gravis
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? No -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
Gender identity
Transgender Identity
Sexual orientation
No data