SILVER2023

MYASTHENIA GRAVIS FOUNDATION OF ILLINOIS INC

Support * Education * Awareness * Research

aka Conquer Myasthenia Gravis   |   Chicago, IL   |  www.myastheniagravis.org

Mission

THE FOUNDATION'S MISSION IS TO FACILITATE THE TIMELY DIAGNOSIS AND OPTIMAL CARE OF INDIVIDUALS AFFECTED BY MG AND TO IMPROVE THEIR LIVES THROUGH PROGRAMS OF PATIENT SERVICES, PUBLIC AWARENESS, MEDICAL RESEARCH, PROFESSIONAL EDUCATION, ADVOCACY AND PATIENT CARE THE FOUNDATION HAS FOUR MAJOR GOALS - PROVIDE SUPPORT, Education, advocacy, and research funding.

Ruling year info

1955

Principal Officer

Joan Wincentsen

Main address

4055 W. Peterson Ave., Suite 105

Chicago, IL 60646 USA

Show more contact info

EIN

23-7282572

NTEE code info

Nerve, Muscle and Bone Diseases (G50)

Nerve, Muscle, Bone Research (H50)

Nerve, Muscle and Bone Diseases (G50)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Individuals who have myasthenia gravis often have their lives turned upside down by debilitating muscle weakness. They may need help in sorting out the emotional and financial challenges of chronic illness, identifying strategies for daily living, finding a doctor who understands MG and its treatments, and finding hope for a cure.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Patient Education Seminars

Each year Conquer MG hosts two patient seminars, giving MG patients and families time to meet others and learn about this rare autoimmune disease. Presentations by recognized experts cover various MG topics and are held generally in the Chicago area. Topics include explanations of MG pathology, symptoms and treatment, latest MG research, MG and issues like nutrition, exercise, sleep, and mental health.

Population(s) Served
Adults

We help MG patients who are residents of Illinois, Indiana, and Wisconsin who struggle with the high cost of medical care. The Patient Assistance Program will cover up to $1000 in medical costs for qualifying individuals.

Population(s) Served
Adults

These groups are run by experienced leaders. They offer resources, information, and caring assistance to MG patients and family members.

Population(s) Served
Adults

Where we work

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

To serve myasthenia gravis patients with programs of support, education, awareness, advocacy, and research funding for a cure.

Our strategies are to identify myasthenia gravis patients by making connections to neurologists in the Illinois, Indiana, and Wisconsin area, publicizing articles about MG, getting patients connected to services and peer support, partnering with other MG associations to gain the farthest reach with minimal staff, and to fund research for a cure.

We are staffed by an experienced executive director and support team, have a team of volunteers who want to serve others, have a dedicated mission-driven board, and have a strong, viable Medical Advisory Board. All work together to bring new ideas for access and service to the table, and then act on these strategies.

We continue to work at reaching underserved populations who have complex problems. The rising cost of medical care and prescription medications is a huge challenge, and our Patient Assistance Program is providing some help.

Financials

MYASTHENIA GRAVIS FOUNDATION OF ILLINOIS INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
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  • Compare nonprofit financials to similar organizations

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MYASTHENIA GRAVIS FOUNDATION OF ILLINOIS INC

Board of directors
as of 03/11/2023
SOURCE: Self-reported by organization
Board chair

Bob Rosecrans

Conquer Myasthenia Gravis

Tammy Carter

Conquer Myasthenia Gravis

Robert Ratzel

Conquer Myasthenia Gravis

Julie McCracken

Conquer Myasthenia Gravis

Tracy Shackelford

Conquer Myasthenia Gravis

Jim Dee

Conquer Myasthenia Gravis

Maria Zepeda

Conquer Myasthenia Gravis

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 6/2/2021

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female
Sexual orientation
Decline to state
Disability status
Person with a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

No data

Disability