PLATINUM2023

Mario Lemieux Foundation

More Courageous Together!

Pittsburgh, PA   |  http://www.mariolemieux.org

Mission

To raise funds for cancer research and patient care, as well as Austin's Playrooms, an initiative that creates playrooms for children and families in medical facilities.

Ruling year info

1993

Executive Director

Ms. Nancy G. Angus

Main address

Two Chatham Center, Suite 1661 112 Washington Place

Pittsburgh, PA 15219 USA

Show more contact info

EIN

25-1708231

NTEE code info

Cancer Research (H30)

Patient Services - Entertainment, Recreation (E86)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

The Mario Lemieux Pediatric Cancer Institute seeks to not only provide cutting edge care and trials for patients, but also attract and retain high level researchers. A tumor suppressor was found in our Lymphoma lab at UPMC Children's Hospital of Pittsburgh. Their discovery led to more NIH funding. Additionally, we plan to continue to grow our Austins Playrooms program to reach more children and families. 43 playrooms have been established with several playrooms planned or under construction. The Mario Lemieux Immunotherapy Center that was established in 2018 and is currently under construction due to a COVID delay, will expand the continuum of care from blood cancers to solid tumors at the UPMC Hillman Cancer Center and work in concert with our established Mario Lemieux Center for Blood Cancers. The Lemieux Innovation and Research Fund at AHN Cardiovascular Institute continues to thrive. Our researchers amaze us with their progress!

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Mario Lemieux Center for Blood Cancers

The Mario Lemieux Center for Blood Cancers was established in 2012 at the UPMC Hillman Cancer Center to provide a patient focused outpatient center with comprehensive care for all types of blood cancers and disorders
including, Leukemia, Lymphoma, and Multiple Myeloma. The Mario Lemieux Immunotherapy Center was established in 2018 at the UPMC Hillman Cancer Center and is under construction.

Population(s) Served
Adults

Austin's Playrooms benefits families and improves the quality of a child's hospital experience whether as a visitor or patient by providing cheerful playrooms that are safe, calming and comfortable. 43 playrooms have been opened, including three military playrooms.

Population(s) Served

The Mario Lemieux Lymphoma Center for Children and Young Adults was established at Children’s Hospital of Pittsburgh of UPMC in 2014. The Lemieux Lymphoma Center is the first of its kind, focusing on clinical care, laboratory research, and clinical research surrounding difficult-to-treat and rare childhood lymphomas. The Center has increased access to care and cutting-edge treatments for all childhood lymphomas, while also bringing together a critical volume of patients with rare lymphomas for research studies that can have a global impact on care.

Population(s) Served
Children and youth
Adults

Mario Lemieux Institute for Pediatric Cancer Research was established in October 2022 at UPMC Children's Hospital. The Institute will push the frontier of childhood cancer research and focus on supporting future research leaders who will help generate new scientific breakthroughs and cutting-edge clinical trials in pediatric cancer research and translate that research directly to patients. UPMC and UPMC Children’s Hospital Foundation have committed to matching the Lemieux Foundation’s $5M make this a $10M project.

Population(s) Served
Children and youth
Families
Children and youth
Families

In September 2019, the Mario Lemieux Foundation made a $1 million gift with matching funds from Highmark Health to establish the Division of Cardiac Electrophysiology (EP) at Allegheny Health Network’s (AHN) Cardiovascular Institute. The $2 million investment will support medical research and the development of innovative therapies and technologies for heart rhythm disorders, a cause close to Mario Lemieux.

Population(s) Served
Adults

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of patient visits

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Related Program

Mario Lemieux Center for Blood Cancers

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

At the Lemieux Center, an expert and dedicated team treat more than 40,000 patients annually. Many new immunotherapy treatments, including CAR T-Cell therapies are being used as successful treatments.

Number of children and families using Austin's Playrooms

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth, Caregivers, Families

Related Program

Austin's Playrooms

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Austin's Playrooms have served more than 1,250,000 children and families since the year 2000. We expect this number to grow as we increase the number of Austin's Playrooms established.

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Goals
- Open two new playrooms in 2024; provide maintenance on existing playrooms in 2023.
- Increase awareness of our programs in both pediatric lymphomas and blood cancers treatment and patient care and expand pediatric oncology research at the newly established research institute
-Open Lemieux Immunotherapy Center in 2024

- Continue following the established MLF Strategic Plan as updated in November 2022
-Continue following the Playroom specifics of the plan and raise the appropriate dollars for these goals to open more playrooms
- Continued support of our existing programs in both pediatric lymphomas and blood cancers treatment as well as patient care

We feel confident that we will meet these goals given our proven track record. Our Board and staff are fully committed to the success of the organization.

The Mario Lemieux Foundation is consistently reaching those in need. With 43 Austin's Playrooms, we estimate that we have reached over 2 million children and families through our rooms. This is an exciting benchmark and we will continue to reach more kids to make their hospital experience a positive one.

The newly opened Mario Lemieux Pediatric Cancer Institute will prove cutting-edge care and clinical trials for patients. The Institute will also ensure that the most talented researchers are recruited and stay in Pittsburgh to support this project.

The Lemieux Innovation Fund at AHN's Cardiac Institute is making incredible strides in afib research. We expect this project to continue to help more individuals with new clinical breakthroughs.

Additionally, in our Lymphoma Center for Children and Young Adults, our researchers and clinicians are the best in their field, and we feel confident they are making big strides in quality treatments. They recently found a tumor suppressor and that is a huge find in this field. Their discovery led to more NIH funding and will potentially change the way lymphoma patients are treated. We expect our pediatric oncology program to grow.

Finally, with our Center for Blood Cancers, we are treating over 30,000 patients annually in the state-of-the art outpatient center that did not exist 30 years ago when Mario went through his experience with Hodgkin's disease. we expect those patient numbers to grow. Our Center is unique as it uses the patient-centric model which brings coordinated care and services to the patient, eliminating wait times and multiple stops during their visit. Our continued goal there is to make it as easy and comfortable for the patient as possible. Additionally, the opening of the Mario Lemieux Immunotherapy Center in 2024 (projected), will expand our reach to patients by seeing not only patients with blood cancers, but also solid tumor cancers.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback

Financials

Mario Lemieux Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Mario Lemieux Foundation

Board of directors
as of 07/28/2023
SOURCE: Self-reported by organization
Board chair

Mr. Mario Lemieux

Mario Lemieux

Chairman

Thomas Grealish

President

Nathalie Lemieux

Vice President

Chuck Greenberg

Secretary

Steve Reich

Board Member

Andrew Urbach

Board Member

Alicia Caufield

Board Member

Lauren Lemieux Antoni

Treasurer

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 7/28/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female

Race & ethnicity

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data