The Joe Martin ALS Foundation
We Help People with ALS. You can too.
Mission
The Joe Martin ALS Foundation’s mission is to empower families as they face the challenge of living actively with ALS by providing home care and other services at no cost.
Notes from the nonprofit
The Joe Martin ALS Foundation believes that with the help of family and a caring community people with ALS can live with purpose, with joy, and with hope. This philosophy drives us to empower families with the knowledge and tools to navigate this progressive disease. The Joe Martin ALS Foundation provides the following services at no cost to families fighting ALS: Respite care Home Assessments Range of motion therapy Mobility safety Caregiver training and workshops Wheelchair accessible transportation Assistive technology support Performing Activities of Daily Living (ADL’s) such as dressing, grooming, and transferring from bed to wheelchair to help PALS begin a productive day. Joe's Camp
Ruling year
2008
President
Neil Cottrell
Main address
100 N Tryon St Ste 3420
Charlotte, NC 28202 USA
EIN
26-0163120
NTEE code
Health Support Services (E60)
Homemaker, Home Health Aide (P44)
Transportation (Free or Subsidized) (P52)
IRS filing requirement
This organization is required to file an IRS Form 990 or 990-EZ.
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Programs and results
What we aim to solve
An ALS diagnosis is devastating. There is no cure and people with ALS (PALS) and their families do not know how to address the challenges that continue to deteriorate their quality of life. The Joe Martin ALS Foundation provides answers to caregiving questions and become a trusted friend who can help navigate ALS. As the disease progresses PALS need more help. Seemingly easy tasks such as bathing, dressing, and eating become difficult. Homecare is expensive and many families do not have insurance to cover these expenses. The foundation provides free home to help with this need. Our staff has ALS caregiving experience and teach family members the best caregiving techniques and recommend medical equipment that are suited for PALS. The foundation also provides loaner medical equipment when available. Many PALS cannot afford to purchase a wheelchair accessible van and the foundation has addressed this need by providing wheelchair accessible transportation.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Home Care
The Joe Martin ALS Foundation provides free home care that includes performing ADL's (Activities of Daily Living): assistance with getting out of bed, dressing, feeding, and hygiene, as well as providing wheelchair accessible transportation, assistive technology assistance, trip planning, and home therapy/excersize.
Wheelchair Accessible Transportation
Provide wheelchair accessible transportation to the ALS clinic, family reunions, graduations and anywhere we can take people to live life actively.
Caregiving Workshops
In-home meetings tailored for the specific patient's needs to educate their caregivers. We also offer public caregiving workshops. Hoyer lift demonstrations, range of motion, and instructions on how to use medical equipment are demonstrated and taught to make everyday caregiving easier.
Joe's Camp
An overnight weekend camp for kids whose family has been touched by ALS for kids ages 8-17,
including Joe's Camp Family Day, Sunday, August 5th for workshops for parents and caregivers and kids.
Joe's Camp gives kids a chance to get away for some fun with others who are going through the same experiences.
Home Assessment
Meet with families in their homes to help them prepare for living with ALS. Recommendations are made to make the home wheelchair accessible and the best equipment is recommended to help the person with ALS and their caregivers in dat to day activities. We help mitigate costs by identifying equipment that will meet the families needs. This prevents buying multiple pieces of equipment for the same problem. We also provide loaner equipment when available.
Where we work
External reviews
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of families who report they are supported in utilizing natural supports in their communities (e.g., family, friends, neighbors, churches, colleges, recreational services)
This metric is no longer tracked.Totals By Year
Population(s) Served
Children and youth, Adults
Related Program
Home Care
Type of Metric
Context - describing the issue we work on
Direction of Success
Increasing
Context Notes
We facilitate communication to our clients friends, family, and community partners to help them communicate their needs to receive help from all possible resources.
Number of families who report that service and support staff/providers are available and capable of meeting family needs
This metric is no longer tracked.Totals By Year
Population(s) Served
Adults
Related Program
Home Care
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Increasing
Context Notes
Our numbers reflect the year by year growth of the families we serve.
Number of people provided assistive technology
This metric is no longer tracked.Totals By Year
Population(s) Served
Adults
Related Program
Home Care
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
We help clients acquire assistive technology to aid in communication and loss of arm/hand strength.
Number of clients in residential care
This metric is no longer tracked.Totals By Year
Population(s) Served
Adults
Related Program
Home Care
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Number of eligible clients who report having access to an adequate array of services and supports
This metric is no longer tracked.Totals By Year
Population(s) Served
Adults
Related Program
Home Assessment
Type of Metric
Context - describing the issue we work on
Direction of Success
Increasing
Number of older adults being supported to live at home through home care, assistive technology, and/or personal support plans
This metric is no longer tracked.Totals By Year
Population(s) Served
Adults
Related Program
Home Care
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
We provide home care and home assessments therefore most people we serve live at home.
Number of youth who demonstrate that they have developed coping skills
This metric is no longer tracked.Totals By Year
Population(s) Served
Children and youth
Related Program
Joe's Camp
Type of Metric
Context - describing the issue we work on
Direction of Success
Increasing
Context Notes
These numbers reflect our Joe's Camp program. We provide coping skills for kids who have a loved one with ALS.
Number of youth who demonstrate that they have developed a strong sense of self
This metric is no longer tracked.Totals By Year
Population(s) Served
Children and youth
Related Program
Joe's Camp
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Increasing
Context Notes
Kids who attend Joe's Camp are encouraged by their peers who are also affected by having a loved one with ALS. They learn and develop their sense of self.
Number of youth who demonstrate that they are aware of their interests and abilities
This metric is no longer tracked.Totals By Year
Related Program
Joe's Camp
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Increasing
Context Notes
All children at Joe's Camp have a loved one living with ALS.
Number of adults with a source of ongoing care
This metric is no longer tracked.Totals By Year
Population(s) Served
Adults
Related Program
Home Care
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Number of adults with disabilities receiving sufficient social and emotional support
This metric is no longer tracked.Totals By Year
Population(s) Served
Children and youth, Adolescents, Adults
Related Program
Home Care
Type of Metric
Context - describing the issue we work on
Direction of Success
Increasing
Context Notes
We help provide social and emotional support and reach out to their community for all possible resources.
Number of patient visits
This metric is no longer tracked.Totals By Year
Population(s) Served
Adults
Related Program
Home Care
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
For home care we visit clients 2 times per week. We also provide wheelchair transportation, home assessments, loaner medical equipment, and other assistance that consist of patient/client visits.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
We hope to provide emotional and financial support through our services. We save families at least $5,000 per year by providing free home care. We help decrease stress by helping families understand that they can learn to be caregivers and by knowing we will be there when they have new questions and challenges as the disease progresses.
What are the organization's key strategies for making this happen?
We educated families through caregiver workshops and training. This strategy provides comfort and decreases caregiver and PALS' stress. Fear is high of the unknown. Learning that they can do something to help their loved one and fight this disease is empowering. By providing free homecare services we are giving the tangible benefit of saving families several thousands of dollars.
What are the organization's capabilities for doing this?
Our caregivers all have ALS caregiving experience. They provide hands on homecare for free in PALS homes. Neil Cottrell has over 21 years of ALS caregiving experience and he does caregiving training, workshops, and support groups to assist these families. We have also recently added a camp to help kids who have a loved one with ALS.
What have they accomplished so far and what's next?
We have helped over 500 families in the Charlotte area and thousands through our online resources (for example: caregiving tutorial videos). The thanks and gratitude of the families we have helped are overwhelming. Our staff has served as Pall bearers, given eulogies, and the foundation routinely receives donations from "in lieu of flowers" requests. This is due to the fact that our staff become very close to the families we serve. We help improve quality of life for PALS and their families. We hope to continue to assess and meet the needs of the ALS community through new programs like "Joe's Camp" and one day establish offices in more cities to reach more people.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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Who are the people you serve with your mission?
The Joe Martin ALS Foundation serves families fighting ALS. This disease does not discriminate and neither do we. We serve all who we can based on a first come, first serve basis. We receive referrals from ALS clinics and those who find out about us on their own.
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals
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What significant change resulted from feedback?
We recently expanded our services to the Greensboro/Triad area of North Carolina. We also started Joe's Camp a few years ago and this program is growing. We learned that children of those with ALS need more support and resources. There wasn't any programs for children and they need to understand they are not alone and that there are other kids in similar situations. This led to the development of our Joe's Camp program. This camp helps with the aforementioned and provides coping skills for these children as they help their families through the many challenges of ALS.
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Which of the following feedback practices does your organization routinely carry out?
We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded
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What challenges does the organization face when collecting feedback?
It is difficult to get the people we serve to respond to requests for feedback, The people we serve tell us they find data collection burdensome
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
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The Joe Martin ALS Foundation
Board of directorsas of 06/30/2022
Mrs. Sandra Bobbitt
Chairperson
Term: 2022 - 2024
Terri Kletch
Frank Deaton
Pat Martin
Sandra Bobbitt
Jenifer Yoxtheimer
Claudia Ramirez Tate
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
Gender identity
Sexual orientation
Disability
We do not display disability information for organizations with fewer than 15 staff.
Equity strategies
Last updated: 06/30/2022GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We review compensation data across the organization (and by staff levels) to identify disparities by race.
- We ask team members to identify racial disparities in their programs and / or portfolios.
- We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
- We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
- We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
- We disaggregate data by demographics, including race, in every policy and program measured.
- We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
- We use a vetting process to identify vendors and partners that share our commitment to race equity.
- We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
- We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
- We have community representation at the board level, either on the board itself or through a community advisory board.
- We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
- We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
- We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.
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