The Joe Martin ALS Foundation

We Help People with ALS. You can too.

aka The Joe Martin ALS Foundation   |   Charlotte, NC   |  www.joemartinALSfoundation.org

Mission

The Joe Martin ALS Foundation’s mission is to empower families as they face the challenge of living actively with ALS by providing home care and other services at no cost.

Ruling year info

2008

President

Neil Cottrell

Main address

100 N Tryon St Ste 3420

Charlotte, NC 28202 USA

Show more contact info

EIN

26-0163120

NTEE code info

Health Support Services (E60)

Homemaker, Home Health Aide (P44)

Transportation (Free or Subsidized) (P52)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Programs and results

What we aim to solve

SOURCE: Self-reported by organization

An ALS diagnosis is devastating. There is no cure and people with ALS (PALS) and their families do not know how to address the challenges that continue to deteriorate their quality of life. The Joe Martin ALS Foundation provides answers to caregiving questions and become a trusted friend who can help navigate ALS. As the disease progresses PALS need more help. Seemingly easy tasks such as bathing, dressing, and eating become difficult. Homecare is expensive and many families do not have insurance to cover these expenses. The foundation provides free home to help with this need. Our staff has ALS caregiving experience and teach family members the best caregiving techniques and recommend medical equipment that are suited for PALS. The foundation also provides loaner medical equipment when available. Many PALS cannot afford to purchase a wheelchair accessible van and the foundation has addressed this need by providing wheelchair accessible transportation.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Home Care

The Joe Martin ALS Foundation provides free home care that includes performing ADL's (Activities of Daily Living): assistance with getting out of bed, dressing, feeding, and hygiene, as well as providing wheelchair accessible transportation, assistive technology assistance, trip planning, and home therapy/excersize.

Population(s) Served

Provide wheelchair accessible transportation to the ALS clinic, family reunions, graduations and anywhere we can take people to live life actively.

Population(s) Served

In-home meetings tailored for the specific patient's needs to educate their caregivers. We also offer public caregiving workshops. Hoyer lift demonstrations, range of motion, and instructions on how to use medical equipment are demonstrated and taught to make everyday caregiving easier.

Population(s) Served

An overnight weekend camp for kids whose family has been touched by ALS for kids ages 8-17,
including Joe's Camp Family Day, Sunday, August 5th for workshops for parents and caregivers and kids.

Joe's Camp gives kids a chance to get away for some fun with others who are going through the same experiences.

Population(s) Served

Meet with families in their homes to help them prepare for living with ALS. Recommendations are made to make the home wheelchair accessible and the best equipment is recommended to help the person with ALS and their caregivers in dat to day activities. We help mitigate costs by identifying equipment that will meet the families needs. This prevents buying multiple pieces of equipment for the same problem. We also provide loaner equipment when available.

Population(s) Served

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of families who report they are supported in utilizing natural supports in their communities (e.g., family, friends, neighbors, churches, colleges, recreational services)

This metric is no longer tracked.
Totals By Year
Related Program

Home Care

Type of Metric

Context - describing the issue we work on

Direction of Success

Increasing

Context Notes

We facilitate communication to our clients friends, family, and community partners to help them communicate their needs to receive help from all possible resources.

Number of families who report that service and support staff/providers are available and capable of meeting family needs

This metric is no longer tracked.
Totals By Year
Related Program

Home Care

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

Our numbers reflect the year by year growth of the families we serve.

Number of people provided assistive technology

This metric is no longer tracked.
Totals By Year
Related Program

Home Care

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We help clients acquire assistive technology to aid in communication and loss of arm/hand strength.

Number of clients in residential care

This metric is no longer tracked.
Totals By Year
Related Program

Home Care

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of eligible clients who report having access to an adequate array of services and supports

This metric is no longer tracked.
Totals By Year
Related Program

Home Assessment

Type of Metric

Context - describing the issue we work on

Direction of Success

Increasing

Number of older adults being supported to live at home through home care, assistive technology, and/or personal support plans

This metric is no longer tracked.
Totals By Year
Related Program

Home Care

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We provide home care and home assessments therefore most people we serve live at home.

Number of youth who demonstrate that they have developed coping skills

This metric is no longer tracked.
Totals By Year
Related Program

Joe's Camp

Type of Metric

Context - describing the issue we work on

Direction of Success

Increasing

Context Notes

These numbers reflect our Joe's Camp program. We provide coping skills for kids who have a loved one with ALS.

Number of youth who demonstrate that they have developed a strong sense of self

This metric is no longer tracked.
Totals By Year
Related Program

Joe's Camp

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

Kids who attend Joe's Camp are encouraged by their peers who are also affected by having a loved one with ALS. They learn and develop their sense of self.

Number of youth who demonstrate that they are aware of their interests and abilities

This metric is no longer tracked.
Totals By Year
Related Program

Joe's Camp

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

All children at Joe's Camp have a loved one living with ALS.

Number of adults with a source of ongoing care

This metric is no longer tracked.
Totals By Year
Related Program

Home Care

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of adults with disabilities receiving sufficient social and emotional support

This metric is no longer tracked.
Totals By Year
Related Program

Home Care

Type of Metric

Context - describing the issue we work on

Direction of Success

Increasing

Context Notes

We help provide social and emotional support and reach out to their community for all possible resources.

Number of patient visits

This metric is no longer tracked.
Totals By Year
Related Program

Home Care

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

For home care we visit clients 2 times per week. We also provide wheelchair transportation, home assessments, loaner medical equipment, and other assistance that consist of patient/client visits.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

We hope to provide emotional and financial support through our services. We save families at least $5,000 per year by providing free home care. We help decrease stress by helping families understand that they can learn to be caregivers and by knowing we will be there when they have new questions and challenges as the disease progresses.

We educated families through caregiver workshops and training. This strategy provides comfort and decreases caregiver and PALS' stress. Fear is high of the unknown. Learning that they can do something to help their loved one and fight this disease is empowering. By providing free homecare services we are giving the tangible benefit of saving families several thousands of dollars.

Our caregivers all have ALS caregiving experience. They provide hands on homecare for free in PALS homes. Neil Cottrell has over 21 years of ALS caregiving experience and he does caregiving training, workshops, and support groups to assist these families. We have also recently added a camp to help kids who have a loved one with ALS.

We have helped over 500 families in the Charlotte area and thousands through our online resources (for example: caregiving tutorial videos). The thanks and gratitude of the families we have helped are overwhelming. Our staff has served as Pall bearers, given eulogies, and the foundation routinely receives donations from "in lieu of flowers" requests. This is due to the fact that our staff become very close to the families we serve. We help improve quality of life for PALS and their families. We hope to continue to assess and meet the needs of the ALS community through new programs like "Joe's Camp" and one day establish offices in more cities to reach more people.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Paper surveys, Focus groups or interviews (by phone or in person), Case management notes,

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve,

  • What significant change resulted from feedback?

    We learned that children of those with ALS need more support and resources. There wasn't any programs for children and they need to understand they are not alone and that there are other kids in similar situations. This led to the development of our Joe's Camp program. This camp helps with the aforementioned and provides coping skills for these children as they help their families through the many challenges of ALS.

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board, Our funders, Our community partners,

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, The people we serve tell us they find data collection burdensome,

Financials

The Joe Martin ALS Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

The Joe Martin ALS Foundation

Board of directors
as of 11/4/2019
SOURCE: Self-reported by organization
Board chair

Mrs. Amy Peacock

Chairperson

Term: 2016 -

Amy Peacock

Neal Martin

Cecy Ramirez

Ginny Mackin

Frank Deaton

Pat Martin

Sandra Bobbitt

Lori Henkel

Jenifer Yoxtheimer

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes