STAR LEGACY FOUNDATION

Because every pregnancy deserves a happy ending

Eden Prairie, MN   |  www.starlegacyfoundation.org

Mission

The Star Legacy Foundation mission is to increase awareness, support research, promote education, and encourage advocacy and family support regarding stillbirth and neonatal death.

Ruling year info

2009

Executive Director

Mrs. Lindsey J Wimmer RN, MSN, CPNP. CPLC

Main address

6438 City West Parkway Suite 100

Eden Prairie, MN 55344 USA

Show more contact info

EIN

26-0227601

NTEE code info

Fund Raising and/or Fund Distribution (G12)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2019, 2018 and 2017.
Register now

Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Every year, 25,000 babies are stillborn in the United States in the days and weeks before their anticipated births. For the majority of these families, a cause of death is never known. Families impacted by these tragic losses have increased rates of mental health concerns and family disruption. Research regarding prevention of stillbirth and related deaths including neonatal death and miscarriage has been lacking. The rate of stillbirth has remained unchanged for over 50 years. Star Legacy Foundation aims to reduce the rate of poor pregnancy outcomes by supporting research and promoting education regarding prevention efforts. Further, we strive to ensure every family receives optimal physical and emotional care when prevention isn't possible.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Stillbirth Summit

A 3-day event to encourage researchers, health providers, and families to share their emerging results and collaborate for future work.

Population(s) Served

Individuals who have first-hand experience with a variety of types of pregnancy losses and infant death are available to provide peer support to families experiencing a perinatal death.

Population(s) Served

Study designed to look comprehensively at what causes poor pregnancy outcomes, how to prevent them, and how to best support families when prevention isn't possible.

Population(s) Served

Star Legacy Foundation provides support groups to bereaved parents, bereaved grandparents & extended families, couples experiencing pregnancy after loss.

Population(s) Served

Free support line staffed by certified grief counselors with experience in pregnancy loss and infant death. Available to anyone impacted by a perinatal death including parents, grandparents, co-workers, health professionals, and friends.

Population(s) Served

Star Legacy Foundation provides low-cost continuing education workshops for health professionals who care for pregnant women and interact with families during/after a perinatal death.

Population(s) Served

Star Legacy Foundation provides a series of materials designed to help families learn about important aspects of encouraging healthy pregnancies and caring for the entire family if a loss occurs. Brochures are currently available in English and Spanish with additional languages coming soon. All materials are free to families or health facilities wanting to use them with their patients.

Population(s) Served

Where we work

Awards

Women of Worth 2020

L'Oreal Paris USA

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of health education trainings conducted

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Related Program

Health Professional Education

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of groups/individuals benefiting from tools/resources/education materials provided

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Related Program

Family Education Program

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of families served

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Related Program

Peer Support

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of research studies funded

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Related Program

Pregnancy Research Project

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of research studies conducted

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The long-term goal of the Star Legacy Foundation is to reduce the stillbirth rate in the United States by 20%. This will be accomplished by providing education to health professionals and expectant families, supporting research efforts aimed at prevention efforts, increasing awareness of stillbirth and supporting healthy pregnancies, and advocating for families throughout pregnancy and beyond.

Star Legacy Foundation goals are supported by programs and projects including holding the International Stillbirth Summit every other year, presenting numerous educational events to health professionals and the community, holding awareness events across the US and advocating for unborn babies. Additionally, we conduct research and sponsor ongoing studies.

Family Support is led by a peer support program, a support line staffed by certified grief counselors, and support groups facilitated by trained professionals. Groups include those for bereaved parents, pregnancy after a loss, parenting after a loss, and grieving grandparents/extended family members.

The Star Legacy Foundation is fortunate to have a community of hundreds of eager volunteers and individuals with business acumen that is vital to our success. Grieving families look forward to putting their grief to work in ways that will make a difference going forward.

Hosted 4 Stillbirth Summits
Supported more than 2.000 families through peer companions, support groups, and support line.
Sponsored and supported the STARS Study with publication of three researcher papers from the effort.
Fund and host the Pregnancy Research Project
Provided more than $150,000 in research grants
Twenty one family education documents created and made available to families free of charge. To date, more than 200,000 materials have been distributed throughout the United States.
24 current chapters from coast to coast with several more in development.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Focus groups or interviews (by phone or in person), Community meetings/Town halls, Suggestion box/email,

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve,

  • What significant change resulted from feedback?

    We added additional support group sessions when the participants noted that they were attended by so many people that it was hard for everyone to speak more than a few minutes. Feedback from our Diversity and Inclusion team inspired us to be more intentional and transparent about communicating the racial disparities that exist in stillbirth and neonatal death. We revised all of our education modules to have at least one learning objective specific to racial and economic disparity.

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board, Our funders, Our community partners,

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback,

Financials

STAR LEGACY FOUNDATION
lock

Unlock financial insights by subscribing to our monthly plan.

Subscribe

Unlock nonprofit financial insights that will help you make more informed decisions. Try our monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights?
Learn more about GuideStar Pro.

Operations

The people, governance practices, and partners that make the organization tick.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

STAR LEGACY FOUNDATION

Board of directors
as of 10/21/2020
SOURCE: Self-reported by organization
Board co-chair

Mr. Chris Duffy

Goff Public

Term: 2018 - 2019


Board co-chair

Mr. Dale Fuller

Allianz

Term: 2018 - 2019

Mindy Mueller

GE Healthcare

Jason Pratt

Wells Fargo

Shannon Renfro

Kids N Grief

Tyler Hughes

PepsiCo

Marian Sokol

Children's Bereavement Center of South Texas

Sarah Rodriguez

University of Minnesota Masonic Children's Hospital

Patty Sorensen

Kroll OnTrack

Amber Goodyear

Mary Kay

Barbara Toppin

Adefris & Toppin

Shauna Libsack

Star Legacy Foundation

Laura Richert

Pathway Health

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 10/21/2020

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability

Equity strategies

Last updated: 10/21/2020

Policies and practices developed in partnership with Equity in the Center, a project that works to shift mindsets, practices, and systems within the social sector to increase racial equity. Learn more

Data
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.