PLATINUM2023

STAR LEGACY FOUNDATION

Because every pregnancy deserves a happy ending

Eden Prairie, MN   |  www.starlegacyfoundation.org

Mission

The Star Legacy Foundation mission is to increase awareness, support research, promote education, and encourage advocacy and family support regarding stillbirth and neonatal death.

Ruling year info

2009

Executive Director

Mrs. Lindsey J Wimmer DNP, CPNP, PHN, CPLC

Main address

6400 Flying Cloud Drive Suite 225

Eden Prairie, MN 55344 USA

Show more contact info

EIN

26-0227601

NTEE code info

Fund Raising and/or Fund Distribution (G12)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Every year, 25,000 babies are stillborn in the United States in the days and weeks before their anticipated births. For the majority of these families, a cause of death is never known. Families impacted by these tragic losses have increased rates of mental health concerns and family disruption. Research regarding prevention of stillbirth and related deaths including neonatal death and miscarriage has been lacking. The rate of stillbirth has remained unchanged for over 50 years. Star Legacy Foundation aims to reduce the rate of poor pregnancy outcomes by supporting research and promoting education regarding prevention efforts. Further, we strive to ensure every family receives optimal physical and emotional care when prevention isn't possible.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Stillbirth Summit

A 3-day event to encourage researchers, health providers, and families to share their emerging results and collaborate for future work.

Population(s) Served
Adults

Individuals who have first-hand experience with a variety of types of pregnancy losses and infant death are available to provide peer support to families experiencing a perinatal death.

Population(s) Served
Adults

Study designed to look comprehensively at what causes poor pregnancy outcomes, how to prevent them, and how to best support families when prevention isn't possible.

Population(s) Served
Women and girls
Adults

Star Legacy Foundation provides support groups to bereaved parents, bereaved grandparents & extended families, couples experiencing pregnancy after loss.

Population(s) Served
Adults

Free support line staffed by certified grief counselors with experience in pregnancy loss and infant death. Available to anyone impacted by a perinatal death including parents, grandparents, co-workers, health professionals, and friends.

Population(s) Served
Adults

Star Legacy Foundation provides low-cost continuing education workshops for health professionals who care for pregnant women and interact with families during/after a perinatal death.

Population(s) Served
Adults

Star Legacy Foundation provides a series of materials designed to help families learn about important aspects of encouraging healthy pregnancies and caring for the entire family if a loss occurs. Brochures are currently available in English and Spanish with additional languages coming soon. All materials are free to families or health facilities wanting to use them with their patients.

Population(s) Served
Adults
Caregivers

Where we work

Awards

Women of Worth 2020

L'Oreal Paris USA

Videos

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of health education trainings conducted

This metric is no longer tracked.
Totals By Year
Related Program

Health Professional Education

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of groups/individuals benefiting from tools/resources/education materials provided

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Related Program

Family Education Program

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of families served

This metric is no longer tracked.
Totals By Year
Related Program

Peer Support

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of research studies funded

This metric is no longer tracked.
Totals By Year
Related Program

Pregnancy Research Project

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of research studies conducted

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The long-term goal of the Star Legacy Foundation is to reduce the stillbirth rate in the United States by 20%. This will be accomplished by providing education to health professionals and expectant families, supporting research efforts aimed at prevention efforts, increasing awareness of stillbirth and supporting healthy pregnancies, and advocating for families throughout pregnancy and beyond.

Star Legacy Foundation goals are supported by programs and projects including holding the International Stillbirth Summit every other year, presenting numerous educational events to health professionals and the community, holding awareness events across the US and advocating for unborn babies. Additionally, we conduct research and sponsor ongoing studies.

Family Support is led by a peer support program, a support line staffed by certified grief counselors, and support groups facilitated by trained professionals. Groups include those for bereaved parents, pregnancy after a loss, parenting after a loss, and grieving grandparents/extended family members.

The Star Legacy Foundation is fortunate to have a community of hundreds of eager volunteers and individuals with business acumen that is vital to our success. Grieving families look forward to putting their grief to work in ways that will make a difference going forward.

Hosted 5 Stillbirth Summits
Supported more than 2.000 families through peer companions, support groups, and support line.
Sponsored and supported the STARS Study with publication of three researcher papers from the effort.
Fund and host the Pregnancy Research Project
Provided more than $250,000 in research grants
Twenty one family education documents created and made available to families free of charge. To date, more than 500,000 materials have been distributed throughout the United States.
24 current chapters from coast to coast with several more in development.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

STAR LEGACY FOUNDATION
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Operations

The people, governance practices, and partners that make the organization tick.

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

STAR LEGACY FOUNDATION

Board of directors
as of 09/18/2023
SOURCE: Self-reported by organization
Board chair

Mrs. Andrea Lang

CUNA

Term: 2022 - 2023

Barbara Toppin

Adefris & Toppin

Steve Libsack

Retired

Dale Fuller

Allianz

Jared Ament

Neurosurgery & Spine Associates

Jacqueline Grant

Regional Perinatal Center

Jenny Bender

Real Chemistry

Shaylee Dave

Georgia University Healthcare

Jennifer Monsos

Self-employed

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 1/20/2023
info Candid has made improvements to the race and ethnicity options.

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 01/20/2023

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.