HEADSTRONG FOUNDATION

Improving lives affected by cancer

Holmes, PA   |  www.headstrong.org

Mission

The HEADstrong Foundation was founded by Nick Colleluori, who passed away from cancer at age 21. During his treatments, Nick took note of resources that were lacking for cancer patients and the families who are all affected. Resources such as lodging when traveling for treatment, financial help with medical bills and other challenges, and the need for understanding and support. Today Nick’s mother Cheryl heads the Foundation, and we direct resources whenever we can to families in need. It is our goal to keep Nick Colleluori’s memory alive by being as relentless in helping others as he was.

Ruling year info

2007

President

Cheryl Colleluori

Co Principal Officer

Michael Colleluori

Main address

232 Green St Cheryl A Colleluori

Holmes, PA 19043 USA

Show more contact info

EIN

26-0283021

NTEE code info

Cancer (G30)

Recreational, Pleasure, or Social Club (N50)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

A cancer diagnosis is not only a life-threatening event, but it also has a psychological impact on the patient and their family. The diagnosis is the start of a long journey that can and will impact physical health and mental well-being. The HEADstrong Foundation seeks to help patients lessen the financial and social impact of this journey. In short, the HEADstrong Foundation provides support so that families may live with dignity and normalcy while dealing with cancer treatment. The HEADstrong Foundation does this through its five programs—Nick’s House, HEAD2head, HEADtable, Financial Grants, and Awareness. The HEADstrong Foundation seeks to improve the lives of those affected by cancer.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Nicholas E. Colleluori Financial Grant

Nicholas E. Colleluori Financial Grant providing grants up to $1,000 to those affected by blood cancers and impacted by the financial strain of this disease.

Population(s) Served
People with diseases and illnesses
Families

Offering comfortable housing for out-of-town patients coming to Philadelphia metro area for specialized cancer treatment.

Population(s) Served
People with diseases and illnesses

Serving hope by preparing and servings meals and providing entertainment to inpatient blood cancer patients several times a year. HEAD Table™ acts as a volunteer opportunity for supporters who would like to make a difference.

Population(s) Served
People with diseases and illnesses

Provides peer-to-peer support connecting newly diagnosed patients with a network of cancer patients and survivors to provide mentoring and guidance. This platform reassures that no one fights alone and is extremely beneficial for a hero to talk to other hero’s who can relate.

Population(s) Served

We provide newly diagnosed patients, with information, blankets, gift cards for food, and other necessary items. These comfort kits are distributed to patients to help ease anxiety and comfort patients during the rigorous treatment process.

Population(s) Served
People with diseases and illnesses
Adults
Children and youth
People with diseases and illnesses
Adults
Children and youth

Where we work

Awards

Peter Kohn Service Award 2012

Fellowship for Christian Athletes

Outstanding Service Organization 2012

Taylor Community Foundation

Top Light the Night Fundraiser 2012

Leukemia & Lymphoma Society

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of list subscribers

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We have 90,000 individuals who are subscribed to our mailing list.

Number of meetings held with decision makers

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Holding steady

Context Notes

We hold quarterly meetings with our entire Board each year. Outside of these 4 meetings, we are in constant contact with all members of our foundation as needed.

Number of participants counseled

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Our volunteers, former cancer patients, go to the Hospital of the University of Pennsylvania. They offer advice, support, hope and care packages to patients currently undergoing treatment.

Number of clients served

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of volunteers

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Number of families served in cancer treatment

This metric is no longer tracked.
Totals By Year
Type of Metric

Other - describing something else

Direction of Success

Increasing

Context Notes

We had 50 families stay at Nick's House. In addition we offered 70 families impacted by cancer financial assistance.

Number of meal cards given to families while a child is staying in the hospital.

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

A cancer diagnosis can create anxiety, uncertainty, and disruption in the life of almost any individual. In fact, the National Cancer Institute has released both a patient and provider Physician Data Query (PDQ) “Adjustment to Cancer: Anxiety and Distress.” In the PDQ, it discusses the anxiety and distress caused by a cancer diagnosis. It includes discussions on the different levels of distress, up to and including post-traumatic stress disorder. A Cancer diagnosis is a very stressful event with significant psychosocial implications related to physical, emotional, spiritual, and interpersonal dimensions. A review of the 2010 National Health Interview Study completed by Kathryn Weaver, Wake Forest School of Medicine, et. al., has shown that cancer survivors are nearly twice as likely to report poor mental health as compared to adults without cancer. And literature on the efficacy of social interventions as part of oncology care shows it will improve quality of life, wellbeing, illness behavior and possibly survival (Grassi, Luigi & Spiegel, David & Riba, Michelle. (2017). Advancing psychosocial care in cancer patients.). Thus our peer-to-peer support programs—HEAD2head and HEADtable—work to provide social interventions that directly impact the patient’s wellbeing. By providing newly diagnosed cancer patients a connection to a network of cancer patients and survivors (HEADstrong Heroes), we are able to provide mentoring, guidance, and hope. Our HEADtable provides home-style food and the activities give the patients and families a few hours of entertainment, laughter, and camaraderie—a sense of normalcy and control—while dealing with the seriousness of cancer treatment.
However, the largest indicator of need comes from our own experiences: since our founding in 2007, the demand for our support services has risen by 50%. Additionally, we receive about 50 requests for financial assistance every month. Our goal is to be able to provide the housing, support, and financial assistance to cancer patients.

Nick’s House: Those of us who live in the Philadelphia region are fortunate to have access to some of the best cancer treatment hospitals in the country. Many travel hundreds and sometimes thousands of miles for treatment in Philadelphia. Cancer treatments, though, often exceed 50 days. Nick’s House provides lodging for cancer patients who live outside the Philadelphia region and are being treated by a facility in Philadelphia. Nick’s House offers the comfort of a healing environment without the financial burden of the cost of local lodging at a hotel.

HEAD2head: A cancer diagnosis is overwhelming, scary, and sometimes lonely. Through the HEAD2head program, newly diagnosed cancer patients are connected to a network of cancer patients and survivors (HEADstrong Heroes) to provide mentoring, guidance, and hope. Patients also receive a comfort kit filled with a variety of items selected to provide hope and, well, comfort. Not only does the HEAD2head program provide services to in-patient, but also to the more than 300 people/day who receive outpatient treatment.

HEADtable: Several times a year, the Foundation brings a family-like dinner table and recreational activities to patients in hospitals receiving cancer treatment. The food is home-style, and the activities give the patients and families a few hours of entertainment, laughter, and camaraderie—a sense of normalcy—while dealing with the seriousness of cancer treatment. We also host monthly events at Nick’s House.

Financial Grants: The cost of cancer is staggering and can be a financial burden for many families. The Foundation offers one-time grants of up to $2,000. These grants help recipients to pay for costs associated with medication, transportation to/from hospitals and doctor’s offices, food, and other basic needs. Money for this program is raised through team events, peer-to-peer fundraising, and survivors who want to give back.

Nick’s House provides temporary housing, free of charge, to families accessing treatment in the Philadelphia area. With two ADA-compliant locations—Holmes, and Swarthmore—we offer residents private bedrooms and bathrooms, use of kitchen space, leisure rooms, outdoor space, and laundry facilities. Patients must complete an application to stay at Nick’s House. Applicants are required to live outside a 50-mile radius of the Hospital of the University of Pennsylvania, Philadelphia. They must have a permanent home to return to after treatment. They must submit to a background check for security purposes.Nick’s House can accommodate up to 100 guests for up to 7 weeks.

HEAD2head is a year-round peer-to-peer counseling service that connects patients with volunteer survivors (HEADstrong Heroes). Volunteers undergo on-boarding to ensure that each volunteer understands the mission of the HEADstrong Foundation and the parameters of the peer-to-peer counseling. Each volunteer also submits to a background check to ensure the safety of residents and other volunteers.

Financial Grants are provided to patients to help offset the many costs of treatment. We provide up to 100 one-time grants ranging from $250 to $2,000. Grant requests are reviewed by staff before awards are made. Grant requests are accepted on a rolling basis.

Through the HEADstrong Foundation’s HEADtable, we host 4 in-hospital events annually; one in April, September, November, and December. These events provide a family-style meal and entertainment. We also host these events monthly at Nick’s House. Through this program we also provide over 500 comfort kits to newly diagnosed patients.

Finally, the Foundation uses its awareness program—the HEADstrong Lacrosse Clubs—to not only support the Foundation activities, but to develop student-athletes who have been exposed to a culture of service and sportsmanship. Serving about 500 student-athletes annually, the HEADstrong Lacrosse Club operates four regional clubs for students in grades 1 through 11.

What we have and hope to continue to accomplish:

Nick’s House: Provide, free of charge, housing to up to 100 patients for a maximum of seven week stay per patient.

HEADtable: Provide 4 in-hospital dinner/entertainment events and 12 Nick’s House events.

HEAD2head: Provide up to 520 comfort kits throughout the year.

HEAD2head: Provide up to 144 peer-to-peer visits.

Financial Assistance: Provide up to 100 grants.

Awareness: Provide access to HEADstrong Lacrosse Clubs to over 500 student-athletes annually.

Financials

HEADSTRONG FOUNDATION
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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HEADSTRONG FOUNDATION

Board of directors
as of 02/22/2022
SOURCE: Self-reported by organization
Board chair

David Calvaresi

Valsource

Term: 2016 - 2019

Cheryl Colleluori

HEADstrong Foundation

Michael Colleluori

HEADstrong Foundation

David Buckman

AlliedBarton

Harry Dingler

SRA

Sam Adolph

M & T Bank

Mark Diamond

Ernst Young, Global Client Executive

Stephan Pahides

McCausland, Keen and Buckman

David Regn

Stream Companies

Jessica Kyle

Self employed

Richard Moses

Self employed

Joseph Clifford

Catalent Pharma

David Calvaresi

Valsource, LLC

Steve Finley

Finley Catering

Nick Sakiewicz

National Lacrosse League

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 1/25/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female
Sexual orientation
Heterosexual or Straight
Disability status
Decline to state

The organization's co-leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male
Sexual orientation
Heterosexual or Straight
Disability status
Decline to state

Race & ethnicity

Gender identity

 

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 01/25/2021

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.