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PROMIS Health Organization (PHO)

Using patient-reported outcomes to improve health care

aka PHO   |   River Forest, IL   |  https://www.promishealth.org

Mission

The PHO mission is to improve health outcomes by developing, maintaining, improving, and encouraging the application of the Patient Reported Outcomes Measurement Information System® in research and clinical practice.

Ruling year info

2010

President

Dr. David Cella PhD

Main address

PO Box 6092

River Forest, IL 60305 USA

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EIN

26-0413550

NTEE code info

Professional Societies & Associations (E03)

Professional Societies, Associations (H03)

Professional Societies & Associations (E03)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Annual PROMIS International Conference

The PHO's Annual PROMIS International Conference provides a venue for education and networking for researchers, clinicians and hospital administrators from around the globe to learn and share how PROMIS health measures are used to incorporate the patient’s voice in evaluating and improving health outcomes.

Population(s) Served
Adults

The PHO's PROMIS Training Workshop is an annual two-day educational program that covers the basics and advanced use of the PROMIS family of measures -- what they are, the value of using PROMIS in clinical practice and research, getting started, gaining buy-in, building your team, implementing PROMIS into clinical and research workflows, the importance of data, and using the scores with colleagues and patients.

Population(s) Served
Adults
Adults

Where we work

Our Sustainable Development Goals

SOURCE: Self-reported by organization

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Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

1. Advance the Science of Health Outcomes Assessment
The PHO will foster and support a community of researchers, collect PRO data for research and improvements to PROMIS®, support the addition of new domains and items to the system, test the system for new populations, and maintain scientific integrity by demonstrating reliability, validity and responsiveness.

2. Disseminate Standardized and Validated Health Outcomes Questionnaires
The PHO will encourage widespread PROMIS adoption by maintaining open access to all interested parties for item banks, software, and findings from research. We will provide reliable, valid, and cost-effective measurement of relevant health outcomes to the greater scientific and clinical research community and to other health care organizations.

3. Foster Development of New Patient-Reported Health Outcomes for Diverse Populations
The PHO will establish a broad inventory of methods for capturing PRO data from diverse population groups. These methods will include administering both static short forms and dynamic CAT through various secured delivery platforms; these will allow for different modes of administration while reducing mode effects to maintain reliability. This goal includes developing translations.

4. Educate the Scientific and Clinical Communities on the Science of Patient-Reported Outcomes
The PHO will communicate the value of PROMIS to the scientific and research community, emphasizing the performance of PROMIS instruments in terms of reliability, validity, and responsiveness compared with legacy instruments. We will increase clinical adoption by organizing and presenting PRO data that are relevant and useful to clinicians, patients, and researchers. Finally, we will contribute to re-engineering the clinical research enterprise by creating useful endpoints for clinical trials and research studies.

Financials

PROMIS Health Organization (PHO)
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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PROMIS Health Organization (PHO)

Board of directors
as of 05/19/2023
SOURCE: Self-reported by organization
Board co-chair

Dr. Judith Baumhauer

University of Rochester

Term: 2021 - 2022


Board co-chair

Dr. David Cella

Northwestern University

Term: 2021 - 2022

David Cella

Northwestern University

Sara Ahmad

McGill University

Richard Gershon

Northwestern University

Lisa Shulman

University of Maryland

James Witter (ex-officio)

retired

Judith Baumhauer

University of Rochester

Janel Hanmer

University of Pittsburgh

Susan Bartlett

McGill University

Ashley Wilder Smith (ex-officio)

NIH/NCI

Caroline Terwee

Amsterdam University Medical Centers

John Chaplin

University of Gothenburg