PROMIS Health Organization (PHO)
Using patient-reported outcomes to improve health care
Programs and results
What we aim to solve
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Annual PROMIS International Conference
The PHO's Annual PROMIS International Conference provides a venue for education and networking for researchers, clinicians and hospital administrators from around the globe to learn and share how PROMIS health measures are used to incorporate the patient’s voice in evaluating and improving health outcomes.
PROMIS Training Workshop
The PHO's PROMIS Training Workshop is an annual two-day educational program that covers the basics and advanced use of the PROMIS family of measures -- what they are, the value of using PROMIS in clinical practice and research, getting started, gaining buy-in, building your team, implementing PROMIS into clinical and research workflows, the importance of data, and using the scores with colleagues and patients.
Where we work
External reviews

Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
1. Advance the Science of Health Outcomes Assessment
The PHO will foster and support a community of researchers, collect PRO data for research and improvements to PROMIS®, support the addition of new domains and items to the system, test the system for new populations, and maintain scientific integrity by demonstrating reliability, validity and responsiveness.
2. Disseminate Standardized and Validated Health Outcomes Questionnaires
The PHO will encourage widespread PROMIS adoption by maintaining open access to all interested parties for item banks, software, and findings from research. We will provide reliable, valid, and cost-effective measurement of relevant health outcomes to the greater scientific and clinical research community and to other health care organizations.
3. Foster Development of New Patient-Reported Health Outcomes for Diverse Populations
The PHO will establish a broad inventory of methods for capturing PRO data from diverse population groups. These methods will include administering both static short forms and dynamic CAT through various secured delivery platforms; these will allow for different modes of administration while reducing mode effects to maintain reliability. This goal includes developing translations.
4. Educate the Scientific and Clinical Communities on the Science of Patient-Reported Outcomes
The PHO will communicate the value of PROMIS to the scientific and research community, emphasizing the performance of PROMIS instruments in terms of reliability, validity, and responsiveness compared with legacy instruments. We will increase clinical adoption by organizing and presenting PRO data that are relevant and useful to clinicians, patients, and researchers. Finally, we will contribute to re-engineering the clinical research enterprise by creating useful endpoints for clinical trials and research studies.
What are the organization's key strategies for making this happen?
What are the organization's capabilities for doing this?
What have they accomplished so far and what's next?
Financials
Unlock nonprofit financial insights that will help you make more informed decisions. Try our monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights?
Learn more
about GuideStar Pro.
Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
PROMIS Health Organization (PHO)
Board of directorsas of 05/19/2023
Dr. Judith Baumhauer
University of Rochester
Term: 2021 - 2022
Dr. David Cella
Northwestern University
Term: 2021 - 2022
David Cella
Northwestern University
Sara Ahmad
McGill University
Richard Gershon
Northwestern University
Lisa Shulman
University of Maryland
James Witter (ex-officio)
retired
Judith Baumhauer
University of Rochester
Janel Hanmer
University of Pittsburgh
Susan Bartlett
McGill University
Ashley Wilder Smith (ex-officio)
NIH/NCI
Caroline Terwee
Amsterdam University Medical Centers
John Chaplin
University of Gothenburg