GOLD2024

Oklahoma Family Center for Autism

#ConnectTheSpectrum

aka AutismOklahoma.org   |   Edmond, OK   |  http://autismoklahoma.org

Mission

Investing together to grow, learn, and serve the families of Oklahoma impacted by autism. Creating opportunities for those on the autism spectrum to find community connections and live meaningful, joyful lives.

Ruling year info

2007

Principal Officer

Melinda Lauffenburger

Main address

PO Box 7747

Edmond, OK 73083 USA

Show more contact info

EIN

26-0807671

NTEE code info

Alliance/Advocacy Organizations (P01)

Autism (G84)

Patient Services - Entertainment, Recreation (E86)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

The impacts of autism run deep and they trickle down through the entire family. The CDC estimates that one in 44 children are diagnosed with autism, and 40% are non-speaking. Nearly two-thirds of children with autism between the ages of 6 and 15 have been bullied. Nearly 28 percent of 8-year-olds with autism have self-injurious behaviors. Head banging, arm biting and skin scratching are among the most common. Families are often excluded because of behavioral challenges and lack of understanding of those behaviors by others. Nearly 50% of 25-year-olds with autism have never held a paying job, despite having the skill sets and expertise to excel in the workplace. 50-75% of the 5.6 million autistic adults in the U.S. are unemployed or underemployed. Suicide is a leading cause of premature death for autistic individuals. Autistic people are six times more likely to attempt death by suicide – and up to seven times more likely to die by suicide – compared to those who are not autistic.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

How We Support Individuals

We help people with autism connect through their passions and reach potentials. We provide connection opportunities to help discover and recognize talents. We also have programs to expand friendships through meet-ups, social activities and personal growth programs.

We believe in the power of INTERESTS!

Population(s) Served
People with disabilities
Families

We create connections for families
Connections promote resource sharing, problem solving and produce outcomes of hope and optimism about the future. Families can find each other through community-based FaceBook groups, or by attending Canadian Valley or Tulsa in-person groups.

Families can also try new things through safe and supportive free family events.

Since safety is a big issue for many families, our life-saving safety programs help families protect their loved ones for peace of mind.

Population(s) Served
Adults
Parents
Families

We help Oklahoma communities learn to Think Differently by bringing them together to join our mission for quality of life for life.

We align with restaurants, movie theaters, recreational event centers, church partners, and more, who enable participants to access and enjoy community services while being who they are. The annual PieceWalk is Oklahoma’s largest annual autism outreach event. We help and support businesses, civic partners, and potential employers to understand autism, embrace differences, and become part of the solution.

Population(s) Served
Adults
Adolescents
Children
Preteens

Where we work

Awards

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of clients served

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

This is a best estimate of unduplicated participation, but 85-90% of this number is based on accurate counts. Some large events to not require registration so exact numbers are difficult to come by.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Meaningful connections with others and quality of life are the goals for all individuals with autism, and our goal is to create opportunities for them.

Through a holistic approach, we create opportunities for families, children, teens and adults to have more happiness, joy and a higher quality of life, for life.

AutismOklahoma was founded by parents in Oklahoma to improve quality of life and create opportunities for our loved ones with autism. We strive to encourage parents, providers and the community to think about how they might also create a unique opportunity for someone with autism.

We measure our program effectiveness based on outcome measures for individuals, families and the community.  Individuals:
Help individuals to discover and recognize their talents
Individuals will be encouraged to expand their personal engagement path
Individuals will be engaged and empowered for personal growth 
Families:
Families are proud, show pride for their family members
Families are optimistic about their future
Families show confidence in problem solving
Families show peace of mind
Families try new things
Families have hope 
Communities:
Help communities understand, embrace differences, and become part of the solution

Since 2002, AutismOklahoma.org has provided support, education, opportunity, outreach, inspiration, and more to thousands upon thousands of autistic children, teens, adults and their families. We remain dedicated to providing our programs free or nearly free as we have for 20 years.

Our small staff of just four all have autistic children. We live it and we know what works to build success upon success. We have a proved model that Interest + Opportunity = Magic. We create and design programs based on the often narrow interests of our participants, and that is is where the magic happens.

Our programs and events provide a platform for connections in safe and nonthreatening ways. We have families who drive over 100 miles so their child can participate. Our participants are becoming leaders, many now independently joining and connecting with others with a shared interest.

We have been with many families for 20 years and have watched as their child eats a new food, gets their driver's license, gets married, gets a job, raises their hand, makes it through the entire school day, hugs a friend. The unique nuances of autism make it hard to assign specific milestones of progress, and we believe strongly in the uniqueness of each individual and what they have to offer the world We help them catch their dreams and open doors to reveal their talents.

We believe that our participants can best describe our progress and our impact on their lives:

"Honestly, I'm surprised our kids actually asked me about the Santa hats! They normally don't want to wear anything like that. This makes my heart happy when they feel free to be themselves and not feel they have to hide their quirks, stimming, and other things considered "abnormal behaviors" by other "normal" people. I can't express how grateful we are for this group!!"

"The AutismOklahoma programs allow my son to meet new friends, true friends not just people who tolerate him and his interests. Events offer him a safe place to be himself and not worry about what other people think of his challenges. I love these events because I don't have to worry about judgements being made about my parenting, everyone here is pretty much in the same boat."

"The mere opportunity and ability for persons on the spectrum to freely express emotions through mediums that enhance social skills, talents, confidence, and enjoyability in an environment such as AutismOklahoma and their programs are undeniably important. The communication barrier that many people fear are torn down by these programs. Our family is blessed to participate."

" I found other parents going through the same struggles and celebrations that I was. I gained knowledge, understanding, and most of all acceptance. Simply knowing that I wasn't alone in our journey and that my issues had been experienced by so many others gave me the strength to pull myself up by the bootstraps and become a better mom for my daughter. Not only has AutismOklahoma given me confidence in myself, it has given my daughter a circle of friends who accept her just as she is. I truly can't thank everyone involved enough for the incredible impact you've had on our lives!"

Financials

Oklahoma Family Center for Autism
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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Oklahoma Family Center for Autism

Board of directors
as of 05/28/2024
SOURCE: Self-reported by organization
Board chair

Mike Panas

Feed the Children

Term: 2022 - 2025

Melinda Lauffenburger

AutismOklahoma

John Cooper

Community Volunteer

Dr. Beth DeGrace

Crossings Community Church

Dusty Burchfield

Burchfield Commercial Real Estate

John Davis

Life.Church

Dale Spoonemore

From Seed To Spoon

Max Harned

Philanthropist

Mike Panas

Feed the Children

Michelle Cross

Self-Advocate

Karen Wicker

CEO, Candor PR

Sarah Mason Teague

Riata Center for Innovation & Entrepreneurship at OSU

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 5/28/2024

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
Decline to state
Gender identity
Female
Sexual orientation
Decline to state
Disability status
Decline to state

Race & ethnicity

No data

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 05/28/2024

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
Policies and processes
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.