Mission
The mission of the New Jersey Rett Syndrome Association is to contribute towards an improved quality of life for girls and women affected by Rett syndrome. We beleive that by raising awareness, we can foster public attitudes conducive to early intervention, treatment, support and research of Rett syndrome.
Ruling year
2008
Executive Director
Leslie Greenfield
Treasurer
Mrs. Robin Diamond
Main address
PO Box 354
Adelphia, NJ 07710 USA
EIN
26-1359425
Cause area (NTEE code)
Single Organization Support (G11)
Alliance/Advocacy Organizations (G01)
IRS filing requirement
This organization is required to file an IRS Form 990 or 990-EZ.
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Communication
Programs and results
What we aim to solve
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Rett Syndrome Family support
The Program for Research & Support for Rett Syndrome at Monmouth University, West Long Branch, NJ
Where we work
External reviews
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
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NEW JERSEY RETT SYNDROME ASSOCIATION
Board of directorsas of 3/11/2019
Kapila Seshadri
Rutgers Robert Wood Johndson Medical School
Robin Diamond
no affiliation
Stephen Medlin
no affiliation
Carl Raso
no affiliation
Carla Benetatos
Gerard Saydah
Keywords
Rett syndrome
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