Disease, Disorders, Medical Disciplines

NEW JERSEY RETT SYNDROME ASSOCIATION

Adelphia, NJ   |  www.njrsa.org

Mission

The mission of the New Jersey Rett Syndrome Association is to contribute towards an improved quality of life for girls and women affected by Rett syndrome. We beleive that by raising awareness, we can foster public attitudes conducive to early intervention, treatment, support and research of Rett syndrome.

Ruling year info

2008

Executive Director

Leslie Greenfield

Treasurer

Mrs. Robin Diamond

Main address

PO Box 354

Adelphia, NJ 07710 USA

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EIN

26-1359425

Cause area (NTEE code) info

Single Organization Support (G11)

Alliance/Advocacy Organizations (G01)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Rett Syndrome Family support

The Program for Research & Support for Rett Syndrome at Monmouth University, West Long Branch, NJ

Population(s) Served
General/Unspecified
Budget
$0

Where we work

Financials

NEW JERSEY RETT SYNDROME ASSOCIATION
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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NEW JERSEY RETT SYNDROME ASSOCIATION

Board of directors
as of 3/11/2019
SOURCE: Self-reported by organization
Board chair

Kapila Seshadri

Rutgers Robert Wood Johndson Medical School

Robin Diamond

no affiliation

Stephen Medlin

no affiliation

Carl Raso

no affiliation

Carla Benetatos

Gerard Saydah

Keywords

Rett syndrome