PLATINUM2023

Lung Cancer Initiative

A Network of Hope and Action

aka Lung Cancer Initiative of NC   |   Raleigh, NC   |  http://www.lungcancerinitiativenc.org

Mission

Our mission is to save lives and provide support to those affected by lung cancer through research, awareness, education and access programs across North Carolina. Our Vision is to improve life for everyone affected by lung cancer.

Ruling year info

2014

Chief Executive Officer

Mrs. Paige Humble

Main address

5171 Glenwood Avenue Suite 401

Raleigh, NC 27612 USA

Show more contact info

Formerly known as

North Carolina Lung Cancer Partnership

EIN

26-2300885

NTEE code info

Cancer (G30)

Lung (G45)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

As the state's leading non-profit organization supporting lung cancer research and education, Lung Cancer Initiative specializes in connecting patients, survivors and loved ones with the medical and research community. Our mission is to advance survivorship and provide support to those affected by lung cancer through research, education and access programs. Lung cancer takes more lives annually than breast, prostate and colorectal cancers combined yet it remains the least funded of all cancers.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Program Overview

Somewhere at the intersection of science and statistics are the stories of real human beings who are affected by lung cancer. As the state's leading non-profit organization supporting lung cancer research and education, Lung Cancer Initiative specializes in connecting patients, survivors and loved ones with the medical and research community. Our goal is to fuel medical discovery, increase survival and provide a network for hope and action for those affected. We are proud of our record of responsibility with the funds we raise, and we pledge to maintain that standard while increasing advocacy across our state. Together, there's always something we can do.

Population(s) Served
Adults

The goal of the Lung Cancer Initiative's Research Fellows program is to further the development of local lung cancer care and research programs across the state of North Carolina. By funding research activities of fellows and young investigators with a $25,000 grant annually at each of the five major medical institutions in NC, we will help to jump start their careers and encourage their continuing involvement in the field of lung cancer. LCI additionally funds a $150,000 Career Development Award to support and provide research funding to emerging research leaders who have received their initial faculty appointment and will continue their career in the field of lung cancer. In 2018, LCI additionally launched the Vicky Amidon Innovation in Lung Cancer Research Award to support researchers and collaborations aimed toward developing innovative lung cancer projects that will improve the lives of those at risk of or with lung cancer in North Carolina.

Population(s) Served
Adults

The Lung Cancer Initiative is committed to increasing access to screening, treatment and clinical trials. The organization’s Access Grant Program is intended to support local medical centers, community organizations or medical practices with a $10,000 access grant to help increase access to lung cancer education, screening, comprehensive biomarker testing, treatment, clinical research or survivorship programs.

Population(s) Served
Adults

The Lung Cancer Initiative Access to Care gas card program provides assistance to lung cancer patients while seeking treatment including to clinical trials. The goal of the program is to lessen the financial burden for patients to receive appropriate lung cancer treatment by providing gas cards. To be eligible for a gas card, the applicant must be a resident of North Carolina and currently undergoing treatment for lung cancer. An application must be completed and signed by both the applicant and the healthcare facility.

Population(s) Served
Adults

This program spreads awareness through attending health fairs and increases wellness through free lung cancer educational sessions to businesses and civic groups. Advocates are able to volunteer for these opportunities as a way to give back in their local community and help the lung cancer cause.

Population(s) Served
Adults

Together with our partners at our state’s cancer centers, our community education programs allow for patients and their families to come together to hear from experts on topics related to lung cancer, lung cancer research, and topics of interest to lung cancer patients. Recent topics have included lung cancer in women, updates from ASCO for patients, advanced care planning, caregiving, clinical trials and integrative medicine. Sessions are designed to empower individuals and arm them with the resources they need to be a better advocate for their own health and for lung cancer in North Carolina and beyond.

Population(s) Served
Adults

We provide educational opportunities for health care professionals throughout North Carolina in order to improve diagnosis, referral and treatment. Annual educational events focus on educating primary care physicians on lung cancer screening and community oncologists through an online educational symposium.

Population(s) Served
Adults

The daylong summit includes teaching workshops, interactive sessions, networking, and small group discussions. Topics addressed include understanding the basics of lung cancer, comprehensive biomarker testing, organizing fundraising and awareness raising events, and raising lung cancer awareness throughout North Carolina and beyond. The goal of this program is to provide training and guidance to lung cancer advocates so they can be confident and effective advocates for lung cancer research, education and access programs.

Population(s) Served
Adults

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Total number of grants awarded

This metric is no longer tracked.
Totals By Year
Population(s) Served

Researchers

Related Program

Research Grant Program

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

LCI gives research grants including fellowships, a career development grant and an innovation in lung cancer award in addition to community grants supporting access to care.

Number of gas cards distributed annually to provide access to appropriate care and treatment.

This metric is no longer tracked.
Totals By Year
Population(s) Served

Chronically ill people

Related Program

Access to Care Gas Card Program

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Lung Cancer Initiative is the state's leading non-profit organization dedicated to lung cancer research and education. LCI specializes in connecting patients, survivors, and loved ones with the medical and research community. Our goal is to fuel medical discovery, increase survival and provide a network for hope and action for those affected. Working together with family members and lung cancer survivors who have experienced this disease first-hand, we can change the status quo for this disease to make it something people can live with rather than die from.

Lung Cancer Initiative is dedicated to raising public awareness of the disease; providing education about lung cancer to the public, patients and medical community; ensuring access to treatment and care; and generating funding for research.

Lung cancer patients have often felt alone with their diagnoses because lung cancer is still terribly stigmatized. Being involved in an organization that is working specifically to help them allows patients to regain a sense of empowerment and gives them hope for the future. Importantly, having a regional organization allows on-going networking and support for advocates and patients. Our commitment to advancing research in lung cancer also gives patients and their family members hope that the outlook for this disease can change.

Research

Since 2008, LCI has funded more than $3 million in lung cancer research. This support has jump-started the careers of researchers who have gone on to receive continued funding for their work from the National Institute of Health, Department of Defense, and the American Cancer Society. Education: LCI is committed to increasing public awareness about lung cancer. We do so through our events, education and outreach initiatives, as well as other grassroots opportunities. Our goal is to let everyone affected by lung cancer know that there is HOPE. Community Education Series: Through partnerships with North Carolina's leading cancer centers, this series allows for patients and their families to come together to hear from experts on topics related to lung cancer and research. Past topics include: Updates in Lung Cancer Research, Multidisciplinary Care, Clinical Trials, Coping with COVID-19, Financial Hurdles for Lung Cancer Patients, Caregiving and Lung Cancer 101.
Physician Education: We provide educational opportunities for health care professionals throughout North Carolina in order to improve diagnosis, referral and treatment. In 2022, LCI attended the North Carolina Academy of Family Physicians' annual conference and sponsored both a keynote and breakout session on lung cancer screening.
Materials Distribution: LCI has distributed free print and online materials to patients and physician offices, which provide vital information to help patients and their families better understand their diagnosis of lung cancer and how to find help and receive the best care available on their lung cancer journey.
Access: Through our Patient Access to Care Gas Card Program, LCI provides assistance to lung cancer patients while seeking treatment including clinical trials. The goal of the program is to lessen the financial burden for patients to receive appropriate lung cancer treatment by providing gas cards. In 2023, our goal is to distribute 500 gas cards across North Carolina.
Survivorship: LCI's Survivor Steering Committee assists by providing input and guidance into the development of LCI's programming. In addition, a virtual lung cancer survivor luncheon series meets monthly and connects survivors from across the region for social interaction and education on topics including mindfulness, nutrition and exercise. In 2020 and in response to the COVID-19 pandemic, LCI additionally established the Patient Emergency Fund to provide financial support to help patients meet their basic needs. The program continues, and in 2022, LCI distributed $200 stipends to 105 patients.

We have clear goals developed through our strategic plan with the infrastructure and staffing to achieve these goals. Through the leadership on our Board of Directors, scientific advisory committee, strong community advocates, supportive donors and industry partners, and a network of survivors and volunteers across the state, we are able to carry out our mission in myriad ways across North Carolina.

Since 2008, LCI has funded more than $3 million toward lung cancer research. We have educated thousands of individuals across the state and continue to expand into new communities to provide important education and support. Since 2016, we have collectively awarded $115,000 to 11 community partners to support their efforts to enhance access to lung cancer education, screening and treatment in their own communities. In 2022, LCI supported access to appropriate care and treatment for 410 patients in 79 counties across NC through the gas card program. While there has been progress, there is always much to be done for the lung cancer community.

LCI continues to evolve our programs, including the addition of a survivor mentorship program in 2022. We continue to work closely with our Survivor Steering Committee and others across our network to learn how we can continue expand our services to reach more patients in communities of most need.

Our organization has a clear strategic plan and is working to ensure we are continuing to grow our reach and impact across the state.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We share the feedback we received with the people we serve, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

Lung Cancer Initiative
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Lung Cancer Initiative

Board of directors
as of 10/31/2023
SOURCE: Self-reported by organization
Board co-chair

Dr. Jennifer Garst

Duke Cancer Institute at Duke Raleigh Cancer Center


Board co-chair

Amy Cipau

Amy Cipau

Founder and President, Lung Cancer Initiative

Jennifer Garst

Duke University

Jason Akulian

UNC Lineberger Comprehensive Cancer Center

Emily Parks

Advocate

Kathryn Mileham

Levine Cancer Institute, Atrium Health

Michael Sulick

Advocate

Chris Rallis

Pappas Capital

Jim Sheegog

Rowhill Consulting

Liz Hynson

Advocate

Justin Brian Nicholson

Survivor

Hiren Mehta

UNC Rex Pulmonary Specialists

Neal Ready

Duke Cancer Institute

Aundrea Oliver

ECU Heart Institute

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 1/28/2021

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

 

Sexual orientation

No data

Disability

No data