Neuro Challenge Foundation Inc
A Better Approach to Parkinson's
Mission
Neuro Challenge Foundation for Parkinson's, Inc is a non-profit organization dedicated to improving the quality of life of people with Parkinson's and their caregivers, today.
Ruling year
2009
CEO
Dr. Sara Grivetti
Main address
722 Apex Road, Suite A
Sarasota, FL 34240 USA
EIN
26-2311656
NTEE code
Human Service Organizations (P20)
Patient Services - Entertainment, Recreation (E86)
Adult, Continuing Education (B60)
IRS filing requirement
This organization is required to file an IRS Form 990 or 990-EZ.
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Communication
Programs and results
What we aim to solve
All people with Parkinson’s and their caregivers develop A Better Approach to Parkinson's - they are empowered members of an inclusive, caring and supportive community and receive education, therapeutic and support with individualized care advising and resource referrals to Live Well with Parkinson's Disease - today.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Recurring Monthly Support, Therapeutic and Education Programs
Neuro Challenge Foundation provides over 45 monthly support, therapeutic and education programs for people with Parkinson's disease, their Care Partners and families throughout Pinellas, Manatee, Sarasota, Charlotte, Highlands and Marion counties by partnering with qualified community professionals and service agencies. NCF educates and supports people with PD and their families so they may experience an improved quality of life while increasing opportunities for socialization with others facing the challenges of Parkinson's disease. Program offerings include: Care Partner, Women with PD, and Parkinson's Power Hour support groups; Voice, Yoga, Art, and Dance therapeutic groups; PD Education Forum, PD Wellness Club, and Special Speaker Event education groups. All Neuro Challenge programs are offered at no cost.
Care Advising
The Neuro Challenge Care Advisor program is a unique service offered to people with Parkinson's disease, their Care Partners and families at no charge. Currently Neuro Challenge employs three Care Advisors that offer guidance, support and education in Pinellas, Manatee, Sarasota and Charlotte counties. The Care Advisor is well-informed about community resources for Parkinson's disease in the areas where people live. Care Advisors often meet with professional community partners to help implement new Parkinson's services such as cycling, boxing, dancing and yoga. It is the Care Advisor's role to be an ongoing source of information and support for people with Parkinson's and their families throughout the entire trajectory of the disease. The Care Advisor is able to make community resource referrals based upon what physicians recommend for their Parkinson's patients. The Care Advisor will help people with Parkinson's find local resources for medical care, physical therapy, exercise, financial support, counseling and long-term care. The Care Advisor also serves as a resource for Care Partners and helps them find avenues of support that are specific to their needs.
The Parkinson's Expo
The Parkinson's EXPO is an annual, day-long event designed to empower, engage and educate the Parkinson's community. The largest of its kind in Florida and one of the largest in the country, the inaugural 2018 Parkinson's EXPO attracted 1400 participants from 23 counties in Florida and 17 states. The Parkinson's EXPO featured nine national thought leaders who deliver the most current information and strategies for living optimally with Parkinson's disease. In addition, sponsors provide interactive opportunities featuring local Parkinson's services such as boxing, cycling, rehabilitation, veterans services and pharmaceutical therapies. Agencies, professionals and partners who serve the Parkinson's community come together to participate in this day of education and collaboration. In 2019, the EXPO will take place at the Bradenton Area Convention Center and offer CME and CEU credits to physicians and allied health care professionals.
Distinguished Speakers Series
The Distinguished Speakers Series provides the Parkinson's community with current information from local Parkinson's medical experts in communities throughout southwest Florida. These large-scale education events attract 100-150 participants from the community being served and are conducted five times each year. Topics have included living well with Parkinson's disease, understanding the non-motor aspects of Parkinson's disease , the effect of Parkinson's disease on vision, and supporting the Care Partner. Neuro Challenge Foundation has conducted Distinguished Speakers Series events in Manatee, Charlotte, Pinellas, Marion and Highlands counties.
Annual Parkinson's Symposium
The Neuro Challenge Foundation Annual Parkinson's Symposium conducted in partnership with Sarasota Memorial Health Care System is one of the largest Parkinson's events held yearly in southwest Florida. Since it's inception, the Parkinson's Symposium has drawn maximum capacity attendance at 550 participants and takes place at the Sarasota Memorial Heath Care Center at Clark Road in the HealthFit Fitness Center. National and local experts in Parkinson's disease and Movement Disorders from universities and clinical institutes educate the professional community as well as people with PD and their Care Partners. In addition, a rehabilitative Parkinson's therapy such as voice or physical therapy is featured at intermission and encourages audience participation.
Virtual Programs
Neuro Challenge Virtual Programs are designed to support, provide connection, educate, and empower people with Parkinson's, their Care Partners and the medical community no matter where you are located. All programs and services are offered at no charge to the Parkinson's community, thanks to the generous support of Neuro Challenge's partners, sponsors and donors
Where we work
Awards
Affiliations & memberships
AFP (Association of Fundraising Professionals) 2016
Manatee Chamber of Commerce 2016
Greater Sarasota Chamber of Commerce 2008
Lakewood Ranch Business Alliance 2016
Charitable Gift Planners Association of SWFL 2017
Venice Area Chamber of Commerce 2017
External reviews
Photos
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of adults over age 65 with a source of ongoing care
This metric is no longer tracked.Totals By Year
Population(s) Served
Health, Age groups
Related Program
Recurring Monthly Support, Therapeutic and Education Programs
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
To improve the quality of life of people with Parkinson's disease and their caregivers today.
1. GREATER MISSION IMPACT: Increase access while maintaining exceptional quality and impactful programs and services
2. NEURO CHALLENGE NETWORK SOCIAL ENTERPRISE: Educate Healthcare professionals and support effective diagnosis and treatment of Parkinson's disease
3. OPERATIONAL AND FINANCIAL CAPABILITIES: Improve long -term financial health and sustainability
4. OPERATIONAL AND FINANCIAL CAPABILITIES: Embrace and cultivate a culture of philanthropy
5. OPERATIONAL AND FINANCIAL CAPABILITIES: Strengthen organizational infrastructure and operations
What are the organization's key strategies for making this happen?
Create continuous quality improvement and expand program offerings and outreach. Build awareness and outreach in the communities we serve; expand continuum of programs and services for all stages of Parkinson's; refine program development and outcomes measurement plan and commit to evaluation and continuous quality improvement plans.
Build new and strengthen existing partnerships. In support of this strategic imperative we will a) strategically expand services into key geographic areas based on established criteria and following a service expansion plan; and b) leverage reliable and emerging technologies to support greater access to programs and services.
Increase the number of clients served. Create and steward partnerships that support program expansion, mission, impact, brand exposure and financial stability; and leverage relationships that strengthen our advocacy voice.
Provide education and training products for the healthcare community. Implement the business plan developed through the margin and Mission Ignition process; collaborate with Parkinson's disease experts to develop the most up-to-date and high-quality content for our products; and continually evaluate and revise content to ensure the relevance and accuracy of our products.
Generate income to make the business self-sustaining and eventually a sustainable income source. Convert current healthcare provider partners into clients of the business; and develop new partnerships with healthcare providers regionally and nationally
Adopt strong financial management practices. Develop directional, multi-year financial plans; monitor financial performance against goals; develop financial dashboards to support the Board's fiduciary responsibilities; and adopt policies and procedures that represent best practices for nonprofit corporations.
Enhance commitment and participation in fund development at all levels. Ensure that everyone views themselves as ambassadors for the organization and its philanthropic goals and cultivate relationships that will support the mission; and build skills and enhance strengths through periodic training, coaching and resources.
Integrate and align fund development with all aspects of the organization. Ensure all functional areas of the organization are collaborative and complimentary; and integrate fund development goals into the performance evaluation of all staff and Board.
Build community engagement and strong donor relationships. Provide regular donor-centered communications and exceptional experiences; and inspire legacy gift commitments.
Continue to assemble and develop and exceptional, cohesive team of staff, volunteers and Board. Identify, recruit, develop and engage effective and committed leaders to our Board; adopt governance practices and policies that enhance leadership and engagement; and be recognized as an exceptional employer with a highly engaged staff. Leverage reliable and emerging technologies.
What are the organization's capabilities for doing this?
OUR VALUES & GUIDING PRINCIPLES
Excellence: We hold ourselves to the highest standards.
Compassion: We foster a culture of empathy and respect. We create a community of support and belonging, where everyone is welcome.
Empowerment: We provide practical information and resources that inspires hope, action, and provide support throughout the Parkinson’s journey.
Innovation: We relentlessly pursue a better approach to PD by providing high quality programs.
Partnership: By working together we achieve more.
What have they accomplished so far and what's next?
Neuro Challenge is constantly moving forward to reach and serve more people with Parkinson's and their Caregivers - today.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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Who are the people you serve with your mission?
People with Parkinson's Disease and their caregivers.
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How is your organization collecting feedback from the people you serve?
Electronic surveys (by email, tablet, etc.), Paper surveys, Focus groups or interviews (by phone or in person), Case management notes, Community meetings/Town halls, Constituent (client or resident, etc.) advisory committees, Suggestion box/email,
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,
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What significant change resulted from feedback?
Neuro Challenge presents virtual programming opportunities, in addition to our community-based program, to remove accessibility barriers and promote inclusion to those who may not have the physical, health, or transportation means to attend in-person programming.
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With whom is the organization sharing feedback?
The people we serve, Our staff, Our board, Our funders, Our community partners,
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How has asking for feedback from the people you serve changed your relationship?
Neuro Challenge is constantly addressing the changing needs of our constituents and giving them input on ways in which education, therapeutic and support programs and individualized care advising is delivered.
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Which of the following feedback practices does your organization routinely carry out?
We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded,
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What challenges does the organization face when collecting feedback?
It is difficult to get the people we serve to respond to requests for feedback, Staff find it hard to prioritize feedback collection and review due to lack of time,
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
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Neuro Challenge Foundation Inc
Board of directorsas of 02/27/2023
Brad Bryan
President, Brad!Bryan Multimedia Inc.
Term: 2021 - 2023
Emily Walsh
Observer Media Group
Patricia Entsminger
Kerkering, Barberio & Co.
Bob Bray
Retired, Millenium Physicians Group
Aimee Chouinard
Chouinard Consulting
Al Pandl
Elder Advisors Law, LLC
Salvatore Fontana
Retired, ExxonMobil
Cynthia Miller
1st Source Bank
Steven Solowsky
Shumaker, Loop & Kendrick
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
No data
Race & ethnicity
No data
Gender identity
No data
No data
Sexual orientation
No data
Disability
No data
Equity strategies
Last updated: 01/30/2023GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
- We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
- We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
- We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
- We have community representation at the board level, either on the board itself or through a community advisory board.
- We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
- We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.
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