JACK MCGOVERN COATS' DISEASE FOUNDATION

Burlingame, CA   |  www.coatsdiseasefoundation.org

Mission

The Jack McGovern Coats' Disease Foundation raises awareness and funds for research to improve treatments and find a cure for Coats' Disease which is a rare eye disorder that can cause blindness and, sometimes, the loss of an eye. The blood vessels behind the retina leak fluid and can cause retinal detachment. There is currently no cure for Coats' Disease which afflicts children as young as 4 mos. old and treatments such as laser surgery do not restore sight. The Foundation's vision is to find a cure. Our mission is to serve as a resource for the Coats' Community. We have launched a patient registry for researchers; a doctor directory to locate knowledgeable specialists; and established the first National Tissue BioBank with the Wilmer Eye Institute to provide tissue samples for research.

Ruling year info

2008

Executive Director

Dr. Deborah J Marron

Main address

20 Park Road Suite E

Burlingame, CA 94010 USA

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EIN

26-2439083

NTEE code info

Eye Diseases, Blindness and Vision Impairments (G41)

Alliance/Advocacy Organizations (E01)

Eye (H41)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Jack McGovern Coats' Disease Foundation National Tissue BioBank

The first-of-its-kind National Tissue Biobank was established in 2018 in partnership with the Wilmer Eye Institute at Johns Hopkins Medicine in Baltimore, Md. The purpose is for tissue collection for research into the causes, treatments, and a cure for Coats' Disease.

Population(s) Served
Children and youth
Adults

Where we work

Our Sustainable Development Goals

SOURCE: Self-reported by organization

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Financials

JACK MCGOVERN COATS' DISEASE FOUNDATION
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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JACK MCGOVERN COATS' DISEASE FOUNDATION

Board of directors
as of 02/22/2022
SOURCE: Self-reported by organization
Board chair

Mr. Ed McGovern

McGovern & Associates Consulting

Term: 2019 - 2021

Negar Souza

Red Oak Realty

Tina McGovern, MPA

American Academy of Ophthalmology

Ed McGovern

McGovern & Associates Consulting

Russell H Miller, J.D., Ph.D.

Miller & Olson, LLP

Joseph Galligan, CPA

Galligan, Thompson & Flocas, LLP

Jeannee Parker Martin, RN, MPH

LeadingAge California

John Paul Bruno

Workday

Gary Brickley

Brickley Production Services

Sherri VanEveren, PharmD

REGENXBIO

Jack McGovern

Joseph Vollert

Saint Ignatius College Preparatory

Suzanne C. Levere, M.Ed.

retired

Mary Elizabeth Hartnett, MD

Moran Eye Center, Univ. of Utah

Organizational demographics

SOURCE: Self-reported; last updated 1/28/2021

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

 

Sexual orientation

Disability

No data