PLATINUM2023

PROJECT HEAL - HELP TO EAT ACCEPT & LIVE

Eating disorder recovery is hard enough. Getting treatment shouldn't be.

aka Project HEAL   |   Brooklyn, NY   |  http://www.theprojectheal.org/

Mission

ProjectHEAL: Help to Eat, Accept and Live is the largest nonprofit in the U.S. helping break down systemic, healthcare, and financial barriers to eating disorder treatment.

Ruling year info

2009

Chief Executive Officer

Ms Rebecca Eyre

Main address

P.O. Box 160185

Brooklyn, NY 11216 USA

Show more contact info

EIN

26-2614278

NTEE code info

Mental Health Treatment (F30)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Despite having the highest mortality rates of all mental illnesses, eating disorders are woefully underfunded. One in ten Americans will be diagnosed with an eating disorder in their lifetime, but only 10-20% will ever receive treatment. This is due to a variety of factors including exorbitant costs, insufficient insurance coverage, lack of providers in both quantity and diversity, and medical discrimination. Left untreated, eating disorders can cause serious medical problems and even death. 10% of sufferers do not survive the illness, with one person dying every 52 minutes as a direct result of their eating disorder, and 30% will struggle their entire lives. Despite the pervasiveness and severity of eating disorders, only $0.73 per person affected is raised each year to address eating disorders.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Cash Assistance

Many individuals with insurance cannot access their benefits due to high deductibles, out-of-pocket maximums, and copays.

We offer one-time cash assistance to individuals who are able to demonstrate financial need so that they can unlock their benefits and access treatment through their insurance. We can also pay for travel costs and other tertiary expenses associated with going to treatment.

Population(s) Served
People with disabilities
Chronically ill people
LGBTQ people
Low-income people
Ethnic and racial groups

Project HEAL offers our beneficiaries free treatment through our HEALers Circle members. We have the largest network of facilities and providers at every level of care – including inpatient, residential, partial-hospitalization, intensive outpatient treatment centers as well as eating disorder specialized therapists, dietitians, and coaches.

Through these partnerships, we are the only major nonprofit in the U.S. providing access to free treatment to individuals with eating disorders who are uninsured or underinsured.

Population(s) Served
Ethnic and racial groups
People with disabilities
Chronically ill people
LGBTQ people
Low-income people

The current healthcare system in the U.S. regularly and unfairly denies coverage for eating disorder treatment at the appropriate level of care that someone struggling needs to recover.

Project HEAL’s insurance navigation specialists and resource guides help individuals understand their often confusing insurance benefits and advocate on their behalf to get their treatment covered. Investing in insurance navigation allows us to exponentially increase the number of beneficiaries that we serve each month and utilizes the benefits that someone is entitled to by law.

Population(s) Served
Chronically ill people
LGBTQ people
Low-income people
Ethnic and racial groups
People with disabilities

The Clinical Assessment Program - a new, high-capacity offering for individuals at the very beginning of their eating disorder healing journey. This program gives free, impartial, and culturally competent clinical assessments to those beginning their journey to eating disorder healing.

This program's primary function is address the inaccessibility and bias that currently leaves many people without access to impartial clinical guidance about their condition and what treatment options are available to them.

Population(s) Served

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of participants attending course/session/workshop

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of unique website visitors

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Average number of dollars per person served

This metric is no longer tracked.
Totals By Year
Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Decreasing

Context Notes

Expenses divided by the number of people served. We want to continue to be able to help more people for fewer expenses, maximizing our impact.

Number of clients served

This metric is no longer tracked.
Totals By Year
Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Number of clients placed

This metric is no longer tracked.
Totals By Year
Related Program

Treatment Placement

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Number of volunteers

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of referrals to resources offered

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of people on the organization's email list

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Total dollar amount of scholarship awarded

This metric is no longer tracked.
Totals By Year
Related Program

Cash Assistance

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Number of new donors

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Holding steady

Number of overall donors

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Holding steady

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Project HEAL helps people access the opportunities and resources they need in order to heal from their eating disorder. We do this through advocacy, education, research, and direct service programs.

Advocacy goals:
- To change insurance policies to remove unnecessary barriers to admission, such as geography, out-of-network options, unscientific weight requirements, vague medical stability requirements, gender limits, etc.
- To improve insurance practices to incentivize more ED providers to get paneled and be in-network providers
- To expand on Mental Health Parity Act to require insurances, both private and public, to cover all clinically indicated levels of care required for eating disorder recovery
- To make eating disorder treatment competency a licensure requirement for all Masters and Doctoral level clinicians

Education goals:
- To shift the national conversation about eating disorder stereotypes to accurately reflect the data about eating disorder prevalence across every demographic
- To help U.S. residents understand their insurance benefits and their patient rights, empowering them to self-advocate for treatment coverage
- To bring eating disorders to the national stage and broader public awareness, and de-stigmatize the illness so that more people feel comfortable seeking help

Research goals:
- To quantify the barriers that individuals in the U.S. experience when they seek eating disorder treatment
- To leverage research data in policy change in the U.S.

Programmatic goals:
- Treatment Placement Program: to say yes to 100% of applicants who cannot afford appropriate treatment and whose insurance will not cover their treatment through free treatment donated by our treatment partners; to prioritize individuals with marginalized identities who experience additional barriers due to systemic bias and discrimination within the healthcare system
- Cash Assistance Program: to distribute at least $50,000 in direct cash grants and scholarships to pay for both identity-affirming care and tertiary costs associated with going to treatment
- Insurance Navigation Program: to help individuals secure single case agreements for out-of-network coverage, to help individuals obtain in-network authorization by advocating around arbitrary authorization roadblocks, and to help individuals find in-network providers

Advocacy strategies:
- We are a member of the Eating Disorder Coalition who drives policy change at the state and federal level
- We are launching an Eating Disorder Equity Task Force this year to unite the ED field around removing barriers to treatment access
- We work closely with The Kennedy Forum on mental health parity efforts
- We support research and legislation efforts locally and nationally

Education strategies:
- We host conversations with diverse voices on social media platforms
- We provide webinars to companies, schools, and other community groups
- We have a weekly blog where we publish stories by people with lived experience
- We publish daily content on social media platforms dispelling myths and educating folks on the latest research

Research strategies:
- We are actively conducting research in partnership with The University of Louisville re: barriers to treatment access, a first-of-its-kind study in the U.S.
- We will create a Barriers to Eating Disorder Treatment Report in 2022

Program strategies:
- We have a growing network of 110+ treatment centers and providers who donate their care to our beneficiaries
- We're launching an Identity-Affirming Scholarship program to pay for treatment for marginalized individuals to providers with shared identities
- We're building an Insurance Navigation Portal that will allow people to interactively self-educate about their insurance coverage, including a chat feature staffed by specialists
- We help people secure new insurance on the ACA marketplace during the annual open enrollment period
- We're launching a new Clinical Assessment Program to provide free clinician-led diagnostic interviews as well as a 10-page clinical summary with treatment recommendations

In the last 2 years, Project HEAL has experienced tremendous growth. We currently have the most diverse board of directors in the eating disorder field, with 13 directors, all united around our mission to expand access to quality eating disorder treatment. We also have a staff of 7, plus 3 new approved positions this year, to deliver our programs and expand our reach. We are fortunate to have 11 committed National Volunteers fulfilling concrete roles on the team, as well as 760+ Global Ambassadors raising awareness and funds for Project HEAL. We have 110+ treatment partners, and a solid & expanding funding base to support our growing work.

Since our inception, we've provided nearly 1,000 life-saving treatment grants to people with eating disorders.

In 2021 alone, we got 181 people into treatment, and served over 2,500 more through our program offerings. Through our community education channels, we reached over 400,000 people, exposing them to eating disorder information and our mission to help people heal.

Our strategic plan is our roadmap to achieving our three-year vision for Project HEAL to become the leading eating disorder nonprofit in the United States.

By the end of 2024...

Project HEAL will be known, respected, and trusted within the eating disorder field and the mental health field at large. We will be the first on the list of organizations to contact when eating disorders are in public discourse, and one of the primary places to send someone you love who is struggling with an eating disorder but doesn’t know where to start.

People from all walks of life and almost all ends of the political spectrum who are struggling with an eating disorder will understand that Project HEAL is a welcoming, available, and transformative resource in their healing journey. Our Board of Directors and staff representation will meaningfully reflect the broad spectrum of communities we serve, and in word and action, will embody the organizational values that we lift up as our North Star.

Project HEAL will be understood by lawmakers, insurance companies, researchers, and the mental healthcare industry to be a leading authority on all things eating disorders, with particular expertise in equitable treatment access and a proven track record of operating with a progressive, intersectional approach.

Project HEAL will become one of the primary organizations training eating disorder providers, partnering with clinicians to provide equitable treatment access, and shaping the national consciousness about eating disorders and the hope for healing in modern-day America.

We will maintain, cultivate, and nurture our positive relationships and impactful partnerships with all values-aligned organizations, providers, and donors.

Project HEAL will be a coveted partner for corporations and influencers that seek to make a positive impact on American culture when it comes to mental health, systemic change, healthcare equity, body acceptance, and/or healing our nation’s relationship with food. We’ll offer substantive value beyond an exchange of goods or co-promotion - they will be proud to show their own audiences and communities who they are and what they value by aligning with Project HEAL.

Above all, Project HEAL will deliver empathic, informed support for individuals with eating disorders. Our applicants and beneficiaries will feel consistently seen and provided for in their often isolating and arduous pursuit of eating disorder healing.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, The people we serve tell us they find data collection burdensome, It is difficult to find the ongoing funding to support feedback collection

Financials

PROJECT HEAL - HELP TO EAT ACCEPT & LIVE
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

PROJECT HEAL - HELP TO EAT ACCEPT & LIVE

Board of directors
as of 07/05/2023
SOURCE: Self-reported by organization
Board chair

Dr. Erikka Dzirasa

Catalyst Therapeutic Services

Term: 2021 - 2023

Paraag Marathe

49ers

Amanda Crew

Craig Kramer

Johnson & Johnson

Kristina Saffran

Equip

Shashi Deb

Wednesdae Reim Ifrach

Walden Behavioral Health

Joan Zhang

Ginger

Ben O'Keefe

ICM Partners

Carolyn Costin

Carolyn Costin Institute

Bonita Jackson Turner

Cooper Zelnick

Groups:Recover Together

Whitney Trotter

Bluff City Health

Ilene Fishman

Susan Vibbert

ImageWorks

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 1/25/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Gay, lesbian, bisexual, or other sexual orientations in the LGBTQIA+ community
Disability status
Decline to state

Race & ethnicity

Gender identity

 

Sexual orientation

Disability

Equity strategies

Last updated: 08/20/2021

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.