US PAIN FOUNDATION INC
Mission
The mission of the U.S. Pain Foundation is to empower, educate, connect, and advocate for individuals living with chronic illnesses and serious injuries that cause pain, as well as their caregivers and clinicians. Its programs and services include a national network of support groups, educational resources and events, a pediatric pain program for children and their families, federal advocacy efforts, an awareness magazine called the INvisible Project, and more. The U.S. Pain Foundation is a 501(3)(c) nonprofit organization. For more information, visit www.uspainfoundation.org.
Ruling year
2010
Principal Officer
Nicole Hemmenway
Main address
15 North Main St Unit 100
West Hartford, CT 06107 USA
EIN
26-2703521
NTEE code
Health Support Services (E60)
Alliance/Advocacy Organizations (E01)
Alliance/Advocacy Organizations (G01)
IRS filing requirement
This organization is required to file an IRS Form 990 or 990-EZ.
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Communication
Programs and results
What we aim to solve
Recent estimates put the total number of people living with pain at 50 million American adults. 19.6 million individuals live with high-impact pain, or pain that significantly interferes with work, social, and self-care activities. U.S. Pain provides hope, resources, and support to those individuals who live with chronic pain. As we work to help people with pain, we keep in mind some core values. We believe: -People with chronic pain are underserved, overlooked, and misunderstood -Chronic pain has enormous emotional, social, and financial consequences for individuals, families, and society at large -Each person with pain is unique and deserves an individualized treatment plan -Patients should have affordable access to all types of treatment
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
INvisible Project
U.S. Pain’s flagship program, the INvisible Project, is a print magazine and traveling display that highlights the bravery of pain warriors through stories and photos—along with educational articles.
Pain Connection
Pain Connection is a national network of in-person and call-in support groups, developed by a clinical social worker who lives with pain.
Pediatric Pain Warrior
The Pediatric Pain Warrior Program offers weekend retreats, webinars, a pen pal program, and more for kids with pain and their families.
Where we work
External reviews
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of stories successfully placed in the media
This metric is no longer tracked.Totals By Year
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
Total news articles mentioning U.S. Pain or written by staff
Number of overall donors
This metric is no longer tracked.Totals By Year
Type of Metric
Other - describing something else
Direction of Success
Increasing
Number of people on the organization's email list
This metric is no longer tracked.Totals By Year
Type of Metric
Context - describing the issue we work on
Direction of Success
Increasing
Number of children served
This metric is no longer tracked.Totals By Year
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
Number of kids and their families who attended the Pediatric Take Control of Your Pain Retreats
Number of testimonies offered
This metric is no longer tracked.Totals By Year
Type of Metric
Context - describing the issue we work on
Direction of Success
Holding steady
Context Notes
This includes oral testimonies at both state and federal level
Number of support groups offered
This metric is no longer tracked.Totals By Year
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
In 2019, U.S. Pain's support group program provided 19 in-person and 5 call-in support groups each month.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Through our multiple programs and services, we work to enhance quality of life for people with pain, improve patient outcomes, address access and affordability issues, and increase public awareness and empathy for the issue of pain.
What are the organization's key strategies for making this happen?
The mission of the U.S. Pain Foundation is to empower, educate, connect, and advocate for individuals living with chronic illnesses and serious injuries that cause pain, as well as their caregivers and clinicians. Its programs and services include a national network of support groups, educational resources and events, a pediatric program for children and their families, federal advocacy efforts, an awareness magazine called the INvisible Project, and more.
What are the organization's capabilities for doing this?
U.S. Pain's staff is made up of people living with pain and/or caregivers. The team is dedicated to providing the needed services, support and education to empower people with pain.
What have they accomplished so far and what's next?
In 2019, U.S. Pain Foundation:
-Grew mailing list to 23,000 subscribers, and volunteer network to 2,313 individuals.
-Reached roughly 243,000 followers across Facebook, Twitter, Instagram, and YouTube.
-Engaged 2,224 volunteers to send emails to their policymakers through 23 total state and federal campaigns
-Launched the INvisible Project state advocacy tour, with events in Rhode Island and California.
-Sponsored 23 individuals with migraine and headache diseases to attend Headache on the Hill.
-24 U.S Pain volunteers received training at a weekend-long Advocacy Summit in Dallas, TX, featuring presentations, panels, and interactive workshops.
-Held two Pediatric Pain Warrior weekend retreats in Gurnee, IL, and San Antonio, TX, which were attended by 327 kids and family members total.
-Trained 32 peer leaders and mental health professionals at two Pain Connection support group trainings in San Francisco, CA, and Newark, NJ.
-Held 22 online educational events on topics ranging from acupuncture to pharmacogenetics, which were watched live or as recordings 10,493 times.
-Published two issues of the INvisible Project and one special edition for RetreatMigraine, with 20,250 copies distributed.
-Coordinated a Pain Awareness Month campaign featuring the #LetsTalkAboutPain theme and 31 patient video stories, which were viewed nearly 12,000 times in three months
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
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US PAIN FOUNDATION INC
Board of directorsas of 01/20/2022
Shawn Dickens
Jessica Begley, MFT
Edward Bilsky, PhD
Ellen Lenox Smith
Marv Turner
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
No data
Gender identity
No data
No data
Sexual orientation
No data
Disability
No data
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