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Human Services

THE DONNA FOUNDATION, INC.

Caring for those living with breast cancer

Jacksonville, FL

thedonnafoundation.org

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Mission

The DONNA Foundation is a 501(c)3 nonprofit organization established in June 2003 by three-time breast cancer survivor and visionary Donna Deegan. Through her own experience breast cancer surviving breast cancer three times, Donna has cast a vision to transform the experience for those living with breast cancer to one of love and support over fear and confusion. The mission of The DONNA Foundation is to provide financial assistance and support for individuals living with breast cancer and fund ground breaking breast cancer research.

Ruling Year

2008

Executive Director

Amanda Napolitano

Main Address

11762 Marco Beach Drive Suite 6

Jacksonville, FL 32224 USA

Formerly Known As

26.2 WITH DONNA THE NATIONAL MARATHON TO FINISH BREAST CANCER

Keywords

breast cancer; patient advocacy

EIN

26-2736601

Number

3817108129

Cause Area (NTEE Code)

Human Service Organizations (P20)

Breast Cancer Research (H32)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Programs + Results

What we aim to solve

Our mission at The DONNA Foundation (TDF) is to provide financial assistance and support for individuals living with breast cancer and fund ground breaking breast cancer research. Through her own experience surviving breast cancer three times, our Founder Donna Deegan has cast a vision to transform the experience for those living with breast cancer to one of love and support over fear and confusion. We deliver this vision through our DONNA CareLine, serving patients’ financial critical needs, through ground breaking breast cancer research funding at the Mayo Clinic so there is a hope for the future, and for the thousands of athletes who join us each year to celebrate survivorship and lift one another across the finish line of DONNA signature events including The National Marathon to Finish Breast Cancer.

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

DONNA CareLine

The DONNA CareLine is the front door for families in need with breast cancer to The DONNA Foundation. The DONNA CareLine provides specific case management services to patients, caregivers and/or their providers. The CareLine is staffed by a team of professional case managers with both nursing and social work backgrounds, and non-clinical case managers who have an insurance industry background with coding and billing expertise. Using their knowledge of reimbursement issues, this dedicated team will be able to help patients diagnosed with breast cancer with the following:
• Access to care issues
• Assist patients with insurance denials
• Assist with workplace and employment protections
• Review and educate on insurance plan language
• Employment challenges including loss of income and compromised benefits that impact access
• Medical debt crisis that has impacted or stopped required care
• Cost of living debt crisis that forces many to choose between paying for treatment or paying for their essential costs of living, often resulting in a decision to go off therapy
• Screening for the DONNA Financial Aid Fund providing small grants to help offset expenses related to care.

Population(s) Served

People with cancer

Families

Budget

$500,000

Research Disbursement

The DONNA Foundation is committed to funding cutting edge, bench top breast cancer research. From an initial contribution from The DONNA Foundation to Mayo Clinic of more than $500,000 in 2008, Mayo Clinic established its Breast Cancer Translational Genomics Research Program. Ongoing contributions from The DONNA Foundation, as of February 2020 totaling more than $3 million, allow Mayo Clinic to build and maintain genomics infrastructure in Jacksonville, making it possible for laboratory teams not only to carry out state of the art breast cancer research, but also to function as a resource for individuals who need genomics support for clinical/translational or basic studies in cancer.

Population(s) Served

People with cancer

Families

Budget

$500,000

Survivorship, Education and Awareness

Although the word survivorship can mean different things to different people, survivorship for most begins at diagnosis and continues for a lifetime as a family learns to live with and beyond breast cancer. The DONNA Foundation empowers survivors and their families with specifically designed programming, events and information.

Population(s) Served

People with cancer

Families

Budget

$500,000

Where we work

Our Results

How does this organization measure their results? It's a hard question but an important one. These quantitative program results are self-reported by the organization, illustrating their committment to transparency, learning, and interest in helping the whole sector learn and grow.

SOURCE: Self-reported by organization

Number of chronically ill patients served

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have they accomplished so far and what's next?

The DONNA Foundation is delivering on a three-year strategic plan aimed to achieve the following objectives: 1. Our organization and resources are well aligned to support strategic priorities and driving sustained performance. 2. The performance of the organization aligns to brand perception, and the community understands and supports the programmatic needs of the organization. 3. The organization has no deficit and three months of operational reserve. 4. All programs are fully funded, with funding channels aligned to growth of demand. 5. DONNA Marathon Weekend recognized as an industry leader both locally and nationally. 6. Organization is recognized nationally with funding support in/from strategic markets. 7. The DONNA Foundation is viewed as a source of love and empowerment with all who join our tribe living life fearless.

1. Build our human and organizational capacity. a. Continue to follow an actionable, strategic plan. b. Reimagine the organization both structurally and culturally. c. Develop and deliver on a CRM RoadMap. 2. Ensure the sustainability of our organization, increasing revenues to sustain impact. a. Hire/engage Chief Financial Officer. b. Standardize development opportunities including sponsorship packages. c. Establish Board Development Committee with strong leadership. 3. Advance the organization's brand. a. Develop comprehensive/integrated marketing and communication plan.

We are in year 3 of a 5 year strategic plan to increase visibility, grow our team, and secure needed resources.

We are tracking our progress and measuring success as a part of our ongoing/iterative strategic planning process.

Our organization has: 1. Continued to develop and maintain strategic partnerships - both new and renewed initiatives. 2. Continued to monitor success and evaluate programs 3. Redefined the development team to align with the strategic planning process 4. Grown the size of the board of directors

External Reviews

Financials

THE DONNA FOUNDATION, INC.

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FREE: Gain immediate access to the following:

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Forms 990 for 2018, 2017 and 2017

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Operations

The people, governance practices, and partners that make the organization tick.

Need more info?

FREE: Gain immediate access to the following:

Address, phone, website and contact information
Forms 990 for 2018, 2017 and 2017

A Pro report is also available for this organization.

See what's included

Board of Directors

as of 2/6/2020

Board Chair

Amy Mergen

FIS

Term: 2016 - 2022

Charlyn Barrett

Melissa Circelli
Black Knight Financial Services

Nick Furris
Spectrum

Antonia Hernandez
tonihernandezbrown

Andy Marello
PGA Tour

Debbie Nicol
TacoLU Baja Mexicana

Allen Skipper
Hargray Fiber

Chris Twiggs
Jeff Galloway Productions

Amy Mergen
FIS

Edith Perez
Mayo Clinic, Emeritus

Jim Gilmore
Infinity Global Solutions, LLC, Emeritus

Molly Walker
iHeart Media

James McCall
James J. McCall, DDS, PA

Teri Sowder
Dixon Hughes Goodman

Rees Mason
Merrill Lynch

SOURCE: Self-reported by organization

Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?