THE DONNA FOUNDATION, INC.

Caring for those living with breast cancer

Jacksonville, FL   |  thedonnafoundation.org

Mission

The DONNA Foundation is a 501(c)3 nonprofit organization established in June 2003 by three-time breast cancer survivor and visionary Donna Deegan. Through her own experience breast cancer surviving breast cancer three times, Donna has cast a vision to transform the experience for those living with breast cancer to one of love and support over fear and confusion. The mission of The DONNA Foundation is to provide financial assistance and support for individuals living with breast cancer and fund ground breaking breast cancer research.

Ruling year info

2008

Executive Director

Amanda Napolitano

Main address

11762 Marco Beach Drive Suite 6

Jacksonville, FL 32224 USA

Show more contact info

Formerly known as

26.2 WITH DONNA THE NATIONAL MARATHON TO FINISH BREAST CANCER

EIN

26-2736601

NTEE code info

Human Service Organizations (P20)

Breast Cancer Research (H32)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2020, 2019 and 2018.
Register now

Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Our mission at The DONNA Foundation (TDF) is to provide financial assistance and support for individuals living with breast cancer and fund ground breaking breast cancer research. Through her own experience surviving breast cancer three times, our Founder Donna Deegan has cast a vision to transform the experience for those living with breast cancer to one of love and support over fear and confusion. We deliver this vision through our DONNA CareLine, serving patients’ financial critical needs, through ground breaking breast cancer research funding so there is a hope for the future, and for the thousands of athletes who join us each year to celebrate survivorship and lift one another across the finish line of DONNA signature events including The National Marathon to Finish Breast Cancer.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

DONNA CareLine

The DONNA CareLine is the front door for families in need with breast cancer to The DONNA Foundation. The DONNA CareLine provides specific case management services to patients, caregivers and/or their providers. The CareLine is staffed by a team of professional case managers with both nursing and social work backgrounds, and non-clinical case managers who have an insurance industry background with coding and billing expertise. Using their knowledge of reimbursement issues, this dedicated team will be able to help patients diagnosed with breast cancer with the following:
• Access to care issues
• Assist patients with insurance denials
• Assist with workplace and employment protections
• Review and educate on insurance plan language
• Employment challenges including loss of income and compromised benefits that impact access
• Medical debt crisis that has impacted or stopped required care
• Cost of living debt crisis that forces many to choose between paying for treatment or paying for their essential costs of living, often resulting in a decision to go off therapy
• Screening for the DONNA Financial Aid Fund providing small grants to help offset expenses related to care.

Population(s) Served
People with diseases and illnesses
Families

The DONNA Foundation funds novel research initiatives with the goal to more effectively diagnose, treat and ultimately finish breast cancer for all patients. More than $3M has been granted in support of translational genomics and immune studies. From an initial contribution from The DONNA Foundation to Mayo Clinic of more than $500,000 in 2008, Mayo Clinic established its Breast Cancer Translational Genomics Research Program. Ongoing contributions from The DONNA Foundation, as of February 2020 totaling more than $3 million, allow Mayo Clinic to build and maintain genomics infrastructure in Jacksonville, making it possible for laboratory teams not only to carry out state of the art breast cancer research, but also to function as a resource for individuals who need genomics support for clinical/translational or basic studies in cancer.

Population(s) Served
People with diseases and illnesses
Families

Although the word survivorship can mean different things to different people, survivorship for most begins at diagnosis and continues for a lifetime as a family learns to live with and beyond breast cancer. The DONNA Foundation empowers survivors and their families with specifically designed programming, events and information.

Population(s) Served
People with diseases and illnesses
Families

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of chronically ill patients served

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses

Related Program

DONNA CareLine

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Amount of financial services and debt relief secured for families living with breast cancer.

This metric is no longer tracked.
Totals By Year
Related Program

DONNA CareLine

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Participation in annual Survivorship Programming.

This metric is no longer tracked.
Totals By Year
Related Program

Survivorship, Education and Awareness

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Total funds disbursed to Research Programs.

This metric is no longer tracked.
Totals By Year
Related Program

Research Disbursement

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The DONNA Foundation is delivering on a three-year strategic plan aimed to achieve the following objectives:
1. Our organization and resources are well aligned to support strategic priorities and driving sustained performance.
2. The performance of the organization aligns to brand perception, and the community understands and supports the programmatic needs of the organization.
3. The organization has no deficit and three months of operational reserve.
4. All programs are fully funded, with funding channels aligned to growth of demand.
5. DONNA Marathon Weekend recognized as an industry leader both locally and nationally.
6. Organization is recognized nationally with funding support in/from strategic markets.
7. The DONNA Foundation is viewed as a source of love and empowerment with all who join our tribe living life fearless.

1. Build our human and organizational capacity.
a. Continue to follow an actionable, strategic plan.
b. Reimagine the organization both structurally and culturally.
c. Develop and deliver on a CRM RoadMap.

2. Ensure the sustainability of our organization, increasing revenues to sustain impact.
a. Hire/engage Chief Financial Officer.
b. Standardize development opportunities including sponsorship packages.
c. Establish Board Development Committee with strong leadership.

3. Advance the organization's brand.
a. Develop comprehensive/integrated marketing and communication plan.

We are in year 3 of a 5 year strategic plan to increase visibility, grow our team, and secure needed resources.

Our organization has:

1. Continued to develop and maintain strategic partnerships - both new and renewed initiatives.
2. Continued to monitor success and evaluate programs
3. Redefined the development team to align with the strategic planning process
4. Grown the size of the board of directors

Financials

THE DONNA FOUNDATION, INC.
lock

Unlock financial insights by subscribing to our monthly plan.

Subscribe

Unlock nonprofit financial insights that will help you make more informed decisions. Try our monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights?
Learn more about GuideStar Pro.

Operations

The people, governance practices, and partners that make the organization tick.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

THE DONNA FOUNDATION, INC.

Board of directors
as of 8/2/2021
SOURCE: Self-reported by organization
Board co-chair

Amy Mergen

FIS

Term: 2016 - 2022


Board co-chair

Teri Sowder

Dixon Hughes Goodman LLP

Term: 2019 - 2025

Melissa Circelli

Black Knight Financial Services

Andy Marello

PGA Tour

Allen Skipper

Expedient

Chris Twiggs

Jeff Galloway Productions

Amy Mergen

FIS

Edith Perez

Mayo Clinic, Emeritus

Jim Gilmore

Infinity Global Solutions, LLC, Emeritus

Molly Walker

iHeart Media

Teri Sowder

Dixon Hughes Goodman

Rees Mason

Merrill Lynch

Janice Cobb

Equitable

Lauren Hayes

FIS

Christopher Turner

AARP

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 11/23/2020

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data