THE DONNA FOUNDATION, INC.
Caring for those living with breast cancer
Mission
The DONNA Foundation is a 501(c)3 nonprofit organization established in June 2003 by three-time breast cancer survivor and visionary Donna Deegan. Through her own experience breast cancer surviving breast cancer three times, Donna has cast a vision to transform the experience for those living with breast cancer to one of love and support over fear and confusion. The mission of The DONNA Foundation is to provide financial assistance and support for individuals living with breast cancer and fund ground breaking breast cancer research.
Ruling year
2008
Executive Director
Amanda Napolitano
Main address
1015 Atlantic Blvd #58
Atlantic Beach, FL 32233 USA
Formerly known as
26.2 WITH DONNA THE NATIONAL MARATHON TO FINISH BREAST CANCER
EIN
26-2736601
NTEE code
Human Service Organizations (P20)
Breast Cancer Research (H32)
IRS filing requirement
This organization is required to file an IRS Form 990 or 990-EZ.
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Communication
Programs and results
What we aim to solve
Our mission at The DONNA Foundation (TDF) is to provide financial assistance and support for individuals living with breast cancer and fund ground breaking breast cancer research. Through her own experience surviving breast cancer three times, our Founder Donna Deegan has cast a vision to transform the experience for those living with breast cancer to one of love and support over fear and confusion. We deliver this vision through our DONNA CareLine, serving patients’ financial critical needs, through ground breaking breast cancer research funding so there is a hope for the future, and for the thousands of athletes who join us each year to celebrate survivorship and lift one another across the finish line of DONNA signature events including The National Marathon to Finish Breast Cancer.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
DONNA CareLine
The DONNA CareLine is the front door for families in need with breast cancer to The DONNA Foundation. The DONNA CareLine provides specific case management services to patients, caregivers and/or their providers. The CareLine is staffed by a team of professional case managers with both nursing and social work backgrounds, and non-clinical case managers who have an insurance industry background with coding and billing expertise. Using their knowledge of reimbursement issues, this dedicated team will be able to help patients diagnosed with breast cancer with the following:
• Access to care issues
• Assist patients with insurance denials
• Assist with workplace and employment protections
• Review and educate on insurance plan language
• Employment challenges including loss of income and compromised benefits that impact access
• Medical debt crisis that has impacted or stopped required care
• Cost of living debt crisis that forces many to choose between paying for treatment or paying for their essential costs of living, often resulting in a decision to go off therapy
• Screening for the DONNA Financial Aid Fund providing small grants to help offset expenses related to care.
Research Disbursement
The DONNA Foundation funds novel research initiatives with the goal to more effectively diagnose, treat and ultimately finish breast cancer for all patients. More than $3M has been granted in support of translational genomics and immune studies. From an initial contribution from The DONNA Foundation to Mayo Clinic of more than $500,000 in 2008, Mayo Clinic established its Breast Cancer Translational Genomics Research Program. Ongoing contributions from The DONNA Foundation, as of February 2020 totaling more than $3 million, allow Mayo Clinic to build and maintain genomics infrastructure in Jacksonville, making it possible for laboratory teams not only to carry out state of the art breast cancer research, but also to function as a resource for individuals who need genomics support for clinical/translational or basic studies in cancer.
Survivorship, Education and Awareness
Although the word survivorship can mean different things to different people, survivorship for most begins at diagnosis and continues for a lifetime as a family learns to live with and beyond breast cancer. The DONNA Foundation empowers survivors and their families with specifically designed programming, events and information.
Where we work
External reviews
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of chronically ill patients served
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses
Related Program
DONNA CareLine
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Amount of financial services and debt relief secured for families living with breast cancer.
This metric is no longer tracked.Totals By Year
Related Program
DONNA CareLine
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Participation in annual Survivorship Programming.
This metric is no longer tracked.Totals By Year
Related Program
Survivorship, Education and Awareness
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Total funds disbursed to Research Programs.
This metric is no longer tracked.Totals By Year
Related Program
Research Disbursement
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
The DONNA Foundation is delivering on a three-year strategic plan aimed to achieve the following objectives:
1. Our organization and resources are well aligned to support strategic priorities and driving sustained performance.
2. The performance of the organization aligns to brand perception, and the community understands and supports the programmatic needs of the organization.
3. The organization has no deficit and three months of operational reserve.
4. All programs are fully funded, with funding channels aligned to growth of demand.
5. DONNA Marathon Weekend recognized as an industry leader both locally and nationally.
6. Organization is recognized nationally with funding support in/from strategic markets.
7. The DONNA Foundation is viewed as a source of love and empowerment with all who join our tribe living life fearless.
What are the organization's key strategies for making this happen?
1. Build our human and organizational capacity.
a. Continue to follow an actionable, strategic plan.
b. Reimagine the organization both structurally and culturally.
c. Develop and deliver on a CRM RoadMap.
2. Ensure the sustainability of our organization, increasing revenues to sustain impact.
a. Hire/engage Chief Financial Officer.
b. Standardize development opportunities including sponsorship packages.
c. Establish Board Development Committee with strong leadership.
3. Advance the organization's brand.
a. Develop comprehensive/integrated marketing and communication plan.
What are the organization's capabilities for doing this?
We are in year 3 of a 5 year strategic plan to increase visibility, grow our team, and secure needed resources.
What have they accomplished so far and what's next?
Our organization has:
1. Continued to develop and maintain strategic partnerships - both new and renewed initiatives.
2. Continued to monitor success and evaluate programs
3. Redefined the development team to align with the strategic planning process
4. Grown the size of the board of directors
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals
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Which of the following feedback practices does your organization routinely carry out?
We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive
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What challenges does the organization face when collecting feedback?
We don't have any major challenges to collecting feedback
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
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THE DONNA FOUNDATION, INC.
Board of directorsas of 09/07/2023
Amy Mergen
FIS
Term: 2016 - 2022
Teri Sowder
Dixon Hughes Goodman LLP
Term: 2019 - 2025
Melissa Circelli
Black Knight Financial Services
Andy Marello
PGA Tour
Allen Skipper
Expedient
Chris Twiggs
Jeff Galloway Productions
Amy Mergen
FIS
Edith Perez
Mayo Clinic, Emeritus
Jim Gilmore
Infinity Global Solutions, LLC, Emeritus
Molly Walker
iHeart Media
Teri Sowder
Dixon Hughes Goodman
Rees Mason
Merrill Lynch
Janice Cobb
Equitable
Lauren Hayes
FIS
Christopher Turner
AARP
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? No
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
No data
Gender identity
No data
No data
Sexual orientation
No data
Disability
No data
Equity strategies
Last updated: 09/07/2023GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
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