Appendix Cancer / Pseudomyxoma Peritonei Research Foundation (ACPMP)

(1) Establish the first centralized charitable organization to fund PMP and appendix cancer research (goal achieved, July 2008).
(2) Raise $100,000 to award our first grant in 2009 (goal achieved, November 2009).
(3) Create and maintain a short list of priority research that will produce near-term results in improving the quality of life and curability of PMP and appendix cancer patients.
(4) Play a leading role in the dissemination of accurate information regarding PMP and appendix cancer both to the patient and to medical communities.
(5) Raise a minimum of $1 million to fund promising research within 3-5 years (goal achieved, December 2013).
(6) Help researchers find a cure for PMP and appendix cancer.

(1) Raise funds through events organized by the patient community.
(2) Partner with physicians and their institutions to facilitate the education of the medical and patient communities and improve the diagnosis and treatment of PMP.
(3) Partner with the National Organization for Rare Disorders (NORD) to administer the Research Grant Program to ensure funds are going to the highest and best use and to monitor usage of funds after grants are awarded.

The organization is composed of a volunteer board, with each member taking responsibility for a core area (Fundraising, Education, Research, and Communications). Fundraising is primarily achieved through a web-based platform that allows the patient community to set up fundraising events and collect donations. The organization also has two full-time staff members.

ACPMP Research Foundation has awarded $1,300,000 in the form of twenty-seven research grants since 2008 that have resulted in 17 published studies in peer-reviewed journals, with another $100,000 to be issued at the end of 2020. We have co-hosted and sponsored annual patient-physician symposiums from coast to coast across the United States, and awarded physician scholarships to major international medical and scientific conferences focused on the understanding and treatment of appendix cancer and PMP. We will continue these efforts as we pursue our goal of finding a cure for every patient diagnosed with appendix cancer and/or pseudomyxoma peritonei.