Philanthropy, Voluntarism, and Grantmaking

Appendix Cancer / Pseudomyxoma Peritonei Research Foundation (ACPMP)

Inform. Research. Cure.

aka ACPMP

Washington, DC

Mission

ACPMP's mission is (1) facilitating appendix cancer and pseudomyxoma peritonei patient and physician education, (2) issuing grants to fund promising research that will improve the understanding, diagnosis and treatment of appendix cancer and pseudomyxoma peritonei, and (3) finding a cure for every patient diagnosed with pseudomyxoma peritonei and/or appendix cancer.

Ruling Year

2008

President

Jerry Lewandowski

Main Address

2021 L Street NW Suite 101-244

Washington, DC 20036 USA

Formerly Known As

PMP Research Foundation PMPRF

Keywords

PMP, pseudomyxoma peritonei, appendix cancer, appendiceal cancer, research, grants, fundraising, cure, appendix cancer, appendiceal cancer, appendiceal adenocarcinoma, goblet cell carcinoid

EIN

26-2890160

 Number

2985134751

Cause Area (NTEE Code)

Fund Raising and/or Fund Distribution (T12)

Cancer (G30)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Social Media

Blog

Programs + Results

What we aim to solve

The ACPMP Research Foundation is an IRS-designated 501(c)3 charitable organization. The Foundation was created in 2008 by a community of individuals affected by Pseudomyxoma Peritonei (PMP), Appendix Cancer, and related Peritoneal Surface Malignancies (PSM). Prior to the formation of ACPMP, no centralized organization existed that was dedicated to raising funds for distribution for PMP and appendix cancer research in an objective way. Private donations for PMP and appendix cancer research were primarily made to individual doctors rather than towards competitive, RFP-driven funding based on the quality of the science. ACPMP was created to fill this void and provide funding for research and educational programs focused on these diseases.

Our Sustainable Development Goals

Learn more about Sustainable Development Goals.

3

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

Research Grant Program

Physician Scholarships

Educational Event Sponsorship

Where we work

Our Results

How does this organization measure their results? It's a hard question but an important one. These quantitative program results are self-reported by the organization, illustrating their committment to transparency, learning, and interest in helping the whole sector learn and grow.

SOURCE: Self-reported by organization

Total number of grants awarded

TOTALS BY YEAR
Population(s) served

People with cancer

Related program

Research Grant Program

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context notes

Each two-year grant is $50,000, administered by the National Organization for Rare Disorders.

Total dollar amount of scholarship awarded

TOTALS BY YEAR
Population(s) served

General/Unspecified

Related program

Physician Scholarships

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context notes

Scholarships granted to physicians and researchers for biennial International Workshop on Peritoneal Surface Malignancies and/or the annual Society for Surgical Oncology Advanced Cancer Therapies.

Number of public events held to further mission

TOTALS BY YEAR
Population(s) served

People with cancer

Related program

Educational Event Sponsorship

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context notes

Physician/patient symposiums are held in partnership with specialist institutions.

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have they accomplished so far and what's next?

(1) Establish the first centralized charitable organization to fund PMP and appendix cancer research (goal achieved, July 2008).
(2) Raise $100,000 to award our first grant in 2009 (goal achieved, November 2009).
(3) Create and maintain a short list of priority research that will produce near-term results in improving the quality of life and curability of PMP and appendix cancer patients.
(4) Play a leading role in the dissemination of accurate information regarding PMP and appendix cancer both to the patient and to medical communities.
(5) Raise a minimum of $1 million to fund promising research within 3-5 years (goal achieved, December 2013).
(6) Help researchers find a cure for PMP and appendix cancer.

(1) Raise funds through events organized by the patient community.
(2) Partner with physicians and their institutions to facilitate the education of the medical and patient communities and improve the diagnosis and treatment of PMP.
(3) Partner with the National Organization for Rare Disorders (NORD) to administer the Research Grant Program to ensure funds are going to the highest and best use and to monitor usage of funds after grants are awarded.

The organization is composed of a volunteer board, with each member taking responsibility for a core area (Fundraising, Education, Research, and Communications). Fundraising is primarily achieved through a web-based platform that allows the patient community to set up fundraising events and collect donations. The organization also has two full-time staff members.

Progress is achieved with each grant issued by the organization and the corresponding research that is produced by the grant recipients. Progress is also measured in the number of education events sponsored and medical event scholarships issued.

ACPMP Research Foundation has awarded $1,300,000 in the form of twenty-seven research grants since 2008 that have resulted in 17 published studies in peer-reviewed journals, with another $100,000 to be issued at the end of 2020. We have co-hosted and sponsored annual patient-physician symposiums from coast to coast across the United States, and awarded physician scholarships to major international medical and scientific conferences focused on the understanding and treatment of appendix cancer and PMP. We will continue these efforts as we pursue our goal of finding a cure for every patient diagnosed with appendix cancer and/or pseudomyxoma peritonei.

External Reviews

Affiliations & Memberships

National Organization for Rare Disorders - Member 2008

Photos

Financials

Appendix Cancer / Pseudomyxoma Peritonei Research Foundation (ACPMP)

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Operations

The people, governance practices, and partners that make the organization tick.

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Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Not Applicable

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Not Applicable

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Not Applicable

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Not Applicable

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Not Applicable