Philanthropy, Voluntarism, and Grantmaking

Appendix Cancer / Pseudomyxoma Peritonei Research Foundation (ACPMP)

Inform. Fund Research. Cure.

aka ACPMP

Independence, OH

Mission

(1) facilitating appendix cancer and pseudomyxoma peritonei patient and physician education, (2) issuing grants to fund promising research that will improve the understanding, diagnosis and treatment of appendix cancer and pseudomyxoma peritonei, and (3) finding a cure for every patient diagnosed with pseudomyxoma peritonei and/or appendix cancer.

Ruling Year

2008

President

Jerry Lewandowski

Main Address

6415 Granger Road Suite 200

Independence, OH 44131 USA

Keywords

PMP, pseudomyxoma peritonei, appendix cancer, appendiceal cancer, research, grants, fundraising, cure, appendix cancer, appendiceal cancer, appendiceal adenocarcinoma, goblet cell carcinoid

EIN

26-2890160

 Number

2985134751

Cause Area (NTEE Code)

Fund Raising and/or Fund Distribution (T12)

Cancer (G30)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Social Media

Blog

Programs + Results

What we aim to solve New!

The ACPMP Research Foundation is an IRS-designated 501(c)3 charitable organization. The Foundation was created in 2008 by a community of individuals affected by Pseudomyxoma Peritonei (PMP), Appendix Cancer, and related Peritoneal Surface Malignancies (PSM). Prior to the formation of ACPMP, no centralized organization existed that was dedicated to raising funds for distribution for PMP and appendix cancer research in an objective way. Private donations for PMP and appendix cancer research were primarily made to individual doctors rather than towards competitive, RFP-driven funding based on the quality of the science. ACPMP was created to fill this void and provide funding for research and educational programs focused on these diseases.

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

Research Grant Program

Physician Scholarships

Educational Event Sponsorship

Where we workNew!

Our Results

How does this organization measure their results? It's a hard question but an important one. These quantitative program results are self-reported by the organization, illustrating their committment to transparency, learning, and interest in helping the whole sector learn and grow.

SOURCE: Self-reported by organization

Total number of grants awarded

TOTALS BY YEAR
Population(s) served

People with cancer

Related program

Research Grant Program

Context notes

Each grant is $50,000, two-years administered by the National Organization for Rare Disorders.

Total dollar amount of scholarship awarded

TOTALS BY YEAR
Population(s) served

General/Unspecified

Related program

Physician Scholarships

Context notes

Scholarships granted to physicians and researchers attending the biennial International Workshop on Peritoneal Surface Malignancies.

Number of public events held to further mission

TOTALS BY YEAR
Population(s) served

People with cancer

Related program

Educational Event Sponsorship

Context notes

Physician/patient symposiums are held in partnership with specialist institutions.

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have and haven't they accomplished so far?

(1) Establish the first centralized charitable organization to fund PMP and appendix cancer research (goal achieved, July 2008).
(2) Raise $100,000 to award our first grant in 2009 (goal achieved, November 2009).
(3) Create and maintain a short list of priority research that will produce near-term results in improving the quality of life and curability of PMP and appendix cancer patients.
(4) Play a leading role in the dissemination of accurate information regarding PMP and appendix cancer both to the patient and to medical communities.
(5) Raise a minimum of $1 million to fund promising research within 3-5 years (goal achieved, December 2013).
(6) Help researchers find a cure for PMP and appendix cancer.

(1) Raise funds through events organized by the patient community.
(2) Partner with physicians and their institutions to facilitate the education of the medical and patient communities and improve the diagnosis and treatment of PMP.
(3) Partner with the National Organization for Rare Disorders (NORD) to administer the Research Grant Program to ensure funds are going to the highest and best use and to monitor usage of funds after grants are awarded.

The organization is composed of a volunteer board, with each member taking responsibility for a core area (Fundraising, Education, Research, and Communications). Fundraising is primarily achieved through a web-based platform that allows the patient community to set up fundraising events and collect donations.

Progress is acheived with each grant issued by the organization and the corresponding research that is produced by the grant recipients.

ACPMP Research Foundation has awarded $1,100,000 in the form of twenty three research grants over the past nine years that have resulted in 11 published studies in peer-reviewed journals with another $100,000 to be issued at the end of 2018. We have co-hosted and sponsored annual patient-physician symposiums from coast to coast across the United States, and awarded physician scholarships to major international medical and scientific conferences focused on the understanding and treatment of appendix cancer and PMP. We will continue these efforts as we pursue our goal of finding a cure for every patient diagnosed with appendix cancer and/or pseudomyxoma peritonei.

External Reviews

Affiliations & Memberships

National Organization for Rare Disorders - Member

Photos

Financials

Appendix Cancer / Pseudomyxoma Peritonei Research Foundation (ACPMP)

Fiscal year: Jan 01 - Dec 31

Need more info on this nonprofit?

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FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2016, 2015 and 2014
A Pro report is also available for this organization for $125.
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Operations

The people, governance practices, and partners that make the organization tick.

Need more info?

FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2016, 2015 and 2014
A Pro report is also available for this organization for $125.
Click here to see what's included.

Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

No

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

No

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

No

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

No

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

No