1VOICE FOUNDATION INC

Be Their Voice

Brandon, FL   |  https://www.1voicefoundation.org

Mission

The 1Voice Foundation provides programs and services for pediatric cancer families in west central Florida. We fund and operate a pediatric cancer research lab where our Researchers are developing the vaccine for leukemia. We are the legislative voice on Capitol Hill for Childhood Cancer Action Days on the Hill. We have partnered with the Hillsborough County Schools to open the 1Voice Academy, the first school in the United States for children with cancer in Spring 2021.

Notes from the nonprofit

Thank you for viewing the 1Voice Foundation Guidestar page. We are a 501(c)3 children's charity located in west central Florida. We provide programs and services for pediatric cancer families and fund and operate a pediatric cancer research lab which is working on developing a vaccine for leukemia. We are launching an initiative to open the 1Voice Academy, the first school in the United States for children with cancer. We are the legislative voice on Capitol Hill and testify annually during Childhood Cancer Action Days. We serve patients being treated at Tampa General Hospital, All Children's Hospital, St. Joseph's Children's Hospital and Moffitt Cancer Center & Researh Institute. There are currently over 800 families that recieive services for children on treatment, childhood cancer survivors and our bereavement services.

There is never a charge or fee for our families for any of our programs or services. Our programs are open to families with all types of childhood cancers. We currently do not receive any federal or state funding and rely on the generosity of our supporters, grants and fundraising efforts.

Ruling year info

2015

Executive Director

Mary Ann Massolio

Main address

123 W. Bloomingdale Ave

Brandon, FL 33511 USA

Show more contact info

EIN

26-3179244

NTEE code info

Philanthropy / Charity / Voluntarism Promotion (General) (T50)

Health Support Services (E60)

Health Support Services (E60)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

The 1Voice Foundation provides 25 programs and services for children battling cancer and their families in west central Florida. Our programs are designed to meet the needs of all the members of the family as we believe the entire family is diagnosed, not just the child. We fund and operate a pediatric cancer research lab where Cameron Tebbi, M.D. is developing the vaccine for leukemia. We travel to Capitol Hill annually to testify before Congress and the Senate and request additional funding for pediatric cancer research and survivorship issues. We have partnered with the Hillsborough County Schools to open the 1Voice Academy, the first school in the United States for children with cancer.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Makayla's Hands on Horses

An equine therapy program for children battling cancer and childhood cancer survivors and their siblings. The 1Voice Foundation funds all equine therapy sessions or the children and sponsors five family fundays on the farm with the horses. We collaborate with our community partner, Quantum Leap Farm in Odessa, FL.

Population(s) Served

The 1Voice Foundation provides grief and bereavement services to families that have lost a child to cancer. We offer individual, family, group and sibling services and programs. We meet at Shriner's Hospital for Children on the USF Campus.

Population(s) Served
Adults

The 1Voice Foundation pairs newly diagnosed families with a "chemo buddy". Pairing new moms with veteran moms who have children the same age and same diagnosis, provides an incredible mentor and friend during this journey. They are best to guide as they have been there themselves.

Population(s) Served
Adults

The 1Voice Foundation provides a family support program for families affected by pediatric brain cancer/tumors. Specifically designed to meet the needs and provide resources for our families. P.U.G.S. is a natioanlly recognized support group by the American Brain Tumor Asociation.

Population(s) Served

Paul's Project provides packs of supplies, comfort items and necessities for parents in ICU, unexpected trips to the hospital and extended hospital stays.

Population(s) Served

Former Tampa Bay Buccaneer Earnest Graham is a Board Member for the 1Voice Foundation. He has taken his love for art and music and developed a scholarship program through the 1Voice Foundation for children with cancer and their siblings to provide funding for families who have huge medical expenses and do not have the funding for the art and music programs that their children would like to participate in.

Population(s) Served

The 1Voice Foundation testifies on Capitol Hill annually and brings local families as well, for Childhood Cancer Awareness Days on the Hill. We provide funds for transportaion, hotel and meals. We are there three days, which includes, training and our day on the Hill.

Population(s) Served
Adults

Under the direction of Cameron Tebbi, M.D., Director, Pediatric Hematology/ Oncology at Tampa General Hospital and the University of South Florida and Research Assistant, Dr. Nair, the Children's Cancer Research Group at the 1Voice Foundation funds and operates a pediatric cancer research lab at the Univerity of South Florida. Their focus is on prevention and they are working extremely hard on creating a vaccine fo leukemia.

Population(s) Served

Club Nautilus is a collaborative program between the 1Voice Foundation, the Krewe of the Nautilus and the Florida Aquarium. The program provides children with cancer and their siblings, an educational and recreational experience in a safe environment and a sense of normalcy while on treatment.

Population(s) Served

The 1Voice Foundation is launching an initiative to open the first school in the United States for children with cancer. This special and unique program is in collaboration with Hillsborough County Schools, Moffitt Cancer Center & Research Institute, Tampa General Hospital and the Univerity of South Florida.

Population(s) Served

Where we work

Awards

Community Hero 2014

Tampa Bay Lightning

Videos

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of children who have access to healthcare

This metric is no longer tracked.
Totals By Year
Population(s) Served

Age groups, Family relationships, Health

Related Program

Voices of Angels Bereavement Family Support Program

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Pediatric cancer patients and siblings.

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

GOAL 1: To collaborate with other non profits, hospitals and educational institutions, to work together to make a difference. To provide resources for our families in a combined effort to meet unmet needs and improve the quality of life during the pediatric cancer journey and after.

GOAL 2: To provide appropriate and meaningful programs and services to children with cancer and their families at no cost to them.

GOAL 3: To fund and operate a pediatric cancer research lab that is developing a vaccine for leukemia.

GOAL 4: To testify before Congress and the Seante on issues and Bills before them that increase funding for pediatric cancer research and pediatric cancer issues that arise.

GOAL 5: To open the 1Voice Academy, the first school in the United States for children with cancer.

Our strategies include reaching out to and working with other agencies and hospitals. Tremendous efforts are being made in the areas of community outreach and collaboration in a 7 county area in west central Florida. We have partnered with International Rotary to expand our educational program globally.

Our capabilities to reach our goals are due to a strong and effective Executive Director with nearly 25 years of non profit experience in Tampa Bay. She is the ONLY paid staff member which keeps our administrative expenses low. We have a strong volunteer Board of Directors and tremendous community support form philanthropic individuals, corporations, medical community, professioanl athletes and the community at large.

The 1Voice Foundation is now collaborating with Shriners Hospital for Children who provide meeting spaces for our family support programs. We are community partners with Quantum Leap Farm for our equine therapy program and the Florida Aquarium for our ecological educational program. We have partnered with the University of South Florida College of Medicine for donated lab space for our pediatric cancer research lab. We are partnering with the Hillsborough County Schools, Moffitt Cancer Center & Research Institute, Tampa General and the University of South Florida for our 1Voice Academy.

We are offering 10 family support programs, operating a pediatric cancer research lab, creating the Florida Coalition for Childhood Cancer and anticipate the 1Voice Academy to be open in Fall 2015.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.

  • How is your organization collecting feedback from the people you serve?

    Focus groups or interviews (by phone or in person), Case management notes, Community meetings/Town halls,

  • How is your organization using feedback from the people you serve?

    To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve,

  • What significant change resulted from feedback?

    We partnered with the Hillsborough County Schools to open the 1Voice Academy, the first school in the United States for children with cancer. Parents of pediatric oncology patients cannot send their children to school with no immune system. Then the pandemic hit, making it even more difficult for the patients to attend in person school. The 1Voice Foundation recognized this need from an overwhelming response from parents concerns. We then partnered with the Hillsborough County Schools and Rotary International, to open the 1Voice Academy, the only response to this crisis.

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board, Our community partners,

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback,

Financials

1VOICE FOUNDATION INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

1VOICE FOUNDATION INC

Board of directors
as of 2/18/2021
SOURCE: Self-reported by organization
Board chair

Donna Mart

Le Salon Rouge

Term: 2019 - 2022

Donna Mart

Le Salon Rouge

Susan Coppin

Private Practice

Jill Wolter

Progressive

Paul Manfrey

Morgan Stanley

Earnest Graham

Retired NFL

Cameron Tebbi, M.D.

1Voice Foundation

Tracy Mills

Geico

Tien Ryan

ADP

Bonnie Woodworth

American Board of Pathology

Beth Gaddis

Patient Prism

Karen Gliddon

K Peas Place

Steve Yerrid

Yerrid Law Firm

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 01/27/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 01/27/2021

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.