PLATINUM2023

UPSTAGE LUNG CANCER INC

Upstage Lung Cancer

Brookline, MA   |  www.upstagelungcancer.org

Mission

Upstage Lung Cancer is a unique nonprofit that uses the performing arts to raise lung cancer awareness and fund early detection research. Our vision is to advocate for early detection in lung cancer. Our goal is to help increase lung cancer detection and diagnosis rates by 50% by 2025.

Ruling year info

2009

President and Founder

Dr. Hildy Grossman

Main address

PO Box 844 Hidly Grossman

Brookline, MA 02446 USA

Show more contact info

EIN

26-3303949

NTEE code info

Cancer Research (H30)

Fund Raising and/or Fund Distribution (H12)

Lung (H45)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Every 3.3 minutes someone dies of lung cancer in the US. It’s the #1 cancer killer--more than breast, ovarian, uterine, pancreatic, and colon cancer combined. Lung Cancer has the least federal research funding despite the disproportionate death rate, and there is a stigma related to smoking despite the fact that anyone with lungs can get lung cancer. We support efforts to find diagnostic methods to detect lung cancer at its earliest stage when it is most treatable.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Spring 'Sing Out!' Concert

Each year we organize the Spring "Sing Out!" Concert with the aim of uniting our voices to 'sing out' and 'speak out' in efforts to raise lung cancer awareness and promote funding for early detection research. The theme of the concert varies annually, but it always includes the voices of doctors, survivors, patient advocates, and the community at large.

Population(s) Served
Adults
People with diseases and illnesses

Renowned performers gather from around New England to use music as a vehicle to raise awareness about lung cancer. This event offers collaborative celebration of life, scientific strides, and survival. We usually include a variety of speakers including doctors, patient advocates, and survivors. We also bestow our annual Fan Award to an individual or organization whose efforts have shown exceptional leadership in the area of lung cancer.

Population(s) Served
Adults

“Backstage @ Upstage” is an interview podcast series hosted by Hildy Grossman with Jordan Rich talking with guests from the areas of medical research, performing arts, patient community & public advocacy about the experience, treatment and research of lung cancer

Population(s) Served
People with diseases and illnesses
Adults

Our blog "The Voice" features educational articles exploring patients, treatments, research, care and news

Population(s) Served
Adults
Adults
People with diseases and illnesses
Adults
People with diseases and illnesses

The Fan Awards are an annual recognition of an individual or organization showing exceptional leadership in the area of lung cancer

Population(s) Served
Adults
People with diseases and illnesses

Upstage Lung Cancer is proud to have funded over $3.6 million in early detection lung cancer research. Research matters. It saves lives. We support diverse and exciting investigations that use the newest methods to develop tools to detect lung cancer at the earliest possible stage using by way of urine, blood, sputum and breath. By creating non-invasive and easily accessible means for early detection, the potential can increase dramatically to transform lung cancer from the #1 cancer killer to a chronic and manageable disease.

Population(s) Served
People with diseases and illnesses
People with diseases and illnesses

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Cumulative Funding Directed to Early Detection Research for Lung Cancer (since inception)

This metric is no longer tracked.
Totals By Year
Population(s) Served

Chronically ill people, Terminally ill people

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

Since its inception in 2007, Upstage Lung Cancer has directed more than $3.6 million to cutting-edge research into early detection of lung cancer

Number of Podcast Followers

This metric is no longer tracked.
Totals By Year
Population(s) Served

Chronically ill people, Terminally ill people

Related Program

Video Podcast "Backstage @ Upstage"

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Our monthly podcasts cover a wide range of topics, making the audience for any single broadcast dependent on the topic, while overall our return audience of followers has grown

Facebook Reach

This metric is no longer tracked.
Totals By Year
Population(s) Served

Chronically ill people, Terminally ill people

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

A new metric in 2022

Number of TikTok Video Views

This metric is no longer tracked.
Totals By Year
Population(s) Served

Chronically ill people, Terminally ill people

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

• Dedication to impacting lung cancer by creating awareness and educating the public, reducing the stigma, and raising research funds for early detection. We are unique in using music and the performing arts to accomplish our mission.

•Our vision is to advocate for early detection in lung cancer. Our goal is to help increase lung cancer detection and diagnosis rates by 50% by 2025.

•Development of educational materials to raise awareness and encourage involvement and activism

• Fortification of partnerships with other major lung cancer organizations

• To date, we have funded over $3 million in lung cancer research via grants, sponsorships, donations, performances, and educational outreach

• We continue to partner with LUNGevity Foundation, Addario Lung Cancer Medical Institute, Koch Institute for Integrative Cancer Research and Dana-Farber Cancer Institute to collaborate on the most cutting-edge early detection research

• Our semiannual performances include efforts to increase education and awareness as well as reduce stigma and raise funds to support new lung cancer research. They always include presentations from survivors, patient advocates, doctors, and/or scientists on the cutting edge of lung cancer studies.
outstanding early detection research

• Active presence on six social media platforms and monthly podcasts on educational topics along with supporting blog content makes our audience well informed while also engaged

• Our annual Fan Award recognizes a leader in the lung cancer community. Past winners are Bonnie Addario, Jerry Remy, Chris Draft and more.

• We have been an established lung cancer patient advocate nonprofit since 2007. We are a volunteer-run 501(c)(3) organization that organizes and produces benefit concerts, in which we have a returning company of celebrities and professional performers dedicated to the success of this project. Each performance includes speakers and educational information about lung cancer and awareness of its impact.

• We are well known and collaborative within the LungCAN network of 24 Lung Cancer organizations

• We have a consistent track record of gaining grants from major corporations including major pharmaceutical companies

• Our dedicated group of volunteers and board members makes an impact every day!

In our 22 years presenting entertainment and lung cancer information to the public, we have:

• Presented over 35 performances featuring performers in music, dance, and comedy, appearing alongside speakers such as lung cancer researchers, patients, and advocates

• Proudly funded over $3.6 million in cutting-edge research on early detection of lung cancer -- we have supported diverse and exciting investigations that use the newest methods to develop tools to detect lung cancer at the earliest possible stage using urine, blood, sputum and breath

• Established a monthly podcast available on all podcast platforms as well as YouTube, featuring interviews with experts and community leaders on topics ranging from screening, new treatments, disparities across populations in treatment and survival, and patient journeys

• Built an active and growing presence on social media, with regular updates and postings on Youtube, TikTok, Instagram, Twitter, Facebook and LinkedIn



Financials

UPSTAGE LUNG CANCER INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

UPSTAGE LUNG CANCER INC

Board of directors
as of 05/23/2023
SOURCE: Self-reported by organization
Board chair

Dr. Hildy Grossman

Nancy Swan

Dale Appel

Anna Muse

Jessica Newman

Marcia Barron

Benjamin Glickman

Patricia Hardwick

Sumati Ram-Mohan

G. Peter Macon

Donald Warnock

Susannah Hill

Claire Youkilis Shafer

Tara Balan

Karen Hamel

Niccole Schaible

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 2/27/2022

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Gender identity
Female, Not transgender

Race & ethnicity

No data

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

No data