UPSTAGE LUNG CANCER INC

A unique nonprofit using the performing arts to raise lung cancer awareness and fund early detection research

Brookline, MA   |  www.upstagelungcancer.org

Mission

Upstage Lung Cancer is a unique nonprofit that uses the performing arts to raise lung cancer awareness and fund early detection research. Our vision is to advocate for early detection in lung cancer. Our goal is to help increase lung cancer detection and diagnosis rates by 50% by 2025.

Ruling year info

2009

President and Founder

Dr. Hildy Grossman

Main address

PO Box 844 Hidly Grossman

Brookline, MA 02446 USA

Show more contact info

EIN

26-3303949

NTEE code info

Cancer Research (H30)

Fund Raising and/or Fund Distribution (H12)

Lung (H45)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

•Every 3.3 minutes someone dies of lung cancer in the US. It’s the #1 cancer killer--more than breast, ovarian, uterine, pancreatic, and colon cancer combined. •Lung Cancer has the least federal research funding despite the disproportionate death rate. •We support efforts to find diagnostic methods to detect lung cancer at its earliest stage when it is most treatable. This will save many lives.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Spring 'Sing Out!' Concert

Each year we organize the Spring "Sing Out!" Concert with the aim of uniting our voices to 'sing out' and 'speak out' in efforts to raise lung cancer awareness and promote funding for early detection research. The theme of the concert varies annually, but it always includes the voices of doctors, survivors, patient advocates, and the community at large.

Population(s) Served
Adults
People with diseases and illnesses

Renowned performers gather from around New England to use music as a vehicle to raise awareness about lung cancer. This event offers collaborative celebration of life, scientific strides, and survival. We usually include a variety of speakers including doctors, patient advocates, and survivors. We also bestow our annual Fan Award to an individual or organization whose efforts have shown exceptional leadership in the area of lung cancer.

Population(s) Served
Adults
People with diseases and illnesses

“Backstage @ Upstage” is an interview podcast series hosted by Hildy Grossman with Jordan Rich talking with guests from the areas of medical research, performing arts, patient community & public advocacy about the experience, treatment and research of lung cancer

Population(s) Served
People with diseases and illnesses
Adults

Our blog "The Voice" features educational articles exploring patients, treatments, research, care and news

Population(s) Served
Adults
Adults
People with diseases and illnesses
Adults
People with diseases and illnesses

The Fan Awards are an annual recognition of an individual or organization showing exceptional leadership in the area of lung cancer

Population(s) Served
Adults
People with diseases and illnesses

Where we work

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

•Dedication to impacting lung cancer by creating awareness and educating the public, reducing the stigma and shame, and raising research funds for early detection. We are unique in using musical and musical theater events to accomplish our mission.
•A vision to advocate for early detection in lung cancer. Our goal is to help increase lung cancer detection and diagnosis rates by 50% by 2025.
•Development of educational materials to raise awareness and encourage involvement and activism
• Fortification of partnerships with other major lung cancer organizations

•To date, we have funded almost $3 million in lung cancer research via grants, sponsorships, donations, benefit concerts, and other means
•We continue to partner with LUNGevity Foundation, Addario Lung Cancer Medical Institute, Koch Institute for Integrative Cancer Research and Dana-Farber Cancer Institute to collaborate on the most cutting-edge early detection research
•Our bi-annual concerts include efforts to increase education and awareness as well as reduce stigma and raise funds to support new lung cancer research. They always include presentations from survivors, patient advocates, doctors, and/or scientists on the cutting edge of lung cancer studies.
outstanding early detection research
•Active social media presence and updated website that is soon to include a blog generated by ULC volunteers and board members

•12 years as an established lung cancer patient advocate nonprofit who organizes and produces benefit concerts, in which we have a returning company of professional celebrities and performers dedicated to the success of this project
•Well known and collaborative within a network of 24 Lung Cancer organizations (LUNGcan)
•We have consistent track record of gaining grants from major coroporations including major pharma companies
•Dedicated group of volunteers and board members

- In 2014, we have received funding from: Lily Pharmaceuticals, Pfizer Pharmaceuticals, Genentech, Google, BioMedical Modeling, and Analogic. This includes a review process to receive the funding.
- ULC is receiving human resources from LUNGevity in the following areas: social media, fundraising, social media and outreach
- Two major lung organizations (LUNGevity and Aderio Lung Cancer Foundation) are partnering in our two major events.
- In the last three years, ULC has awarded a two year,$600K grant to Rebecca Heist at Mass General Hospital looking for new targets for innovative targeted therapies; a one year, $200K grant to Feng Jiang, MD, PhD, University of Maryland, Baltimore for developing a method of early detection using saliva; and an $8K grant to ALCMI Young Lung Cancer Genome project.

Financials

UPSTAGE LUNG CANCER INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Compare nonprofit financials to similar organizations

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UPSTAGE LUNG CANCER INC

Board of directors
as of 3/9/2022
SOURCE: Self-reported by organization
Board chair

Dr. Hildy Grossman

Nancy Swan

Dale Appel

Anna Muse

Jessica Newman

Marcia Barron

Benjamin Glickman

Patricia Hardwick

Sumati Ram-Mohan

G. Peter Macon

Donald Warnock

Susannah Hill

Claire Youkilis Shafer

Tara Balan

Cheryl Davis

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 02/27/2022

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Gender identity
Female, Not transgender (cisgender)

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data