Wake Up Narcolepsy, Inc.

Worcester, MA   |  www.wakeupnarcolepsy.org

Mission

Wake Up Narcolepsy is a 501(c)(3) not-for-profit organization dedicated to supporting narcolepsy awareness and research to find a cure. WUN carries out its mission by: Providing funding to accelerate a cure for narcolepsy. Increasing awareness of narcolepsy. Decreasing time-lapse from symptom onset to proper diagnosis. Providing supportive resources for people with narcolepsy and their families.

Ruling year info

2009

Principal Officer

Mrs. Claire Crisp

Main address

PO Box 60293

Worcester, MA 01606 USA

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EIN

26-3768711

NTEE code info

Specifically Named Diseases Research (H80)

Patient Services - Entertainment, Recreation (E86)

Nonmonetary Support N.E.C. (E19)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Research Funding

Population(s) Served
Adults

Reaching out to the public, medical community, educators and people living with narcolepsy and their families.

Population(s) Served
Adults

Where we work

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Financials

Wake Up Narcolepsy, Inc.
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Wake Up Narcolepsy, Inc.

Board of directors
as of 3/22/2021
SOURCE: Self-reported by organization
Board chair

Mrs. Monica Gow

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No