SILVER2023

Wake Up Narcolepsy, Inc.

From Shadows To Light

Worcester, MA   |  www.wakeupnarcolepsy.org

Mission

Wake Up Narcolepsy (WUN) is a 501(c)(3) nonprofit organization dedicated to driving Narcolepsy awareness, education and research towards improved treatments and a cure. WUN carries out its mission by providing funding to accelerate a cure for Narcolepsy, increasing awareness of Narcolepsy, decreasing time-lapse from symptom onset to proper diagnosis and providing supportive resources for people with Narcolepsy and their families.

Ruling year info

2009

Principal Officer

Monica Gow

Main address

PO Box 60293

Worcester, MA 01606 USA

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EIN

26-3768711

NTEE code info

Specifically Named Diseases Research (H80)

Patient Services - Entertainment, Recreation (E86)

Nonmonetary Support N.E.C. (E19)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Research Funding

WUN has awarded $1.2 million dollars to narcolepsy research. We award both restricted and unrestricted grants each year to investigators in the narcolepsy space.

Population(s) Served
Researchers

Outreach to the public, medical community, educators and people living with narcolepsy and their families.

Population(s) Served
Adults
Children and youth
Caregivers
Parents

Where we work

Videos

Financials

Wake Up Narcolepsy, Inc.
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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Wake Up Narcolepsy, Inc.

Board of directors
as of 08/14/2023
SOURCE: Self-reported by organization
Board chair

Mrs. Mary Beth Guckian

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable

Organizational demographics

SOURCE: Self-reported; last updated 12/20/2022
info Candid has made improvements to the race and ethnicity options.

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Gender identity
Female

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data