1P36 Deletion Support & Awareness
Mission
1p36 Deletion Support & Awareness mission is to help individuals affected by chromosome 1p36 abnormalities overcome the obstacles they face to be able to lead healthy, happy and productive lives. We do this by providing support and education to their families and increasing awareness of chromosome 1p36 abnormalities in the public and medical community.
Ruling year
2009
President
Ken Shirtcliff
Main address
906 NE Greenwood Ave Ste 1
Bend, OR 97701 USA
EIN
26-4411797
NTEE code
Alliance/Advocacy Organizations (G01)
Birth Defects (G20)
IRS filing requirement
This organization is required to file an IRS Form 990-N.
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Communication
Programs and results
What we aim to solve
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
1p36 Annual Conference
1p36 Deletion Support & Awareness puts on an annual conference for parents, family members and caregivers. We also encourage physicians, therapists, teachers and researchers to attend who want to find out more about 1p36 Deletion Syndrome.
Where we work
External reviews
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
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Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
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1P36 Deletion Support & Awareness
Board of directorsas of 11/15/2018
Ken Shirtcliff
No Affiliation
Ken Shirtcliff
Karen Bess
Jennifer Winiecki
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