1P36 Deletion Support & Awareness

Bend, OR   |  www.1p36dsa.org

Mission

1p36 Deletion Support & Awareness mission is to help individuals affected by chromosome 1p36 abnormalities overcome the obstacles they face to be able to lead healthy, happy and productive lives.  We do this by providing support and education to their families and increasing awareness of chromosome 1p36 abnormalities in the public and medical community.

Ruling year info

2009

President

Ken Shirtcliff

Main address

906 NE Greenwood Ave Ste 1

Bend, OR 97701 USA

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EIN

26-4411797

NTEE code info

Alliance/Advocacy Organizations (G01)

Birth Defects (G20)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

1p36 Annual Conference

1p36 Deletion Support & Awareness puts on an annual conference for parents, family members and caregivers. We also encourage physicians, therapists, teachers and researchers to attend who want to find out more about 1p36 Deletion Syndrome.

Population(s) Served

Where we work

Financials

1P36 Deletion Support & Awareness
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Operations

The people, governance practices, and partners that make the organization tick.

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1P36 Deletion Support & Awareness

Board of directors
as of 11/15/2018
SOURCE: Self-reported by organization
Board chair

Ken Shirtcliff

No Affiliation

Ken Shirtcliff

Karen Bess

Jennifer Winiecki