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AUTISM SCIENCE FOUNDATION

Scarsdale, NY   |  https://autismsciencefoundation.org

Mission

The Autism Science Foundation provides funds to scientists and organizations conducting and disseminating autism research. We also serve to increase societal awareness of autism spectrum disorders and the needs of families raising children with autism.

Ruling year info

2009

President

Alison Singer

Main address

3 Continental Road

Scarsdale, NY 10583 USA

Show more contact info

EIN

26-4522309

NTEE code info

Autism (H84)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

The Autism Science Foundation believes that outstanding autism research is the greatest gift we can offer our families. We aim to achieve that goal by providing funding and other assistance to scientists and organizations conducting, facilitating, publicizing and disseminating innovative autism research that could make a measurable difference in the lives of people with autism. ASF also aims to educates the public about the most important issues in autism. The organization’s annual Day of Learning brings together the autism community for a TED-style science conference featuring thoughtful talks on critical issues by some of the top autism researchers in the field. ASF also provides additional support to families year-round through a variety of resources and events.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Pre- and Postdoctoral Training Awards & Medical Student Gap Year Research Training Awards

ASF provides funds for graduate students, medical students and postdoctoral fellows interested in
pursuing careers in basic and clinical research relevant to autism spectrum disorders (ASD).

Population(s) Served
Students
Academics

ASF provides summer stipends for highly
qualified undergraduates interested in pursuing basic and clinical research relevant to
autism spectrum disorders.

Population(s) Served
Students

ASF provides these grants designed to expand the scope, speed the progress or increase the efficiency and improve final product dissemination of active autism research grants.

Population(s) Served
Academics

The Autism Sisters Project is an exciting opportunity for unaffected sisters of individuals with autism to participate in research alongside their sibling(s) with autism, to help researchers understand the female protective effect and why autism is expressed differently in males than in females. The goal is to build a large genetic database that researchers can use to explore this phenomenon and discover how the protective factor can be harnessed to help people with autism of both sexes.

Population(s) Served
People with disabilities
Women and girls

The BSRC, or Baby Siblings Research Consortium, is a network of over 20 highly productive research groups in the United States, Canada, Israel and the United Kingdom. All share a common goal of understanding the very earliest behavioral and biological features of autism spectrum disorder (ASD) in order to improve early autism detection, diagnosis and treatment.

Population(s) Served
People with disabilities
Children and youth

Since 2020, ASF has provided funds to early career researchers looking to better understand the impact of the COVID-19 pandemic on the autism community. Their work is meant to provide insight into the biological, educational, psychological and psychiatric effects that may impact the immediate and longer-term functioning of people on the autism spectrum.

Population(s) Served

ASF Chief Science Officer Dr. Alycia Halladay presents the latest autism research news in this engaging and informative weekly podcast.

Population(s) Served

ASF partners with AGENDA (Alliance for Genetic Etiologies in Neurodevelopmental Disorders and Autism) to improve outcomes for individuals with all forms of autism by fostering a genetics-first approach to autism research.

Population(s) Served
Children
People with disabilities
Adults
Researchers
Students
Children
People with disabilities
Adults
Researchers
Students
Children
People with disabilities
Adults
Researchers
Students

Where we work

Awards

Number One Startup in "Disabilities" Category 2011

Guidestar

Top-Rated Nonprofit 2013

Great Nonprofits

Top-Rated Nonprofit 2014

Great Nonprofits

Top-Rated Nonprofit 2015

Great Nonprofits

Top-Rated Nonprofit 2016

Great Nonprofits

Top-Rated Nonprofit 2017

Great Nonprofits

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The Autism Science Foundation's mission is to support autism research by providing funding and other assistance to scientists and organizations conducting, facilitating, publicizing and disseminating autism research. The organization also provides information about autism to the general public and serves to increase awareness of autism spectrum disorders and the needs of individuals and families affected by autism.

Our goal is to fund all the autism research that can provide answers for our families. We focus on projects that provide useful, actionable information.

Our grant funding is targeted at younger scientists, including pre-doctoral students, post-doctoral fellows and early-career tenured faculty (assistant professor level), enabling them to collect pilot data in new areas of investigation. Many of our grantees have leveraged their ASF funding into much larger grants from the National Institutes of Health and other government agencies.

ASF conducts workshops and seminars around the country to share the latest autism research with stakeholders, and to foster communication between scientists and families. ASF also provides scholarships to parents, individuals with autism, special education teachers, healthcare professionals and other stakeholders to enable to them to participate in the International Meeting for Autism Research.

ASF was founded on relationships between scientists and families. These relationships allow both parties to benefit from the knowledge that the other brings to the table. Working together allows us to increase the pace of research and get answers faster.

Awarded over $540,000 in autism research funding for predocs, postdocs, undergrads and collaborative consortium activities, including the Autism Sisters Projects.

Built a new online tool to help researchers study the single-gene forms of autism.

Registered over 1,500 people for the Autism BrainNet and communicated with families across the US about the importance of postmortem brain tissue donation.

Disseminated a new policy brief on employment needs for people with autism; presented these data at the International Society for Autism Research Meeting.

Completed an internal assessment showing our funded grantees were 80% more likely to remain active autism researchers than those investigators who applied for but didn't receive funding.

Raised a record $350,000 at our annual Ride FAR bike event.

Supported an expanding Baby Siblings Research Consortium, enabling the group to better understand early features of autism and develop biomarkers to diagnose autism before behavioral symptoms emerge.

Hosted our fifth annual Day of Learning, bringing scientists and families together to discuss key autism topics, including sex and gender differences, diet, medical marijuana and adult outcomes. In 2019, we added a second Day of Learning event in San Francisco!

Financials

AUTISM SCIENCE FOUNDATION
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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AUTISM SCIENCE FOUNDATION

Board of directors
as of 02/22/2022
SOURCE: Self-reported by organization
Board chair

Scott Badesch

Alison Singer

Autism Science Foundation

Paul Offit

Children's Hospital of Philadelphia

Michael Lewis

JAMS

Bryan Harkins

CBOE

Jonah Zimilies

words Bookstore

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 1/18/2022

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data