SILVER2023

22q Texas, Inc.

Changing Lives. Embracing Hope. Raising Awareness.

aka 22Q Texas, Inc.   |   Dallas, TX   |  www.22qtexas.org

Mission

Our mission at 22Q Texas is to provide support and resources to individuals with 22q11.2 chromosome differences including 22q11.2 deletion (aka Di George/VCFS, etc.), 22q11.2 duplication & 22q11.2 distal deletion, their families, professionals, and the community in Texas. Because of these closely-related conditions, we choose to use the inclusive nomenclature, "22q".

Ruling year info

2009

President

Suzi Beall Shaw

Vice President

Susan Reilley

Main address

7710 El Pastel Dr

Dallas, TX 75248-3121 USA

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Formerly known as

VCFS Texas, Inc.

EIN

26-4638243

NTEE code info

Birth Defects (G20)

Disabled Persons' Rights (R23)

Recreational and Sporting Camps (Day, Overnight, etc.) (N20)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

22q Texas Annual Family Camp & Retreat

22q Texas hosts an annual family Camp/Retreat for families affected by 22q11.2 chromosome disorders. The first retreat was in 2009.
The retreat brings families and professionals together in a fun and nurturing environment to learn more about the disorders and treatments. The weekend includes informative sessions plus opportunities to meet with and share information and experiences with other families.
Kids participate in fun, challenging activities, building independence & confidence by doing things they thought were impossible. Parents are empowered, educated and connected with a strong support system. Families bond together and leave with renewed strength and hope.
It is a fun-filled camp experience for all ages! Activities include archery, basketball, climbing wall, games, rope courses , animal education, zip lines, campfire and more!
All meals and activities are included, with families attending at little or no cost.

Population(s) Served
People with disabilities
Families
Caregivers
Parents
Children and youth

22q Texas board members facilitate a monthly online support and chat group open to all members of the 22q community. We meet on the 22nd of each month at 8:30pm CST, and topics often depend on what the community suggests. Sometimes we just visit and enjoy socializing, and other times we address challenges and issues that families are experiencing.

Population(s) Served
Caregivers
Families
People with disabilities
People with diseases and illnesses
Adults

Where we work

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We share the feedback we received with the people we serve, We tell the people who gave us feedback how we acted on their feedback

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback

Financials

22q Texas, Inc.
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Operations

The people, governance practices, and partners that make the organization tick.

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

22q Texas, Inc.

Board of directors
as of 11/21/2023
SOURCE: Self-reported by organization
Board co-chair

Suzi Beall Shaw

22q Texas, Inc


Board co-chair

Susan Reilly

22q Texas, Inc

Krystal Torres

Cheryl King

Deborah Trejo, J.D.

Sarah Knerr

Kimberly Sama

T'Wana Jones-Wilson

Jennifer Barrow

Amanda Fleetwood

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Not applicable
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Not applicable
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Not applicable
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable