OPEN MEDICINE FOUNDATION

Leading Research. Delivering Hope.

aka OMF   |   Agoura Hills, CA   |  www.OMF.ngo

Mission

The Open Medicine Foundation (OMF) invests in accelerating collaborative medical research to find effective treatments and diagnostic markers for Myalgic Encephalomyelits / Chronic Fatigue Syndrome (ME/CFS), Autism, Fibromyalgia, chronic Lyme and other chronic complex diseases.

The OMF keeps the community informed by disseminating information on current research projects and results of the funded research.

The OMF brings together thought leaders from around the world to brainstorm and participate in targeted initiatives to tackle difficult-to-treat disease.

The OMF encourages and engages the patient community to take an active role in their health care.

This medical research will benefit patients all around the world.

Ruling year info

2013

CEO/President

Linda Tannenbaum

Main address

29302 Laro Drive

Agoura Hills, CA 91301 USA

Show more contact info

EIN

26-4712664

NTEE code info

Fund Raising and/or Fund Distribution (H12)

Specifically Named Diseases (G80)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Find a diagnostic tool, a cure and prevention of ME/CFS and similar chronic complex diseases, including Fibromyalgia, Chronic Lyme, Gulf War Illness, Long COVID and others. Educate physicians and school administrations regarding these diseases.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

End ME/CFS Project

A collaborative research model:
The End ME/CFS Project was founded on the idea that a comprehensive, interdisciplinary effort is needed to produce breakthroughs in our understanding of ME/CFS and neuro-immune diseases. Our goal is to connect the best experts, from both inside and outside the field, through openness and information sharing.

Population(s) Served
Adults

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of research studies conducted

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Related Program

End ME/CFS Project

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of grants and research funding awarded to the institution

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Related Program

End ME/CFS Project

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Fast-tracking revolutionary research for ME/CFS and related chronic complex diseases (including Fibromyalgia, chronic Lyme, Autism). Facilitates and supports collaborative medical research to find effective treatments and diagnostic markers for difficult to treat illnesses.
Keeps the community informed by disseminating information on current research projects and results.
Brings together thought leaders from around the world to brainstorm and participate in targeted initiatives.
Encourages and engages the patient community to take an active role in their health care.

Open Medicine Foundation (OMF) raises funds from personal donations, foundations and crowdfunding.

Open Medicine Foundation (OMF) has raised over $30 million since 2012 for:
19 member world leader scientific advisory board: 2 Nobel Laureates, 6 members of the National Academy of Sciences
Other top researchers in working groups

Open Medicine Foundation (OMF) has raised over $30 million since 2012 for:
Established 5 ME/CFS Collaborative Research Centers:
Stanford
Harvard
Uppsala
University of Montreal
University of Melbourne

We are using the results of our studies and many others to lead us to to a cure, treatments, diagnostic tools and the ultimate goal of prevention.

Financials

OPEN MEDICINE FOUNDATION
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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OPEN MEDICINE FOUNDATION

Board of directors
as of 5/21/2021
SOURCE: Self-reported by organization
Board chair

Linda Tannenbaum

OMF

Term: 2012 -

Patti Linsley

Crescent Capital Group

Richard Rodgers, Emeritis

University of California, San Francisco

Linda Tannenbaum

Open Medicine Foundation

Kimberly Hicks

Independent Consultant

Deborah Rose

Private Practice

Jo Morin

Social Media Expert

Hany Zayed

PhD

Carol Jensen

FlatIron

Katie Bach

Independent Consultant

Shai Held

Rabbi

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes

Organizational demographics

SOURCE: Self-reported; last updated 05/21/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data