Health—General & Rehabilitative

Coalition for Compassionate Care of California

aka CCCC   |   Sacramento, CA   |  CoalitionCCC.org

Mission

Our mission is to promote high quality, compassionate care for all Californians who are seriously ill or approaching the end of life.

Ruling year info

2010

Chief Executive Officer

Ms. Judy Thomas JD

Main address

2530 River Plaza Drive, Suite 110

Sacramento, CA 95833 USA

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Formerly known as

Children's Hospice & Palliative Care Coalition

EIN

27-0419836

Cause area (NTEE code) info

Alliance/Advocacy Organizations (E01)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

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Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Advance Care Planning

CCCC leads efforts to train healthcare professionals on advance care planning and help providers develop the skills they need to talk with seriously-ill patients and families facing decisions about goals of care at the end of life.

We work with healthcare organizations across the state to identify health care planning needs and to design programs to meet those needs. We provide consulting services, resources, and training for healthcare professionals and organizations.

CCCC also works with local coalitions throughout the state to engage the public in advance care planning. We provide resources for the public regarding planning for end of life care.

Population(s) Served
Adults
Aging/Elderly/Senior Citizens

As the voice of palliative care in California, we incubate and disseminate models and ideas to improve access to quality care for all people. We bring together people and organizations with a passion and common interest in increasing access to community-based palliative care. We host conference calls, webinars, and in-person learning to spur growth and expansion of palliative care across the continuum of care.

Population(s) Served
General Public/Unspecified
Aging/Elderly/Senior Citizens

We partner with state and community leaders to develop programs that meet the important day-to-day needs of kids and their families. We create opportunities for doctors, nurses, families and community leaders to talk together about the issues that matter most, and work together to create collaborative networks to ensure that when children go home from the hospital they and their families have access to the care they need to be safe and comfortable at home. The programs we create and policies we advocate for not only benefit children, but also the families who love and care for them.

Population(s) Served
Children and Youth (infants - 19 years.)
Young Adults (20-25 years)

We are proud to be the home of California's Physicians Orders for Life Sustaining Treatment (POLST). POLST (Physician Orders for Life-Sustaining Treatment) is a medical order signed by both a patient and physician, nurse practitioner or physician assistant that specifies the types of medical treatment a patient wishes to receive toward the end of life. POLST is a tool that encourages conversation between providers and patients about their end-of-life treatment options, and helps patients make more informed decisions and communicate their wishes clearly. As a result, POLST can prevent unwanted or medically ineffective treatment, reduce patient and family suffering, and help ensure that patient wishes are followed.



CCCC provides community outreach programs, trainings and resources to educate healthcare providers and the public about the POLST form.

Population(s) Served
General Public/Unspecified
Aging/Elderly/Senior Citizens

Where we work

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Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of conference attendees

This metric is no longer tracked.
Totals By Year

Number of clients participating in educational programs

This metric is no longer tracked.
Totals By Year
Context Notes

participants in CCCC's educational programs, including in-person workshops and webinars

Number of list subscribers

This metric is no longer tracked.
Totals By Year

Charting impact

SOURCE: Self-reported by organization

Five powerful questions that require reflection about what really matters - results.

What is the organization aiming to accomplish?

Our vision is to transform care during serious illness and towards the end of life in California so that medical care is aligned with an individual's preferences -- people get the care they need and no less, and the care they want and no more. We envision that, in ten years, advance care planning discussions will happen seamlessly and continually over the course of a person's life span, appropriately triggered by life events and changes in medical condition. <br/><br/>The demand for high-quality palliative care will be widespread: conversations about values and goals regarding healthcare will be a normal part of communities. From the time of diagnosis through advanced stages of illness, patients and their families will receive the information they need to make fully informed decisions, have the opportunity to document their treatment wishes, and receive care consistent with these wishes. <br/><br/>The supply of providers and systems capable of supporting patients and families though advanced illness and end-of-life care will be robust. Healthcare professionals will be trained in conversations about goals of care, will feel comfortable talking with patients about treatment preferences, and will skillfully guide patients and families to receive appropriate care. Healthcare organizations will establish systems to make conversations about treatment goals and options a reliable, consistent part of care and will ensure information about patient preferences is easily accessible when needed. Public policy and provider reimbursement will support these conversations and the ability to share documentation of preferences across the care continuum.

We are working to increase demand for patient-centered care during serious illness through public education and engagement and patient empowerment. <br/><br/>We are increasing supply of healthcare providers and organizations prepared to support individuals and families throughout the course of their lives by 1) improving clinicians' approaches to communicating with patients and families by changing attitudes, increasing knowledge, and building skills; and 2) improving organizations' workflows and systems for eliciting, documenting, and honoring patient preferences. <br/><br/>We are increasing the capacity of the California network to improve end-of-life care.

CCCC has a proven track record of leading large-scale, multi-organizational initiatives. A fundamental part of our approach to improving end-of-life care is building and sustaining robust partnerships with the full spectrum of organizations that touch or impact people with serious illnesses and their families. We continue to build on this history of partnership to achieve our goals. <br/><br/>California has always been an innovator in end-of-life care, and CCCC is building the foundation to make real change happen in many ways:<br/><br/>•We provide our expertise, tools and resources to families, patients, policy makers and healthcare providers to help ensure that all Californians receive high-quality palliative and end-of-life care.<br/><br/>•We lead efforts to train healthcare professionals about Physician Orders for Life-Sustaining Treatment (POLST), as well as cultural diversity and end-of-life care in California. We help them develop the skills they need to talk with seriously-ill patients and families facing decisions about goals of care.<br/><br/>•We work with and support local coalitions throughout the state that provide support and education to healthcare providers and those facing treatment and care decisions.<br/><br/>•We bring together people with a passion for increasing access to palliative care to spark growth of community-based palliative care throughout California.

We will know we are making progress by tracking the rates of participation in our programs, such as the number of healthcare providers who have received training, the number of pieces of legislation passed, the number of organizations successfully implementing advance care planning systems, and so on.

Recent accomplishments include the following: <br/>o Educated more than 40 individuals on how to train others to present on advance care planning or facilitate advance care planning conversations.<br/><br/>o Worked with local initiatives in Santa Cruz and Sonoma Counties to increase awareness of advance care planning among their local Latino population.<br/><br/>o Supported the West Los Angeles coalition in efforts to engage the homeless population in advance care planning.<br/><br/>o Sponsored two POLST-related pieces of legislation: AB 637, which would allow nurse practitioners and physician assistants, under the supervision of a physician and within their scope of practice, to sign POLST forms; and SB 19, which would establish an electronic POLST registry operated by the CA Department of Health & Human Services.<br/><br/>o Trained 73 healthcare professionals how to teach others to have compassionate, quality conversations with patients about goals of care and POLST.<br/><br/>o Produced a white paper that examines the conservatorship process for people with developmental disabilities related to healthcare decision making and includes policy recommendations. <br/><br/>o Hosted monthly webinars to provide education on a variety of palliative care topics. Past webinars have focused on topics as diverse as prognosis, community-based palliative care, telemedicine, billing, Alzheimer's and dementia, and the roles of specialists in the palliative care setting.<br/><br/>o Convened CCCC's 7th annual Palliative Care Summit in Sacramento that was attended by more than 300 healthcare professionals who want to spur growth and expansion palliative care across the continuum of care in California.<br/><br/>o Partnered with the CSU Institute for Palliative Medicine to develop an in-person and online palliative care curriculum for insurance company case managers.<br/><br/>o Actively participated in stakeholder workgroups and provided written recommendations to the DHCS to assist the Department in enacting the provisions of SB 1004, which requires Medi-Cal to establish standards and provide technical assistance for Medi-Cal managed care plans to ensure delivery of palliative care services. <br/><br/>o Hosted two seminars for healthcare professionals to help them explore their cultural biases and gain insight on the effect of culture and ethnicity on end-of-life care. <br/><br/>o Co-authored the California HealthCare Foundation report Gather Round: Understanding How Culture Frames End-of-Life Choices for Patients and Families, based on qualitative interviews with 24 sets of patients and their families who have experienced serious illness.<br/><br/>o Published an online “toolkit" to assist local coalitions in outreach to faith leaders and hosted introductory seminars in their communities about advance care planning and palliative care.

Financials

Coalition for Compassionate Care of California
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Operations

The people, governance practices, and partners that make the organization tick.

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This organization has no recorded board members.

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Keywords

advance care planning, palliative care, serious illness, terminal illness, advocacy, policy, collaborative, coalition, healthcare, end of life care