Cooper Trooper Foundation

Childhood Cancer Research and Sibling Support

Franklin, TN   |  www.coopertrooper.org

Mission

The Cooper Trooper Foundation's mission is to support the fight against childhood cancer in two tangible ways: 1) Distribution or Caring and Courage Kits to the well siblings of children diagnosed with cancer, and 2) Financially investing in The Cooper Trooper Foundation Endowment Fund in Childhood Cancer Research, which is set up at Monroe Carell Jr. Children's Hospital at Vanderbilt.

Ruling year info

2009

Execut

Ms. Missy Cook Brookover

Main address

227 Chester Stevens Road

Franklin, TN 37067 USA

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EIN

27-0470758

NTEE code info

Cancer Research (H30)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Pumpkin Patch

The Pumpkin Patch is at the corner of Cool Springs Blvd.and Mallory Lane during October, where we have the opportunity to sell "pumpkins for a purpose".  The pumpkin patch is currently our primary financial fundraiser, and it also serves as our main outreach for hands on  community awareness & education.  During the month of October, we have access to over 10,000 people to share the story of the impact of childhood cancer on a family.  We are able to educate the community on the Cooper Trooper Foundation's mission and bring awareness to the fight to find a cure through pediatric cancer research.  Education and awareness are key to changing the long term battle of childhood cancer.

Population(s) Served
Families

CTF Courage Kits are available to any well sibling when a child is diagnosed with cancer in a family.  It can be requested through the Child Life Specialist at the hospital or via any individual on our website.  Each kit contains a Sibling Cooper Trooper t-shirt, courage medal,  "I'm a trooper" Awareness Bracelet, "Hi, My name is Jack" (a book specifically geared toward siblings of children diagnosed with a chronic illness to assist parents in helping their child deal with common emotions that arise when a sibling is diagnosed) OR an activity book/workbook geared toward older teens relating to the same areas, Journal & Pen, "Huggable Hope" stuffed duck (for younger than age 12), and a stress squeeze ball, along with informational brochures and resources for parents. All items are provided in a re-usable knapsack.

Population(s) Served
Family relationships
Young adults
Children and youth
Health

The Cooper Trooper Foundation is committed to financially funding pediatric cancer research through an endowed fund set up with Monroe Carell Jr. Children's Hospital at Vanderbilt.  Although, childhood cancer is the #1 killing disease of America's children, childhood cancer research only receives 4% of the National Cancer Institute budget and virtually no pharmaceutical research funds are allocated to childhood cancers.  The money given to the Endowment Fund is dedicated solely to pediatric cancer research for treatment and trials. The Cooper Trooper Foundation Pediatric Cancer Research Endowment Fund was established with a $100,000 financial commitment over a 5 year period.  In September 2015, this goal was met, one year in advance of the commitment deadline. As of Sept 2021, this fund has received a total of $375,000 from Cooper Trooper Foundation's fundraising efforts. Checks are presented to the hospital for this specific fund annually, and are determined by fundraising success.

Population(s) Served
Researchers
Health
People with diseases and illnesses
Children and youth

In 2018, CTF agreed to a $100,000 commitment to fund a private family infusion/treatment room at Monroe Carell Jr. Children's Hospital at Vanderbilt. The hospital is currently undergoing expansion and renovations to improve many areas of the hospital including Oncology. With this expansion, there are 10 rooms being designated as private rooms for a child to receive treatment, in which their family can be a part. Currently, clinic patients and those receiving infusion are crowded into one room together, along with other family members, and there is no privacy. This would provide the opportunity for a sick child and their family to more privacy when receiving treatment. CTF fulfilled it's $100K commitment in 2019, and while progress has been made with the expansion in the hospital, the specific infusion room with CTF name plate has not been complete due to construction holds with Covid-19.

Population(s) Served
Families
Health
Children and youth
Caregivers

Where we work

Awards

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • Who are the people you serve with your mission?

    Families and especially the siblings of children diagnosed with cancer receive a Courage Kit (a knapsack full of items tailored to the well siblings in particular), as they are often overlooked during a difficult time, when most of the attention shifts to the child with cancer. Hospital staff also use our Courage Kits as a resource for their Child Life specialists who work with families after a diagnosis.

  • How is your organization collecting feedback from the people you serve?

    Constituent (client or resident, etc.) advisory committees, Suggestion box/email, Inclusion of QR code with Courage Kit, for families to provide feedback on form on website,

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • What significant change resulted from feedback?

    After receiving feedback from both Hospital staff, as well as parents, we have determined which items need to remain in our Courage Kits, as they are most beneficial. We have also taken feedback to update and look into new items for the Courage Kits to better meet the needs of the siblings. For example, we included a book specifically geared toward older siblings and teens, for that population, while continuing to provide a different book for the younger kids that would help meet their needs in a more developmentally appropriate way.

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board, Our funders, Our community partners,

  • How has asking for feedback from the people you serve changed your relationship?

    I think they feel a greater appreciation for what they do and know that we are listening and acting on their feedback, as we are told often how the resources we are providing are making a difference.

  • Which of the following feedback practices does your organization routinely carry out?

    We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback,

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback,

Financials

Cooper Trooper Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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Cooper Trooper Foundation

Board of directors
as of 06/23/2022
SOURCE: Self-reported by organization
Board chair

Matt Benson

Molly Westmoreland

VP Human Resources Volunteer Material & Related companies

Delisa Locke

Cooper Trooper Foundation

Matt Benson

Certified Financial Planner- Wellness Financial Advisors

Josh Cook

CAT Financial

Chuka Onuh

Ann Peck

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 6/23/2022

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 06/23/2022

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.