PLATINUM2021

No Stomach For Cancer, Inc.

Supporting Research. Empowering Families

aka No Stomach For Cancer   |   Madison, WI   |  https://www.nostomachforcancer.org

Mission

The mission of No Stomach For Cancer is  to support research and unite the caring power of people worldwide affected by stomach cancer. 

We advance awareness and education about stomach cancer, including Hereditary Diffuse Gastric Cancer (HDGC), provide a support network for affected families, and support research efforts for screening, early diagnosis, treatment, and prevention of stomach cancer.  No Stomach For Cancer, Inc. is an approved 501(c)(3) nonprofit organization under the Internal Revenue Code.

Notes from the nonprofit

Periwinkle Global, a No Stomach For Cancer campaign, responds to the ongoing and critical need to bring stomach cancer to the forefront of the cancer battle. The campaign calls for increases in collaboration and advocacy by individuals, cancer organizations, research institutions, medical professionals, companies, and philanthropists to participate in stomach cancer awareness and research funding worldwide. Stomach cancer is a worldwide public health crisis and a silent killer. It is one of the deadliest cancers and the third leading cause of cancer death worldwide. Yet, awareness of the disease is shockingly low. Thus far, stomach cancer has received little media attention or research funding. We believe that collaboration and partnership will move us toward success and actively seek relationships to advance the fight against stomach cancer.

Ruling year info

2010

Executive Director

Jon Florin

Main address

PO Box 46070

Madison, WI 53744 USA

Show more contact info

Formerly known as

Chelcun Family Fund for Stomach Cancer Research

Be Strong Hearted

EIN

27-1011363

NTEE code info

Cancer (G30)

Cancer Research (H30)

Alliance/Advocacy Organizations (E01)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Periwinkle Global, a No Stomach For Cancer campaign, responds to the ongoing and critical need to bring stomach cancer to the forefront of the cancer battle. The campaign calls for increases in collaboration and advocacy by individuals, cancer organizations, research institutions, medical professionals, companies, and philanthropists to participate in stomach cancer awareness and research funding worldwide.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Education and Awareness

Education is one of our two core missions.  Our goals include:•  Helping individuals and families to recognize their risks for Stomach Cancers•  Supporting medical professionals to identify families at risk, especially for Hereditary Diffuse Gastric Cancer Syndrome (HDGC), in time for preventive actions •  Sponsoring a National Stomach Cancer Awareness Month, and creating educational programs for people to use in their communities all over the world to promote greater awareness and prevention •  Stimulating and expanding interest in genetic cancers •  Promoting family health history efforts •  Recognizing that HDGC may be under-identified, and therefore encouraging genetic counseling at every early opportunity•  Providing an online support network for those affected by stomach cancer

Population(s) Served
People with diseases and illnesses
Adults

No Stomach For Cancer is dedicated to supporting innovative research to further the understanding of stomach cancer and improve detection, treatment, and quality of life for stomach cancer patients.

Population(s) Served
People with diseases and illnesses
Adults

The motivation for creating this Alliance is to attract more attention and funding to this disease and to open lines of communication between key opinion leaders. It has been more than ten years since our Founder, Karen Chelcun-Schreiber, created this organization, and we are proud of what we have accomplished so far. However, there is a palatable sense of urgency within the patient community, and we must answer that call with big ideas and a louder voice. The next ten years may prove to be the most impactful if we can push harder for collaboration and increases in research funding.

Population(s) Served
Terminally ill people

Where we work

Affiliations & memberships

GI Cancers Alliance 2016

Videos

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of community events or trainings held and attendance

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, Terminally ill people, Researchers, Students, Teachers

Related Program

Education, Prevention, Research

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

The Spotlight on Stomach Cancer is a unique opportunity for those in the stomach cancer community, the medical community, and the general public to come together to learn more about stomach cancer

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Advance awareness and education about stomach cancer, including Hereditary Diffuse Gastric Cancer (HDGC)

Establish and maintain a network of support for affected families

Support research efforts for screening, early detection, treatment and prevention of stomach cancer

Sustain a strong and high performing organization

The 1-2 year plan is to further develop our functioning board to facilitate the changes needed to strengthen our organization. We are also focused on improving our face to the world. Our website serves as our global communication tool and a primary resource for information, awareness, support to patients, and connection people worldwide. Enhancements to the site, including language translation, will help us to further our reach and our connections around the globe.

Our long-term plan is to further establish NSFC as the global thought leader for the stomach (a.k.a. gastric) cancer community through continual development of educational materials, research efforts, prevention and treatment. Consistent development of our programs and services will allow us to accomplish our mission and create the top-of-mind awareness that is necessary to save lives.

We have a capable, and dedicated board of directors supported by an expert scientific advisory council.

May 2015: NSFC grants $25,000 to Co-Principal Investigator(s) and applicants, Drs. Seruca, Dr. Paredes and Dr. Sanches in partnership with the Institute of Molecular Pathology and Immunology of the University of Porto (IPATIMUP). They will continue to leverage study findings through IPATIMUP. The project name is " Today's present, tomorrow's future on the study of germline E-cadherin missense mutations."

July 2014: Awards $100,000 in stomach cancer research grants. The first research grant will support Dr. David Huntsman from the University of British Columbia and Dr. Carla Oliveira from IPATIMUP, University of Porto, Porto, Portugal. Dr. Huntsman and Dr. Oliveira will research the role of how the CDH1 gene functions in relation to the development of Hereditary Diffuse Gastric Cancer (HDGC). Drs. Huntsman and Oliveira intend to expand the knowledge base by identifying more variants of CDH1 and pinpoint additional genes that may play some role in the development of HDGC and other forms of gastric cancer.

The second research grant will support Dr. Luis Carvajal Carmona, from the University of California at Davis, as he researches the causes of familial stomach cancer through DNA sequencing. The current genetic test for familial stomach cancer is only beneficial for less than half of families, and the genetic cause of the remaining cases is unknown. To help the families in which the genetic test does not predict cancer risk, his research will focus on families from around the world for whom there is no known cause of cancer
aggregation.

May 2013: Awarded a grant of $20,000 to Parry Guilford, Ph.D., Director, Center for Translational Cancer Research at University of Otago (New Zealand) towards the project “The identification of new drugs for the treatment and prevention of diffuse gastric cancer using high throughput compound screening approach." This project was co-funded by The DeGregorio Family Foundation.

Dec 2012: Awarded first research grant of $10,000 with an additional $50,000 committed to grant for a research project yet to be determined.

Nov 2012: Hosted the 1st Annual No Stomach For Cancer® Walk, the first-of-its-kind global event to raise stomach cancer awareness. United on this day were participants from more than 34 states and ten countries. Over $35,000 was raised for stomach cancer research.

Sep 2010: NSFC champions Senator Russ Feingold's (D-WI) introduction of Senate Resolution 655, co-sponsored by Senator Dick Durbin (D-IL). The resolution is passed by unanimous consent, establishing the month of November as Stomach Cancer Awareness Month®.

Sep 2010: Developed a Scientific Advisory Board comprised of researchers and gastric cancer specialists from the United States, Canada, New Zealand, and Portugal. These professionals will provide expert and comprehensive perspectives as well as guidance to No Stomach For Cancer concerning technical, medical, and research related topics.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.

  • Who are the people you serve with your mission?

    We serve stomach cancer patients and caregivers.

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • What significant change resulted from feedback?

    We implemented an instant messaging option on our primary website.

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

No Stomach For Cancer, Inc.
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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No Stomach For Cancer, Inc.

Board of directors
as of 10/25/2021
SOURCE: Self-reported by organization
Board chair

Dylan Davison

No Affiliation

Term: 2018 -

Dylan Davison

Melanie Torborg

Terri Beach

Hannah Davis

Cailyn Reilly-Knapp

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 10/25/2021
info Candid has made improvements to the race and ethnicity options.

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender (cisgender)
Sexual orientation
Heterosexual or straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

 

Sexual orientation

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 10/25/2021

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.