Educational Institutions

FOUNDATION FOR NARRATIVE INQUIRY IN BIOETHICS

aka NIB Foundation   |   St. Louis, MO   |  https://nibjournal.org/support/foundation/

Mission

The Foundation was established in 2010 to foster education and research in bioethics and related fields through publishing and other activities. The journal, Narrative Inquiry in Bioethics is published by Johns Hopkins University Press on behalf of the Foundation for Narrative Inquiry in Bioethics.

Ruling year info

2011

President

Dr. James M DuBois

Vice President

Susan G DuBois

Main address

Foundation for Narrative Inquiry in Bioethics 780 Radcliffe Avenue

St. Louis, MO 63130 USA

Show more addresses

EIN

27-1069500

Cause area (NTEE code) info

Research Institutes and/or Public Policy Analysis (B05)

Alliance/Advocacy Organizations (H01)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

The Foundation for Narrative Inquiry in Bioethics (NIB Foundation hereafter) addresses the following needs: > Patients, family members, and healthcare workers need a forum to share their experiences and ideas for improving the health system and healthcare > Scholars and leaders need a forum to explore practical ways of improving health system and healthcare > Healthcare workers and students need education on ethical and social issues that takes into account the perspectives of patients, family members, and peers > Policy makers and leaders in healthcare need to hear from stakeholders and leading scholars how better to serve the needs of those directly affected by health policies and practices

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Narrative Inquiry in Bioethics: A Journal of Qualitative Research

Narrative Inquiry in Bioethics: A Journal of Qualitative Research (NIB) provides a forum for exploring current issues in bioethics through the publication and analysis of narrative symposia (personal stories and commentary articles), qualitative and mixed-methods research articles, narrative education reports, and case studies.

Population(s) Served
Adults

Print and on line publication of the narrative symposia (personal stories and commentary articles) from the academic journal made open to all readers. VOICES also contains a teaching guide. This work has grassroots and educational importance.

Population(s) Served
People with diseases and illnesses
Students

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of downloads of the organization's materials and explanations

This metric is no longer tracked.
Totals By Year
Population(s) Served

Caregivers,Academics,People with diseases and illnesses

Related Program

Narrative Inquiry in Bioethics: A Journal of Qualitative Research

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

This reflects the number of articles published by NIB Foundation that were downloaded on the Project MUSE platform.

Number of different periodicals published

This metric is no longer tracked.
Totals By Year
Related Program

Narrative Inquiry in Bioethics: A Journal of Qualitative Research

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

We publish 3 issues per year with our press. Additionally, we seek funds to publish VOICES editions that are freely available to the public.

Number of press releases developed and distributed

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

This includes the number of newsletters we distribute and blog stories we publish in a year.

Number of editorial board meetings held

This metric is no longer tracked.
Totals By Year
Related Program

Narrative Inquiry in Bioethics: A Journal of Qualitative Research

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

We have an amazing editorial board comprised of leaders in the fields of health ethics and policy. A majority of members attend our annual board meeting.

Number of curricula designed

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

This includes the number of educational guides that we produce for sessions with healthcare workers and students.

Number of people on the organization's email list

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Charting impact

SOURCE: Self-reported by organization

Five powerful questions that require reflection about what really matters - results.

What is the organization aiming to accomplish?

NIB Foundation has the following goals: > Raise awareness of ethical issues that arise in healthcare and health systems > Explore changes to practices and policies in healthcare and health systems to better meet the needs of stakeholders > Increase insight and empathy in healthcare

NIB Foundation accomplishes its mission as it: > Publishes the journal Narrative Inquiry in Bioethics, which includes in every issue: Collections of stories from stakeholders on a specific topic (such as being a living organ donor or providing care for Alzheimer's Disease patients); commentaries on the stories by experts and stakeholder group leaders; case studies that present and analyzed difficult cases in healthcare; and qualitative research articles that explore ethical and social issues in healthcare using data from focus group or interview studies > Publishes (as funds are available) VOICES editions of NIB issues. VOICES editions are tailored for the public, are freely available, and have educational discussion guides > Develops and distributes curricula and educational guides > Coordinates volunteer educators who lead educational sessions with healthcare workers and students using materials developed by the Foundation Topics that the Foundation has addressed include: Psychiatric hospitalization / Living organ donation / Raising children with autism / Difficulties with labor and delivery / Living with chronic pain during the opioid crisis / Intersex / Labeling obesity a medical disorder / Delivering healthcare in resource poor nations and in rural and prairie settings / Sexual harassment in surgery / Genetics testing for health care and research / Confronting pediatric brain tumors / Preserving fertility in cancer care / Alzheimer's disease caregiving / Conflicts of interest in medicine / Religion in healthcare / Other topics

NIB Foundation has the following resources to accomplish its mission: > An editorial board consisting of nationally recognized leaders in the field of bioethics > Staff with expertise and experience in editing, communication, and web design > Volunteers trained to lead educational sessions with healthcare workers and students > A website and an electronic newsletter that provide information to authors and the public > A publishing agreement with the Johns Hopkins University Press and Project MUSE > A partnership with Washington University School of Medicine to staff projects

NIB Foundation's key progress indicators include: > The number of issues of NIB that are published > The number of VOICES editions that are published > The number of downloads of NIB publications > The number of educational guides produced > The number of educational sessions with healthcare workers and students held using NIB materials > The evaluations from educational sessions > The number of people reached with the NIB newsletter > The number of blog stories, editorials, and other popular media pieces on NIB publications and activities > The number of volunteers recruited to support the mission of NIB Foundation

NIB Foundation has accomplished the following: > Published 27 issues of Narrative Inquiry in Bioethics > Published 3 VOICES editions of NIB issues with educational guides > Produced 6 educational guides using NIB materials on topics such as communicating what matters most to patients, dealing with moral distress as a healthcare provider, and addressing stigma and bias in healthcare. Each of these guides helps small groups to explore ethical and social issues in healthcare using personal stories from key stakeholders > More than 60,000 published articles have been downloaded in the past 4 years > Approximately 6 educational sessions per year are held with physicians and physicians in training Next steps include: > Growing the number of volunteer educators to reach a far greater number of healthcare workers and students > Increasing the dissemination of NIB products to health policy makers and thought leaders > Increasing gifts to sustain and grow the mission of NIB Foundation

Financials

FOUNDATION FOR NARRATIVE INQUIRY IN BIOETHICS
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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FOUNDATION FOR NARRATIVE INQUIRY IN BIOETHICS

Board of directors
as of 3/16/2020
SOURCE: Self-reported by organization
Board chair

Mark Fischer, Esq

Diane Brockmeier, RN, MA

Mid-America Transplant

Emily Anderson, PhD

Loyola University of Chicago, Strich School of Medicine

Mark Cherry, PhD

St. Edward's University

John Chibnall, PhD

Saint Louis University

Ana Iltis, PhD

Wake Forest University

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Keywords

healthcare ethics, education, qualitative research, health policy, patient engagement