Hope for Hypothalamic Hamartomas

Giving Hope. Getting Answers.

aka Hope For HH   |   Waddell, AZ   |  http://www.hopeforhh.org

Mission

Hope for Hypothalamic Hamartomas (HopeForHH.org) provides information, support and community to HH patients, caregivers and healthcare providers. We promote research into early detection, improved treatments, living with HH as a complex medical syndrome, and a cure.

Ruling year info

2010

Co-Founder, President

Erica Webster

Co-Founder, Vice President

Lisa Soeby

Main address

PO Box 721

Waddell, AZ 85355 USA

Show more contact info

EIN

27-1433464

NTEE code info

Alliance/Advocacy Organizations (G01)

Alliance/Advocacy Organizations (E01)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2020, 2019 and 2018.
Register now

Communication

Blog

Programs and results

What we aim to solve

This profile needs more info.

If it is your nonprofit, add a problem overview.

Login and update

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Education

We provide Hypothalamic Hamartoma Syndrome information to patients, caregivers and healthcare providers. Our goals is to ensure patients have access to up to date information on HH diagnosis, treatment, research and associated comorbidities.

Population(s) Served
Adults
Children and youth
Caregivers
People with disabilities
People with diseases and illnesses

We drive new research toward early detection, improved treatments and well as in finding a cure.

Population(s) Served

We provide support to HH patients and caregivers through Patient Conferences, Patient Surgical Support bags, and one on one support programs.

Population(s) Served
People with disabilities
People with diseases and illnesses
Adults
Caregivers
Children and youth
People with disabilities
People with diseases and illnesses
Adults
Caregivers
Children and youth

Where we work

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Financials

Hope for Hypothalamic Hamartomas
lock

Unlock financial insights by subscribing to our monthly plan.

Subscribe

Unlock nonprofit financial insights that will help you make more informed decisions. Try our monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights?
Learn more about GuideStar Pro.

Operations

The people, governance practices, and partners that make the organization tick.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Hope for Hypothalamic Hamartomas

Board of directors
as of 4/2/2021
SOURCE: Self-reported by organization
Board chair

Erica Webster

Lisa Soeby

Emma Nott

Kathy Jensen

Kimberly Ranson

Organizational demographics

SOURCE: Self-reported; last updated 4/2/2021,

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

No data

The organization's co-leader identifies as:

No data

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data