Mission
Hope for Hypothalamic Hamartomas (HopeForHH.org) provides information, support and community to HH patients, caregivers and healthcare providers. We promote research into early detection, improved treatments, living with HH as a complex medical syndrome, and a cure.
Ruling year
2010
Co-Founder, President
Erica Webster
Co-Founder, Vice President
Lisa Soeby
Main address
PO Box 941
Eagle, ID 83616 USA
EIN
27-1433464
NTEE code
Alliance/Advocacy Organizations (G01)
Alliance/Advocacy Organizations (E01)
IRS filing requirement
This organization is required to file an IRS Form 990 or 990-EZ.
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Communication
Programs and results
What we aim to solve
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Education
We provide Hypothalamic Hamartoma Syndrome information to patients, caregivers and healthcare providers. Our goals is to ensure patients have access to up to date information on HH diagnosis, treatment, research and associated comorbidities.
Research
We drive new research toward early detection, improved treatments and well as in finding a cure.
Support
We provide support to HH patients and caregivers through Patient Conferences, Patient Surgical Support bags, and one on one support programs.
Where we work
External reviews
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
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- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
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Hope for Hypothalamic Hamartomas
Board of directorsas of 03/23/2023
Erica Webster
Lisa Soeby
Emma Nott
Kathy Jensen
Kimberly Ranson
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
No data
The organization's co-leader identifies as:
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Race & ethnicity
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Gender identity
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Sexual orientation
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Disability
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