STROKE SUPPORT ASSOCIATION

Empowering stroke survivors and their families with resources to recover, reclaim, and rebuild their lives.

Long Beach, CA   |  www.StrokeSupportAssoc.org

Mission

Empowering stroke survivors and their families with resources to recover, reclaim, and rebuild their lives.

Ruling year info

2011

Board President

Gretchen Phillips

Interim Executive Director

Betsy Hardiman

Main address

PO Box 8340

Long Beach, CA 90808 USA

Show more contact info

Formerly known as

Long Beach Chapter, Stroke Assoc of Southern California

EIN

27-1526010

NTEE code info

Public, Society Benefit - Multipurpose and Other N.E.C. (W99)

Health Support Services (E60)

Counseling Support Groups (F60)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Communication

Blog

Programs and results

What we aim to solve

This profile needs more info.

If it is your nonprofit, add a problem overview.

Login and update

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Survivor & Caregiver Support Groups

Free, separate support groups for stroke survivors and caregivers/family members (in-person, every other week on Tuesdays in Long Beach, CA, and via Zoom on Wednesday mornings). Trained volunteers who are professionals in the field of mental health and/or stroke function as facilitators, guiding discussions on understanding stroke and optimizing life after stroke. In an informal atmosphere, groups members share problem solving, community resources, recovery milestones, plus find a safe place to socialize and express difficult feelings. Caregivers learn coping skills and develop self-care while finding support from other caregivers. Five or six times per year, outside experts offer presentations on stroke, recovery, the benefits of volunteering, fall prevention, emotional regulation, and so forth. All presentations are open to the public.


Population(s) Served
Adults

Stroke Support Association offers a Hospital Visitors Program. Qualified volunteer stroke survivors from our groups visit new stroke patients in the hospital, sharing their experience of life after stroke, offering encouragement, and providing emotional support. This program, modeled after the Mended Hearts Visitor Program, currently partners with Long Beach Medical Center and St. Mary's Medical Center.

The visits are to assure people new to stroke that they are not alone and to provide contact information for resources related to stroke recovery. Contacts average approximately 10 per week.

Population(s) Served
People with disabilities
Caregivers
Families

Stroke Support Association keeps a Special Needs Fund to cover group members' one-time, recovery-related financial needs, such as wheelchair ramps, leg and arm braces, driving instruction after stroke, group social outings, and educational resources.

Population(s) Served

Stroke Support Association provides stroke-related information and resources at community events and health fairs. Our comprehensive and easy-to-use website provides stroke education (types/signs/symptoms/risk factors/prevention), articles from health-care professionals and other qualified individuals, and personal stories of stroke survivors and family members. An exhaustive list of community resources is also provided.

Population(s) Served
People with disabilities
Caregivers
Families

Where we work

Affiliations & memberships

American Heart Association, Inc. 1982

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • Who are the people you serve with your mission?

    Stroke survivors, caregivers, and family members.

  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Paper surveys,

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • What significant change resulted from feedback?

    Some of our support group members prefer that the facilitators lead with a topic; others like discussions to be led by the current needs of the group members. We have incorporated both styles.

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board, Our funders,

  • How has asking for feedback from the people you serve changed your relationship?

    Every time we listen to the feedback of our support group members, we course correct.

  • Which of the following feedback practices does your organization routinely carry out?

    We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback,

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback,

Financials

STROKE SUPPORT ASSOCIATION
lock

Unlock financial insights by subscribing to our monthly plan.

Subscribe

Unlock nonprofit financial insights that will help you make more informed decisions. Try our monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights?
Learn more about GuideStar Pro.

Operations

The people, governance practices, and partners that make the organization tick.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

STROKE SUPPORT ASSOCIATION

Board of directors
as of 04/20/2022
SOURCE: Self-reported by organization
Board chair

Gretchen Phillips

William Frink

Lynne Finley

Jane Claus

Angie West

Long Beach Medical Center

Lisa Marlia

St. Mary's Medical Center

Diana Wagner

Gretchen Phillips

Denise Shiozawa

Michelle Chung

Mary Tromp

Alvin Hayes

Suzan Hubert

Robert Wright

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 4/18/2022

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

The organization's co-leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability

Equity strategies

Last updated: 04/18/2022

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.