Human Services

Moving With Health Oriented Physical Education

Empowering Survivors of Neurological Illness

aka MovingWithH.O.P.E.   |   Shelton, CT   |  www.movingwithhope.org

Mission

To empower survivors, strengthen communities, and give hope by providing essential rehab, exercise, and skills training to people living with physical disabilities, year-round and at a deeply affordable price.

Ruling year info

2010

Board Chairman

Mr Thatcher B Duni

Main address

30 Controls Drive

Shelton, CT 06484 USA

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Formerly known as

Moving With Health Oriented Physical Education, Inc.

EIN

27-1753984

Cause area (NTEE code) info

Services to Promote the Independence of Specific Populations (P80)

Nerve, Muscle and Bone Diseases (G50)

Disabled Persons' Rights (R23)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Problem: Neurological diseases are very difficult to resolve. Many need ongoing physical, occupational, speech and cognitive therapies to prevent loss of independence. Our current healthcare delivery system does not offer the needed volume of care to help resolve or remediate neurological disease residual injury. Up to 65 million people in America suffer from complex neurological and orthopedic disorders, such as Stroke, Alzheimer, Spinal Cord Injury, Parkinson’s disease, rheumatoid arthritis, spinal stenosis, multiple sclerosis, peripheral neuropathy, epilepsy, and traumatic brain injury and neuro-infections. Combine these 65 million with their 2.5 loved one’s (162.5 million Americans); we unfold a massive problem that needs a near-term solution. Solution: Moving with HOPE provides year-round access to affordable post-acute physical, occupational, speech and cognitive therapies.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

an Integrative Wellness Center

Moving With H.O.P.E. (MWH) is an innovative adaptive fitness, rehabilitation, and learning center. We provide essential rehab, exercise, and skills training to people living with moderate to severe physical disabilities. Our services and support are available year-round and deeply affordable. We provide a continuum of services in one spot. Plus, we have the right equipment, tech, and people. We offer skilled physical therapy, occupational therapy, and speech therapy, but many of our programs supplement insurance-based therapies. Trained teachers, CNAs, EMTs, and PCAs work with clients using simple, evidence-based principles. Outside of MWH’s walls, many of our programs are only found in research settings. Some of our services can be provided in the client's home. We accept insurance and use a private pay sliding scale fee.

Population(s) Served
People with physical disabilities
People with diseases and illnesses
Budget
$650,000

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of policies formally established

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

Our conflict of interest policy protects MovingWithHOPE’s interest when it is contemplating entering into a arrangement that might benefit the private interest of an board members.

Number of policymakers or candidates reached

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Our board members have consistently reached out by letter, in person or at events to every local, State and Federal lawmaker and informed them of our mission and vision.

Number of organizational partners

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Through a comprehensive strategic plan we have gained the support and collaboration of major educational institutions such as The Yale School of Public Health and Quinnipiac School of Allied Health.

Number of participants that follow counseling recommendations

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We have been slowly recognized by hospital in CT, NY and Ma as a leader in providing year round access to recovery programs for people with complex neurological conditions. We have 95% participation.

Number of participants who would recommend program to others

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

Our highly quality services, easy access and affordable cost makes for a near 100% approval rating by past and current participants. Our outcomes are unprecedented in the field of Neuro-Recovery.

Number of entities served by expertise

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Our Impact has increased over 300% since 2015. In 2010, we saw just one brain injured client! Each client receives over 500 hrs a year of physical, occupational, speech and cognitive therapy.

Number of health outcomes improved

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Each client has made improvements in health & wellness. Specifically, improvements have been physician documented in vascular efficiency, bone density, lipid profiles, emotional stability & mobility.

Average daily attendance

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We have growth dramatically from 1 to 23 clients a day and now over 45 a week. This represents over 450 treatment hours a week with each client having significant improvement years after injury.

Number of independent organizations served

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We are getting referrals from 3 major rehabilitation hospitals in CT, a major CT University with a pro Bono therapy program, one CT independent living center, 3 Nursing Homes & 9 family Doctors.

Number of people who can afford the program

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Our model provides access to activity-based restorative therapies, speech and cognitive support at 1/5 the cost of comparable programs. Plus, we offer a sliding scale lowering costs for some to zero.

Number of adults with disabilities receiving sufficient social and emotional support

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Our program includes a caregiver component as well as the direct services to the neurologically impaired loved one. This clearly improves the health & wellness of the entire family & caregivers.

Number of older people receiving support to facilitate a discharge home

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Our older population is growing as we are the only facility in New England and the Metro NY Area that is affordable to people with ABI/SCI. Our outcomes are considered by experts to be unprecedented.

Number of younger people receiving services to discharge them to home.

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Our program is expanding in the pediatric and young adult population at a rapid pace. We are the only facility in New England and the Metro NY Area that is affordable to people with ABI/SCI.

Average length of stay (in months)

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Recovery for the ABI/SCI population requires repetition without repetition. 10 hrs a week is the average service hrs per client and the plan of care is changed monthly to facilitate neuroplasticity.

Charting impact

SOURCE: Self-reported by organization

Five powerful questions that require reflection about what really matters - results.

What is the organization aiming to accomplish?

Founded in 2010, Moving With H.O.P.E. is a non-profit 501(c) (3) organization dedicated to improving the quality of life of people with neurological disorders and other early onset long term illnesses. Survivors of neurological illness and their loved one's only wish is for them to remain as independent as possible in their home and community. Moving With H.O.P.E.'s goal is to support an affordable recovery solution for these survivors, just like the facility in Shelton, in every community in America. What can this mean for our country and it's citizens? Reduce median Medicaid and Medicare costs Increase Individual Therapy Service Times after insurance stops Greatly improves quality of life Reduces the financial and emotional stress and strain on family members and industry

We want to develop partnerships with foundations, corporations and the general public to provide a campus dedicated to empowering survivors of neurological illness and other complex diseases. We believe we have a community, State and National model to help abate the tidal wave of chronic illnesses that traditional health care delivery models can not address.

MovingWithHOPE's founder and current President has devoting his life to helping others with disabilities. Mr. Duni has impeccable academic credentials stemming from his 3 years of study at Columbia Universities School of Movement Sciences and Motor Learning and over 35 years of clinical experience working with people with disabilities of all types and degrees. He is the driving force behind MovingWithHOPE and the force behind helping hundreds of people becoming independent after traditional healthcare and rehabilitation said "NO"!<br/><br/>The board members are comprised of other experts in Rehabilitative medicine, Strategic planning and marketing, Educational consulting, employment services and parents or family members of people with disabilities.

1. Acquire Strategic partnerships with corporations and Universities that commit to 5 or more years. 2. The ability to leverage and invest these aforementioned partnerships to gain greater donations and gift giving by our surrounding community monies by: a. Short term (3-6 months) $15000 in donations b. Mid-term (6-18 months) $185000. in Donations/gifts c. Long Term (18 plus months) grow the grants program for people with disabilities to secure 1-3 more locations in CT.

Throughout 2010-2016, Moving with H.O.P.E. has had sponsorship's and donations from hundreds of small to large companies, foundations and individuals. To that end, Moving with H.O.P.E. survivors remain healthier, independent and more productive in their communities than was otherwise possible. Moving With HOPE has provided dozens of grants to individuals so they can have access to our public health model and purchased over $50,000 in specialized equipment Sponsorship's and donations have helped raise awareness for CT lawmakers and Medicaid and Medicare specialists on Moving with H.O.P.E. plans of care and technology to improve survivor's health, independence, and productivity. In March of 2019, MovingwithH.O.P.E. (MWH) received $65,000 to renovate a 6000 sq ft office space at 30 Controls Dr Shelton CT. In addtion, MWH contributed another $15,000. From this generous fit-up fund, MovingWithH.O.P.E. (MWH) agreed to sign a 10 year lease. MWH moved into the new space on 6/3/2019. We have a state of the art neuro-rehabilitation facility offering ABRT, PT, OT, SLP, LMT, and CYT. This is our single greatest accomplishment in our 10 year history.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is the organization collecting feedback?

    We regularly collect feedback through: paper surveys, case management notes.

  • How is the organization using feedback?

    We use feedback to: to inform the development of new programs/projects, to strengthen relationships with the people we serve.

  • With whom is the organization sharing feedback?

    We share feedback with: our staff, our board.

Financials

Moving With Health Oriented Physical Education
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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Moving With Health Oriented Physical Education

Board of directors
as of 4/9/2020
SOURCE: Self-reported by organization
Board chair

Mr Thatcher Duni

LifeDesigns ReAbility Center

Term: 2010 - 2021

Paul Stefano

LifeDesigns ReAbility Center

Todd Johnston

Community Volunteer

Patrick Grella

Retired

Sharon Bruno

Retired

Joanne Duni

OSG-PC

Maureen Buckley

Special Needs Educational Consultant

Mark Odgers

Retired

Tom Moran

Industrial Consultant

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable

Keywords

physical disability, health and wellness programs, neurological therapy, OT, PT, SLP, independent living, brain and spinal injuries and disease recovery, quality of life, co-morbid disease prevention