Moving With Health Oriented Physical Education

Empowering Survivors of Neurological Illness

aka d/b/a MovingWithH.O.P.E. or d/b/a BeA Part   |   Shelton, CT   |  www.movingwithhope.org

Mission

To empower survivors, strengthen communities, and give hope by providing essential rehab, exercise, and skills training to people living with physical disabilities, year-round and at a deeply affordable price.

Notes from the nonprofit

COVID-19 has transformed and broaden our non-profit mission and vision. In short, the CDC's public announcement in mid-February of 2020 explaining the potential severity of COVID-19 impact on every aspect of society gave birth to our d/b/a BeA Part. This has re-directed the primary mission of Moving With Health Oriented Physical Education to primarily a local mission (serving approximately 8 radius miles) to a regional mission to partner with like-minded non-profit and for-profit businesses that fully understand how serious an impact COVID-19 has had on the short and long-term economic, health and wellness of 1 in 3 individuals (regardless of age, gender, race, ethnicity or sexual orientation. We have become a new way to lead, mentor, and volunteer We inspire and train diverse young people to be effective leaders and volunteers at social justice, health, and human services nonprofits.

Ruling year info

2010

Board Chairman

Mr Thatcher B Duni

Main address

30 Controls Drive

Shelton, CT 06484 USA

Show more contact info

Formerly known as

Moving With Health Oriented Physical Education, Inc.

EIN

27-1753984

NTEE code info

Services to Promote the Independence of Specific Populations (P80)

Nerve, Muscle and Bone Diseases (G50)

Disabled Persons' Rights (R23)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Problem: Neurological diseases are very difficult to resolve. Many need ongoing physical, occupational, speech and cognitive therapies to prevent loss of independence. Our current healthcare delivery system does not offer the needed volume of care to help resolve or remediate neurological disease residual injury. Up to 65 million people in America suffer from complex neurological and orthopedic disorders, such as Stroke, Alzheimer, Spinal Cord Injury, Parkinson’s disease, rheumatoid arthritis, spinal stenosis, multiple sclerosis, peripheral neuropathy, epilepsy, and traumatic brain injury and neuro-infections. Combine these 65 million with their 2.5 loved one’s (162.5 million Americans); we unfold a massive problem that needs a near-term solution. Solution: Moving with HOPE provides year-round access to affordable post-acute physical, occupational, speech and cognitive therapies.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

an Integrative Wellness Center

Moving With H.O.P.E. (MWH) is an innovative adaptive fitness, rehabilitation, and learning center. We provide essential rehab, exercise, and skills training to people living with moderate to severe physical disabilities. Our services and support are available year-round and deeply affordable.

We provide a continuum of services in one spot. Plus, we have the right equipment, tech, and people. We offer skilled physical therapy, occupational therapy, and speech therapy, but many of our programs supplement insurance-based therapies. Trained teachers, CNAs, EMTs, and PCAs work with clients using simple, evidence-based principles. Outside of MWH’s walls, many of our programs are only found in research settings. Some of our services can be provided in the client's home. We accept insurance and use a private pay sliding scale fee.

Population(s) Served
People with physical disabilities
People with diseases and illnesses

Be A Part gives young people the tools and support to create ongoing positive social change. Together we stand as scientists, youth leaders, and local advocates working to co-power communities by engaging new volunteers, educating, and inspiring to build towards health and resilience in the face of COVID-19.
Everyone has a role to play.
Our Mission
To engage, mentor, and train young adult volunteers and leaders to support our local nonprofits in order to help them achieve their goals.

Our Team
We are hope-spreaders, educators, activists, and volunteers who will help rebuild our communities by harnessing the power of the youth.

Population(s) Served
Young adults
Ethnic and racial groups
People with disabilities
Chronically ill people
Work status and occupations

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of policies formally established

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

Our conflict of interest policy protects MovingWithHOPE’s interest when it is contemplating entering into a arrangement that might benefit the private interest of an board members.

Number of policymakers or candidates reached

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Our board members have consistently reached out by letter, in person or at events to every local, State and Federal lawmaker and informed them of our mission and vision.

Number of organizational partners

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Through a comprehensive strategic plan we have gained the support and collaboration of major educational institutions such as The Yale School of Public Health and Quinnipiac School of Allied Health.

Number of participants that follow counseling recommendations

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We have been slowly recognized by hospital in CT, NY and Ma as a leader in providing year round access to recovery programs for people with complex neurological conditions. We have 95% participation.

Number of participants who would recommend program to others

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

Our highly quality services, easy access and affordable cost makes for a near 100% approval rating by past and current participants. Our outcomes are unprecedented in the field of Neuro-Recovery.

Number of entities served by expertise

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Our Impact has increased over 300% since 2015. In 2010, we saw just one brain injured client! Each client receives over 500 hrs a year of physical, occupational, speech and cognitive therapy.

Number of health outcomes improved

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Each client has made improvements in health & wellness. Specifically, improvements have been physician documented in vascular efficiency, bone density, lipid profiles, emotional stability & mobility.

Average daily attendance

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We have growth dramatically from 1 to 23 clients a day and now over 45 a week. This represents over 450 treatment hours a week with each client having significant improvement years after injury.

Number of independent organizations served

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We are getting referrals from 3 major rehabilitation hospitals in CT, a major CT University with a pro Bono therapy program, one CT independent living center, 3 Nursing Homes & 9 family Doctors.

Number of people who can afford the program

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Our model provides access to activity-based restorative therapies, speech and cognitive support at 1/5 the cost of comparable programs. Plus, we offer a sliding scale lowering costs for some to zero.

Number of adults with disabilities receiving sufficient social and emotional support

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Our program includes a caregiver component as well as the direct services to the neurologically impaired loved one. This clearly improves the health & wellness of the entire family & caregivers.

Number of older people receiving support to facilitate a discharge home

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Our older population is growing as we are the only facility in New England and the Metro NY Area that is affordable to people with ABI/SCI. Our outcomes are considered by experts to be unprecedented.

Number of younger people receiving services to discharge them to home.

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Our program is expanding in the pediatric and young adult population at a rapid pace. We are the only facility in New England and the Metro NY Area that is affordable to people with ABI/SCI.

Average length of stay (in months)

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with physical disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Recovery for the ABI/SCI population requires repetition without repetition. 10 hrs a week is the average service hrs per client and the plan of care is changed monthly to facilitate neuroplasticity.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Founded in 2010, Moving With H.O.P.E. is a non-profit 501(c) (3) organization dedicated to improving the quality of life of people with neurological disorders and other early onset long term illnesses. Survivors of neurological illness and their loved one's only wish is for them to remain as independent as possible in their home and community.

Moving With H.O.P.E.'s goal is to support an affordable recovery solution for these survivors, just like the facility in Shelton, in every community in America. What can this mean for our country and it's citizens?

Reduce median Medicaid and Medicare costs
Increase Individual Therapy Service Times after insurance stops
Greatly improves quality of life
Reduces the financial and emotional stress and strain on family members and industry

We want to develop partnerships with foundations, corporations and the general public to provide a campus dedicated to empowering survivors of neurological illness and other complex diseases. We believe we have a community, State and National model to help abate the tidal wave of chronic illnesses that traditional health care delivery models can not address.

MovingWithHOPE's founder and current President has devoting his life to helping others with disabilities. Mr. Duni has impeccable academic credentials stemming from his 3 years of study at Columbia Universities School of Movement Sciences and Motor Learning and over 35 years of clinical experience working with people with disabilities of all types and degrees. He is the driving force behind MovingWithHOPE and the force behind helping hundreds of people becoming independent after traditional healthcare and rehabilitation said "NO"!

The board members are comprised of other experts in Rehabilitative medicine, Strategic planning and marketing, Educational consulting, employment services and parents or family members of people with disabilities.

Throughout 2010-2016, Moving with H.O.P.E. has had sponsorship's and donations from hundreds of small to large companies, foundations and individuals.

To that end, Moving with H.O.P.E. survivors remain healthier, independent and more productive in their communities than was otherwise possible.

Moving With HOPE has provided dozens of grants to individuals so they can have access to our public health model and purchased over $50,000 in specialized equipment


Sponsorship's and donations have helped raise awareness for CT lawmakers and Medicaid and Medicare specialists on Moving with H.O.P.E. plans of care and technology to improve survivor's health, independence, and productivity.

In March of 2019, MovingwithH.O.P.E. (MWH) received $65,000 to renovate a 6000 sq ft office space at 30 Controls Dr Shelton CT. In addtion, MWH contributed another $15,000. From this generous fit-up fund, MovingWithH.O.P.E. (MWH) agreed to sign a 10 year lease. MWH moved into the new space on 6/3/2019. We have a state of the art neuro-rehabilitation facility offering ABRT, PT, OT, SLP, LMT, and CYT. This is our single greatest accomplishment in our 10 year history.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • Who are the people you serve with your mission?

    We have 2 separate target populations that we serve. d/b/a MovingWithHOPE 1. Survivors of moderate to severe neurological impaitments d/b/a BeA Part (BAP) 2. To engage, mentor, and train young adult volunteers and leaders to support our local nonprofits in order to help them achieve their goals.

  • How is your organization collecting feedback from the people you serve?

    Paper surveys, Focus groups or interviews (by phone or in person), Case management notes, Community meetings/Town halls, Constituent (client or resident, etc.) advisory committees, Suggestion box/email,

  • How is your organization using feedback from the people you serve?

    To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • What significant change resulted from feedback?

    By Listening to our partners and target groups with networks of young adult leaders on college campuses, we have shifted our emphasis to provide resources and training that transform the lives of young people in Connecticut, ensuring a better life for themselves, their families, and our community. We do this with a robust mentoring program that reaches young people through (1) public workshops (2) near peer mentoring, and (3) volunteer and job placement. Our programs provide free virtual workshops featuring experts in public health, racial equity, community development, career counseling, and more.

  • With whom is the organization sharing feedback?

    Our staff, Our board, Our funders, Our community partners,

  • How has asking for feedback from the people you serve changed your relationship?

    “BAP has shown me that you are never too young to be a leader and help your community.” — Simrin K., 9th grader from Shelton, CT “BAP has given me skills and resources to make positive change in my life.” — Kyla K., 11th grader from New Haven, CT “BAP connected me with a mentor from my community, and helped me make new friends.” — Owen S., 10th grader from Waterbury, CT

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We ask the people who gave us feedback how well they think we responded,

  • What challenges does the organization face when collecting feedback?

    It is difficult to find the ongoing funding to support feedback collection, Staff find it hard to prioritize feedback collection and review due to lack of time,

Financials

Moving With Health Oriented Physical Education
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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Moving With Health Oriented Physical Education

Board of directors
as of 8/22/2021
SOURCE: Self-reported by organization
Board chair

Mr Joanne D Thatcher

ReAbility, LLC

Term: 2010 - 2021

Todd Johnston

Community Volunteer

Patrick Grella

Retired

Sharon Bruno

Retired

Joanne Duni

OSG-PC

Maureen Buckley

Special Needs Educational Consultant

Mark Odgers

Retired

Tom Moran

Industrial Consultant

Sean Choun, MBA

Audit Senior Manager Axa XL

Monica Valerio

Founder & Sole Proprietor Freedom Disability, Inc.

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable

Organizational demographics

SOURCE: Self-reported; last updated 08/22/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 08/22/2021

Policies and practices developed in partnership with Equity in the Center, a project that works to shift mindsets, practices, and systems within the social sector to increase racial equity. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.