Stroke Survivors Empowering Each Other, Inc.

aka SSEEO   |   Downers Grove, IL   |  www.sseeo.org

Mission

To provide advocacy, support, education and resources to stroke survivors and their families.

Ruling year info

2010

President, SSEEO

Randy Crabtree

Main address

4921 Parkway Dr.

Downers Grove, IL 60515 USA

Show more contact info

EIN

27-1925734

NTEE code info

Alliance/Advocacy Organizations (E01)

Brain Disorders (G48)

Other Philanthropy, Voluntarism, and Grantmaking Foundations N.E.C. (T99)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Founded in 2004, SSEEO is a non-profit organization building a community to encourage, support and guide stroke survivors and families while providing resources to help meet the challenges of stroke. With stroke being the 5th leading cause of death in the United States and the 2nd leading cause of death worldwide, SSEEO recognizes that the need is even greater for stroke prevention, education and support.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Stroke Survivor 2 Survivor (SS2S)

SS2S is a telephone-peer support program, developed by SSEEO, for stroke survivors and caregivers. It is run by stroke survivors or stroke caregiver volunteers with special training, and overseen by a local hospital on-site coordinator. The calls provide education, support and resources to help acclimate changes caused by stroke.

Population(s) Served

ST2G are a series of stroke prevention/treatment presentations designed to increase stroke awareness in communities.
These videos and presentations can be downloaded to view and be used for community events, library or church presentations to educate others of the warning signs and risk factors of stroke.

Population(s) Served

The audio podcast series builds community, provides
support and shares information. All calls are recorded
and downloaded on the SSEEO website at www.sseeo.org.

Population(s) Served

Where we work

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

-Build the SSEEO network of stroke survivors and other stakeholders by providing coordinated support, outreach and education.
-Develop stroke survivors and caregivers for volunteer leadership roles through training, workshops and survivor-led mentoring.
-Create accessible resources for survivors and their caregivers through a dedicated website, discharge materials, toll-free conferences and newsletters.
-Evaluate the need for other programs and services for caregivers, persons with disabilities and look into new avenues to connect with patients after discharge.
-Maintain an active presence on policy issues related to stroke in Illinois by reaching out to EMS, local stroke support groups and healthcare professions.


-Develop volunteer leadership - Volunteer leaders identified and new committees proceeding in
the areas of Young Stroke, Stroke Prevention & Education, Social Media & Communications and Stroke Support
-Maintain a presence on stroke policy issues Board of Directors & volunteers are American Heart/American
Stroke Association You’re the Cure members and ready to take action on stroke legislative issues & meet with local representatives
-Stroke Survivor 2 Survivor (SS2S) telephone peer support program for stroke survivors and their caregivers.



-Partnership with the American Stroke Association (ASA) and Stroke Survivors Empowering Each Other (SSEEO) share a common desire to improve the health and quality of life of the more than seven million Americans who are stroke survivors. That's why our organizations are working together to make the Stroke Survivor 2 Survivor program more widely available through the development of the manual.
-The SS2S program and other SSEEO programs are run by stroke survivors, caregiver volunteers and other stroke stakeholders.
-Young stroke survivors joined SSEEO and formed a committee to meet the needs of young stroke

-Currently working towards a SS2S pre-recorded training, downloadable program guide and continued data collection to further expand the program
-Build the SSEEO Network - Expanded social media platform with over 45 countries following. SSEEO (Facebook, Twitter and LinkedIn) and documented a significant increase in impressions, reach and engagement
-Create & revise accessible stroke resources - Stroke Talks 2 Go (ST2G) stroke prevention/treatment presentations with videotaped stroke survivor/caregiver stories referenced and available as a resource on the SSEEO website
-Evaluate need for other stroke programs - Stroke Survivor Needs, Wellness and Warning Signs survey to
SSEEO members with poster presentation and published abstract in the Journal of Neurology & Experimental Neuroscience
-Young stroke continue to meet virtually, creating a blog post and trivia night
-Formed a stroke rehabilitation committee in response to the results of the Stroke Needs survey
and using a more adaptive, data-driven approach with the goals for new rehabilitation approaches, help patients regain independence post-stroke and a variety of future initiatives planned
-Adapt, change and redesign our outreach and education to virtually meet the needs of the stroke community

Financials

Stroke Survivors Empowering Each Other, Inc.
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
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  • Compare nonprofit financials to similar organizations

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Stroke Survivors Empowering Each Other, Inc.

Board of directors
as of 2/26/2021
SOURCE: Self-reported by organization
Board co-chair

Randy Crabtree

SSEEO

Term: 2019 -


Board co-chair

Mark Egelston

Stroke Survivors Empowering Each Other, Inc. (SSEEO)

Term: 2020 -

Christina Miller

attorney

Mark Egelston

banker

John Hunt

accountant

Christine Somberg

nurse

Charu Nagar

physician

Michael Victor

attorney

Jim Geminer

stroke survivor