Family to Family Inc.
Families Supporting Families
Programs and results
What we aim to solve
Families of children and youth with special health care needs (CYSHCN), including those with medical, developmental, intellectual or physical health care needs/disabilities, typically report greater difficulties in accessing health care for their children and more problems with financing this care than parents of typical children. Those who do not speak English and/or who are of low socioeconomic status report even greater challenges.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Indiana Family-to-Family Health Information Center
Family Voices Indiana is Indiana’s Family-to-Family Health Information Center (F2F HIC), funded by the Human Resources and Services Administration. F2F HICs are family-staffed organizations that assist families of children and youth with special health care needs (CYSHCN) and the professionals who serve them.
Because we are staffed by family members who have first-hand experience navigating the maze of health care services and programs for CYSHCN, we are positioned to uniquely help families by providing:
Assistance to families and professionals navigating health care systems
Information, education, training, support, and referral services
Outreach to underserved and underrepresented populations
Guidance on health programs and policy
Collaboration with other F2F HICs, family groups, and professionals to improve services for CYSHCN
Evaluation and outcome assessment
Where we work
External reviews

Our results
How does this organization measure their results? It's a hard question but an important one.
Number of groups/individuals benefiting from tools/resources/education materials provided
This metric is no longer tracked.Totals By Year
Population(s) Served
People with disabilities
Related Program
Indiana Family-to-Family Health Information Center
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Number of individuals attending community events or trainings
This metric is no longer tracked.Totals By Year
Population(s) Served
People with disabilities
Related Program
Indiana Family-to-Family Health Information Center
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Number of organizational partners
This metric is no longer tracked.Totals By Year
Population(s) Served
People with disabilities
Related Program
Indiana Family-to-Family Health Information Center
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Increasing
Goals & Strategy
Reports and documents
Download strategic planLearn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Family Voices Indiana strives to achieve the following:
• Disseminate complex information from state and federal agencies regarding programs, policy changes, or service delivery to families and professionals in an understandable manner.
• Families and professionals will access information quickly through their preferred mechanisms via various technologies, including telephone, the Family Voices Indiana website, electronic newsletter, Facebook, Twitter, Pinterest and blogs.
• Families, including those from underrepresented and diverse communities, and professionals will gain competence and confidence to engage a complex and hard-to-navigate system of health care and resources through training that enhances their leadership skills.
• Agencies, programs and organizations will utilize Family Voices Indiana information and resources to assist families of children and youth with special health care needs (CYSHCN).
• Families of CYSHCN who speak Spanish or have other cultural or linguistic needs will be able to access the information they need through Family Voices Indiana Health Information Specialists and other media.
• Families and youth will be knowledgeable about transitioning to adult health care services and community living based on information and training supplied by Family Voices Indiana.
• Children and youth with special health care needs will have an increased likelihood of receiving care from a medical home as the result of heightened awareness and education provided to their families, parent leaders and service providers.
What are the organization's key strategies for making this happen?
Family Voices Indiana will employ the following strategies to reach its goals.
• Assist families of children and youth with special health care needs (CYSHCN) in making informed choices about health care in order to promote good treatment decisions, cost effectiveness and improved health outcomes.
• Provide information regarding the health care needs of, and resources available to, CYSHCN.
• Identify successful health care delivery models for CYSHCN;
• Develop a model for collaboration between families of CYSHCN and health professionals.
• Provide training and guidance regarding the care of CYSHCN.
• Conduct outreach activities to families of CYSHCN, health professionals, schools and other appropriate entities and individuals.
• Staff centers with families of CYSHCN who have expertise in federal and state public and private health care systems, and with health professionals.
What are the organization's capabilities for doing this?
Family Voices Indiana is operated by trained parents of children and youth with special health care needs and/or disabilities (CYSHCN). Staff works in their home communities across Indiana and the organization operates as a virtual center which reflects its mission to serve families in the community to maximize efficiency and reach.
We have the technological capacity to reach families with information in a timely manner and the ability to mobilize families when needed through a comprehensive electronic and social media presence.
Family Voices Indiana has established relationships with professionals who value partnership with families in guiding policies and programs. These include various state agencies, institutions of higher learning and organizations that serve CYSHCN and their families.
What have they accomplished so far and what's next?
In 2018, Family Voices Indiana served 2,353 families of children and youth with special health care needs and/or disabilities, and 609 professionals who serve them. We reached 15,337 families and 3,991 professionals through training and outreach campaigns. The combined reach of our social media platforms, newsletter and blog was 9.8 million.
FV Indiana is the state affiliate of Family Voices, a national advocacy organization, and has been designated as Indiana’s Family-to-Family Health Information Center by the Health Resources and Services Administration since 2011. In 2014 Covering Kids & Families of Indiana presented FVIN with the Community Leadership Award for its excellence in advocacy, support and collaborative efforts to improve access to health coverage for Hoosier families.
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Family to Family Inc.
Board of directorsas of 02/22/2022
Blake Johnson
Covering Kids & Families of Indiana
Term: 2017 - 2023
Chris St. Paul
Retired, IPMG
Term: 2018 - 2024
Judith Ganser
Retired, Indiana State Department of Health
Blake Johnson
Covering Kids & Families of Indiana
Sarah Trostle
Fugate Ganstad Law
Louise Lord-Nelson
RAISE Inc.
Jennifer Olson
Healthy Communities of LaPorte County
Chris St. Paul
Retired, IPMG
Stephan Viehweg
Riley Child Development Center, Riley Hospital
Joel Bazzell
Indiana Department of Health
Cyndi Bishop
Riley Hospital for Children
Denise Carpenter
Ascension St. Vincent Hospital
Elizabeth Tollefson
Indiana Forest Alliance
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? No
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
No data
Gender identity
No data
No data
Sexual orientation
No data
Disability
No data