Family to Family Inc.

Families Supporting Families

aka Family Voices Indiana   |   Fishers, IN   |  www.fvindiana.org

Mission

To support families who have children and youth with health care needs and/or disabilities through education, outreach and community partnerships.

Ruling year info

2010

Executive Director

Holly Wheeler

Main address

12175 Visionary Way Suite 1360

Fishers, IN 46038 USA

Show more contact info

EIN

27-2226445

NTEE code info

Alliance/Advocacy Organizations (B01)

Children's and Youth Services (P30)

Family Services (P40)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Families of children and youth with special health care needs (CYSHCN), including those with medical, developmental, intellectual or physical health care needs/disabilities, typically report greater difficulties in accessing health care for their children and more problems with financing this care than parents of typical children. Those who do not speak English and/or who are of low socioeconomic status report even greater challenges.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Indiana Family-to-Family Health Information Center

Family Voices Indiana is Indiana’s Family-to-Family Health Information Center (F2F HIC), funded by the Human Resources and Services Administration. F2F HICs are family-staffed organizations that assist families of children and youth with special health care needs (CYSHCN) and the professionals who serve them.
Because we are staffed by family members who have first-hand experience navigating the maze of health care services and programs for CYSHCN, we are positioned to uniquely help families by providing:
Assistance to families and professionals navigating health care systems
Information, education, training, support, and referral services
Outreach to underserved and underrepresented populations
Guidance on health programs and policy
Collaboration with other F2F HICs, family groups, and professionals to improve services for CYSHCN
Evaluation and outcome assessment

Population(s) Served
Families
People with disabilities

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of groups/individuals benefiting from tools/resources/education materials provided

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with disabilities

Related Program

Indiana Family-to-Family Health Information Center

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of individuals attending community events or trainings

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with disabilities

Related Program

Indiana Family-to-Family Health Information Center

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of organizational partners

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with disabilities

Related Program

Indiana Family-to-Family Health Information Center

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Family Voices Indiana strives to achieve the following:

• Disseminate complex information from state and federal agencies regarding programs, policy changes, or service delivery to families and professionals in an understandable manner.
• Families and professionals will access information quickly through their preferred mechanisms via various technologies, including telephone, the Family Voices Indiana website, electronic newsletter, Facebook, Twitter, Pinterest and blogs.
• Families, including those from underrepresented and diverse communities, and professionals will gain competence and confidence to engage a complex and hard-to-navigate system of health care and resources through training that enhances their leadership skills.
• Agencies, programs and organizations will utilize Family Voices Indiana information and resources to assist families of children and youth with special health care needs (CYSHCN).
• Families of CYSHCN who speak Spanish or have other cultural or linguistic needs will be able to access the information they need through Family Voices Indiana Health Information Specialists and other media.
• Families and youth will be knowledgeable about transitioning to adult health care services and community living based on information and training supplied by Family Voices Indiana.
• Children and youth with special health care needs will have an increased likelihood of receiving care from a medical home as the result of heightened awareness and education provided to their families, parent leaders and service providers.

Family Voices Indiana will employ the following strategies to reach its goals.
• Assist families of children and youth with special health care needs (CYSHCN) in making informed choices about health care in order to promote good treatment decisions, cost effectiveness and improved health outcomes.
• Provide information regarding the health care needs of, and resources available to, CYSHCN.
• Identify successful health care delivery models for CYSHCN;
• Develop a model for collaboration between families of CYSHCN and health professionals.
• Provide training and guidance regarding the care of CYSHCN.
• Conduct outreach activities to families of CYSHCN, health professionals, schools and other appropriate entities and individuals.
• Staff centers with families of CYSHCN who have expertise in federal and state public and private health care systems, and with health professionals.

Family Voices Indiana is operated by trained parents of children and youth with special health care needs and/or disabilities (CYSHCN). Staff works in their home communities across Indiana and the organization operates as a virtual center which reflects its mission to serve families in the community to maximize efficiency and reach.

We have the technological capacity to reach families with information in a timely manner and the ability to mobilize families when needed through a comprehensive electronic and social media presence.

Family Voices Indiana has established relationships with professionals who value partnership with families in guiding policies and programs. These include various state agencies, institutions of higher learning and organizations that serve CYSHCN and their families.

In 2018, Family Voices Indiana served 2,353 families of children and youth with special health care needs and/or disabilities, and 609 professionals who serve them. We reached 15,337 families and 3,991 professionals through training and outreach campaigns. The combined reach of our social media platforms, newsletter and blog was 9.8 million.

FV Indiana is the state affiliate of Family Voices, a national advocacy organization, and has been designated as Indiana’s Family-to-Family Health Information Center by the Health Resources and Services Administration since 2011. In 2014 Covering Kids & Families of Indiana presented FVIN with the Community Leadership Award for its excellence in advocacy, support and collaborative efforts to improve access to health coverage for Hoosier families.

Financials

Family to Family Inc.
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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Family to Family Inc.

Board of directors
as of 2/8/2021
SOURCE: Self-reported by organization
Board co-chair

Blake Johnson

Covering Kids & Families of Indiana

Term: 2017 - 2023


Board co-chair

Chris St. Paul

Retired, IPMG

Term: 2018 - 2024

Judith Ganser

Retired, Indiana State Department of Health

Blake Johnson

Covering Kids & Families of Indiana

Sarah Trostle

Fugate Ganstad Law

Louise Lord-Nelson

RAISE Inc.

Jennifer Olson

Healthy Communities of LaPorte County

Chris St. Paul

Retired, IPMG

Stephan Viehweg

Riley Child Development Center, Riley Hospital

Joel Bazzell

Indiana Department of Health

Cyndi Bishop

Riley Hospital for Children

Denise Carpenter

Ascension St. Vincent Hospital

Elizabeth Tollefson

Indiana Forest Alliance

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 01/28/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data