Macular Degeneration Association
Programs and results
What we aim to solve
Macular degeneration is increasing every year- it has reached epidemic portions- there aren't enough programs to educate those that are suffering with the disease. We need to produce more educational programs and materials to help manage this disease. More research is needed. New research needed for dry macular degeneration.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Matters of Vision!
These programs are designed to bring specialists, patients, caregivers, and the general public together. Participants are able to communicate with the specialists and each other to have a better understanding of their disease. The Macular Degeneration Association is hosting 15 free programs nationally and 6 Virtual programs reaching 150+ at each of these programs.
Web Site
Macular patients and caregivers and the medical community are given free and easy access to the latest information on research, education, and events. Macular Degeneration Association has a very progressive website www.macularhope.org On this site you will find video's of past programs, patient testimonials, educational articles. The Macular Degeneration Association's website has an international reach, visited by professionals in the field, nurses, researchers and visually impaired persons from around the world.
Where we work
Awards
External reviews
Photos
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of adults receiving education about age-related macular degeneration
This metric is no longer tracked.Totals By Year
Related Program
Matters of Vision!
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
In 2020 we were unable;e to complete in-person programs due to COVID-19- so we conducted virtual programs.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Our goals are to bring awareness about macular degeneration to the forefront. With the information about risk factors, research and treatments that the experts in the field bring to all the programs, the patient, family and caregiver will have a better understanding of their disease. With the better understanding they are equipped to make better treatment choices. Each year we plan newer programs designed to meet the needs of those that have been diagnosed with age-related macular degeneration. By increasing awareness and fund raising efforts to grow current and future programs to better serve the macular degeneration community. Find a Cure for age-related macular degeneration through research .
What are the organization's key strategies for making this happen?
1. Community awareness by means of onsite educational programs and programs held in independent living facilities. We are currently working on PBS Spotlights.
2. Work with Low Vision specialists, Retina specialists, Optometrists, Occupational therapists to provide the most information to the patient and research programs.
3. Nutrition is essential in helping control this disease- we will have nutritionists at some of the meetings.
What are the organization's capabilities for doing this?
Educational programs to discuss the cause, preventative measures, new treatments and research for those with age-related macular degeneration. The topics will include Low vision, Nutrition, Research and device that can help those that have been diagnosed with this disease live a fuller life. These programs will be scheduled Nationwide.
Creating macular degeneration and low vision awareness in the community.
Developing a strategy for research programs with renowned Low Vision Specialist , low vision equipment specialists and case workers.
We will have onsite the medical professional necessary to guide and validate the research process and procedures.
What have they accomplished so far and what's next?
Accomplishments:
1. Provide funds for the awareness programs onsite and in Independent Living facilities for the purpose of providing the necessary information to give the patients of this disease a better outcomes.
2. Provide ongoing empowerment, educational programs lead by noted experts in the field for macular degeneration patients, caregivers and the community.
3. Provide ongoing and updated sophisticated website and free video webcasts to better serve the Macular community locally, nationally and on an international level.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals
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Which of the following feedback practices does your organization routinely carry out?
We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded
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What challenges does the organization face when collecting feedback?
It is difficult to get the people we serve to respond to requests for feedback
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Macular Degeneration Association
Board of directorsas of 10/27/2023
Mr. Lawrence Hoffheimer
Macular Degeneration Association
Term: 2010 - 2045
Lawrence Hoffheimer
Chairman
Donna Auger
Director
Amy Carroll
Secretary-Treasurer
Linda Patterson
Chief Financial Officer
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Not applicable -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
Gender identity
Transgender Identity
Sexual orientation
Disability
Equity strategies
Last updated: 09/06/2022GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
- We disaggregate data by demographics, including race, in every policy and program measured.
- We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.