Educational Institutions

Macular Degeneration Association

Updated in partnership with The Giving Partner

aka Macular Degeneration Association

Sarasota, FL

Mission

The mission of Macular Degeneration Association (MDA)  is to find a cure for macular degeneration through funding research, while providing education and services that will improve the quality of life TODAY, TOMORROW and in the FUTURE for patients with macular degeneration. While providing education, preventable measures and helpful tips to their caregivers and families.

Ruling Year

2010

Principal Officer

Mr. Lawrence S Hoffheimer

Main Address

5969 Cattleridge Blvd Ste 100

Sarasota, FL 34232 USA

Keywords

Research, Education, Awareness programs,macular degeneration, eye conditions, diseases of the eyes

EIN

27-3025707

 Number

0684716550

Cause Area (NTEE Code)

Fund Raising and/or Fund Distribution (B12)

Alliance/Advocacy Organizations (E01)

Eye Diseases, Blindness and Vision Impairments (G41)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Social Media

Programs + Results

What we aim to solve

Macular Degeneration is increasing every year- it has reached epidemic portions- there aren't enough programs to educate those that are suffering with the disease. We need to produce more educational programs and materials to help manage this disease. More research is needed.

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

Eyes on Sight!

Web Site

Where we work

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have they accomplished so far and what's next?

Our goals are to bring awareness about macular degeneration to the forefront. With the information about risk factors, research and treatments that the experts in the field bring to all the programs, the patient, family and caregiver will have a better understanding of their disease. By increasing awareness and fund raising efforts to sustain and grow current and future programs to better serve the macular degeneration community.

1. Community awareness by means of onsite educational programs and programs held in independent living facilities. We are currently working on PBS Spotlights.

2. Work with Low Vision specialists, Retina specialists, Occupational therapists to provide the most information to the patient and research programs.

Low vision awareness program scheduled for April 16, 2014 at Sun Towers in Sun City Center, FL. Creating macular degeneration and low vision awareness in the community. Developing a strategy for research programs with renowned Low Vision Specialist , low vision equipment specialists and case workers.We will have onsite the medical professional necessary to guide and validate the research process and procedures.

Complete the Low Vision Awareness program, April 16, 2014. Apply and receive Research grants into the areas that apply to Macular Degeneration and Low vision disease and its symptoms.

Accomplishments:
1. Provide funds for the awareness programs onsite and in Independent Living facilities for the purpose of providing the necessary information to give the patients of this disease a better outcome.
2. Provide ongoing empowerment, educational programs lead by noted experts in the field for macular degeneration patients, caregivers and the community.
3. Provide ongoing and updated sophisticated website and free video webcasts to better serve the Macular community locally, nationally and on an international level.

External Reviews

Awards

Photos

Financials

Macular Degeneration Association

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FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2018, 2017 and 2016
  • A Pro report is also available for this organization.

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Operations

The people, governance practices, and partners that make the organization tick.

Need more info?

FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2018, 2017 and 2016
  • A Pro report is also available for this organization.

See what's included

Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Not Applicable

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Not Applicable

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Not Applicable

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Not Applicable

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Not Applicable