PLATINUM2024

DRAGONFLY FOUNDATION

Strength, Courage and Joy

aka The Dragonfly Foundation   |   Cincinnati, OH   |  https://Dragonfly.org

Mission

The Dragonfly Foundation supports pediatric cancer families and patients by: • Building a network that connects Dragonfly families to each other and the community • Providing programs that enhance quality of life • Enhancing programs in partner Children’s Hospitals

Notes from the nonprofit

Note from Cincinnati Children's Hospital: “In its relatively short existence since the summer of 2010, The Dragonfly Foundation has dramatically impacted care for our patients by bringing comfort and fun to the bedside on our wards and in our clinics. The foundation has touched innumerable lives of our patients and families with visiting celebrities and inhospital events, purchase of laptops for links to families and schools events, development of family support packets and amenities, new toys and books - the list is extraordinary for such a new organization. The Dragonfly Foundation has had ambitious goals, and has always come through for our patients and families.” John P. Perentesis, MD, FAAP Director, Division of Oncology and Cancer Programs Executive Co-Director, Cancer Blood Diseases Institute Cincinnati Children’s Hospital Medical Center

Ruling year info

2011

Executive Director

Mrs. Christine Neitzke

Main address

506 Oak Street

Cincinnati, OH 45219 USA

Show more contact info

EIN

27-3183929

NTEE code info

Nonmonetary Support N.E.C. (P19)

Cancer (G30)

Nonmonetary Support N.E.C. (W19)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2023, 2022 and 2021.
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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

The fight for excellence in pediatric cancer treatment is important, but no less important is the commitment we must make to support the families that strive for fulfilling and complete lives during and after treatment. Though treatment may end, and illness may be cured or managed, the long-term effects of factors like internal group tension, familial isolation, post-traumatic stress, the anxiety of recurrence, and the emotional, physical and financial toll on the family unit often linger long after the battle is won or lost. While the importance of quality healthcare is a common shared value, we must remember to offer families a holistic, uncompromising, fighting chance at well-being, which is our urgent, passionate mission. This is a huge void in care, regardless of the hospital or place of residency.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Patient/Family Programs

Patient/family programs benefit pediatric cancer patients (birth to age 40) and their siblings and parents/caregivers:
• Gifting
• Multiple Weekly Event Opportunities
• Urgent Needs
• Resource Books
• Adopt-a-Family

Population(s) Served
Children and youth
Adults

The Dragonfly Foundation maintains two patient/family spaces: The Landing and a suite at Heritage Bank Arena. The Landing is a recreational facility in Cincinnati specifically dedicated to Dragonfly families. The suite at Heritgage Bank Arena is used for patient/family events.

Population(s) Served
Children and youth
Adults

Dragonfly's Hospital Programs support patients (and caregivers) being treated partner hospitals.
Hospital Programs
• Care Bags
• Quality of Life Enhancements
• Urgent Needs
• Technology
• Community Connections
• I Am Still Me(R)
• Beads of Courage(R)

Population(s) Served
Children and youth
Adults

Where we work

Awards

Difference Maker Award 2012

Cincinnati Children's Museum

Making a Difference Award 2012

Cincinnati Children's Hospital

Maureen Donnelly Courage Award 2012

Cancer Family Care

Civic Leadership & Community Service Award 2012

Venue Magazine

Emerging 30 Award: One of the Region's Fasting Growing Organizations 2014

Northern Kentucky Chamber of Commerce

Mary Jo's Angels 2013

Bethesda Foundation

Difference Maker Nominee 2013

Cincinnati Children's Museum

Difference Maker Nominee 2011

Cincinnati Children's Museum

Emerging Business Award 2018

Lead Magazine

usiness Awards in the Non Profit of the Year category (1-34 employees) 2016

Cincinnati USA Regional Chamber

Jefferson Award (Co-Founders) 2016

The Rotary Club of Cincinnati

C Suite Awards 2015

Venue & Lead Magazine

Finalist for Business Awards in the Non Profit of the Year category (1-34 employees 2016

Cincinnati Business Courier

Affiliations & memberships

Emerging Business Award (Lead Magazine) 2018

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of free participants on field trips

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth, Families, People with diseases and illnesses

Related Program

Patient/Family Programs

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

Number of patient/family (p/f) event tickets. All p/f events are free to registered families. This number doesn't include open p/f or hospital events where registration is not required.

Number of children served

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth

Related Program

Patient/Family Programs

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

Number of children (patients, siblings, under the age of 19) served per year.

Number of public events held to further mission

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Decreasing

Context Notes

Number of fundraising and community events Dragonfly managed or participated in each year. Includes third-party events, student programs, fundraisers, etc.

Number of Facebook followers

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The Dragonfly Foundation is filling an important gap in care. Hospitals must focus on research and medical care, The Dragonfly Foundation helps enhance in-hospital quality of life programs, and provides outpatient and family support from diagnosis through the patient and family's long-term recovery.

Dragonfly is completely focused on the day-to-day patient/family experience. Our goal is to bring strength, comfort and joy to the patient and the family as a whole. We want to help Dragonfly families meet the emotional, relational, and practical challenges they experience by mobilizing strengths, building relationships, bringing in community resources, and creating experiences that ease burdens, create memories and build connections.

We want to always do what we can, when we can, as often as we possibly can to help Dragonfly patients (ranging in age from birth to age 40) and their families.

-Expand our patient/family space to 15,000 sq. ft. and establish a permanent location for our base of operations
-Leverage public and community relations expertise
-Build a community of support, identify additional resources and foster a more compassionate community
-Partner with experts and companies that can provide counsel, products, services and opportunities to Dragonfly and its families
-Utilize standardized and customized technology solutions to automate processes, communicate, build connections, manage events and resources, and protect privacy while providing access to information and opportunities
-Add staff and utilize volunteers.
-Continue to partner with other non-profits to ensure we stay "on mission" and utilize resources to their best advantage
-Hire additional staff and utilize more volunteers to support to patients/families
-Hire a development director
-Partner on psychosocial research with Cincinnati Children’s Hospital Medical Center and continue to conduct our own research and focus groups to learn how individuals, companies, and groups can best support the needs of patients and their siblings/offspring and parents/caregivers/spouses.
-Utilize our social media and podcast followers to raise awareness about the emotional, relational, and practical challenges patients/families experience and the need to care while we wait for a cure.

The organization's Executive Director has experience in the field of public relations/communications, and is an expert in community building, public education and involvement, media relations, social media, and reputation management. All of these strengths, along with her business acumen, have enabled the foundation to exceed performance expectations. The Staff's experience, professional reputations and connections to the business community have been keys to the organization's success.

In addition, TDF benefits from an active Board, a well-respected spokesman in Hall of Fame Broadcasting legend Marty Brennaman, and a dedicated following (as of June 2020) of more than 1,000 volunteers, over 13K Facebook followers and over 3K Twitter followers, and a bevy of supporters. We continue to be a grass roots organization and have participated in/managed more than 100 community events (2019) to raise needed funds/resources. We have no time to waste.

Since 2010, we have successfully:

--implemented and maintained all programs and two patient/family spaces (located in Cincinnati)
--tripled the size of our patient/family space to 15,000 sq. ft. (see Dragonfly.org/Landing)
--published 2 books
--donated more than 50 laptops, dozens of iPads, gaming systems, coffee makers, televisions and phones to Cincinnati Children's Hospital Medical Center
--donated 2-$5,000 charging stations to hospital's oncology parents lounges
--provided 3-12 patient/family event opportunities EACH WEEK
--delivered 25-35 care bags a month (valued at $200/each) to newly diagnosed patients to Cincinnati Children's Hospital
--delivered countless toys, gift and gas cards and gifts to patients and families
--held monthly luncheons inside the hospital for patients/caregivers
--held hundreds of celebrity meet and greets
--started a kindness movement with our student ambassador program
--hosted and supported camps to teach students about kindness, compassion and philanthropy

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

DRAGONFLY FOUNDATION
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

DRAGONFLY FOUNDATION

Board of directors
as of 07/15/2024
SOURCE: Self-reported by organization
Board co-chair

Mr. Robert Brown

Bricker Graydon

Term: 2023 - 2026


Board co-chair

Mr. Brad Cates

37th Parallel Advisors

Term: 2023 - 2026

Robert Brown

Graydon

Laurel Markley

Raymond James & Associates

Jim Neitzke

Cypress Business Advisors

Bill Carigan

ProMARK

Brad Cates

37th Parallel Advisors

Jennifer Chung, MD

The Christ Hospital

Dave Cook

HealthPro Brands

Corey Cover

American WeatherTechs

Jack Brendamour

Junk King

Beth Reichert

Kings Toyota

Jason Sayers

Pella Windows

Paula Scholz

PNC Private Banking

Marc Starks

Bread of Life Ministries

Mat Whited

Clark, Shaefer and Hackett

Melissa McCarey

Meridian Bioscience

Gina Bucalo

Prolink

Michael Fox

Deloitte & Touche LLP

Michael Hermes

Horan

Ryan Kelsey

Paycor

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 7/15/2024

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

No data

Disability

No data

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 10/12/2023

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.