GOLD2021

HelpMeSee

aka HelpMeSee   |   New York, NY   |  www.helpmesee.org

Mission

HelpMeSee is a non-profit organization committed to ending the global health crisis of untreated cataracts, the leading cause of preventable blindness worldwide. By developing the world's first high-fidelity Eye Surgical Simulator to provide training for the critical shortage of skilled cataract specialists, HelpMeSee is and bringing affordable and high-quality care to the neediest populations in developing countries. HelpMeSee's comprehensive solution to cataract blindness includes surgical training, patient outreach, and support for sight-restoring cataract surgery that standardize the quality of care, medical supply chain, and evaluation practices to ensure safe surgeries.

Ruling year info

2011

President & CEO

Mr. Saro Jahani

Main address

HelpMeSee 20 West 36th Street, Floor 4

New York, NY 10018 USA

Show more contact info

EIN

27-3207754

NTEE code info

Eye Diseases, Blindness and Vision Impairments (G41)

Ambulatory Health Center, Community Clinic (E32)

Management & Technical Assistance (S02)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

HelpMeSee is developing a simulation-based training system for manual small incision cataract surgery (MSICS), to vastly increase knowledge and surgical skill in this high-quality, low-cost procedure. Simulation-based training in MSICS will improve value, assure the quality surgical outcome, promote patient safety and ensure access to cost-effective treatment of cataract worldwide; thus eliminating cataract blindness. The high fidelity continuous simulation is designed with realistic haptic feedback from speculum in, to speculum out, and comprehensive courseware to address every aspect of MSICS. HelpMeSee has completed the curriculum, training resources and systems, including an eBook for a structured, comprehensive, simulation-based and instructor delivered training. The simulation-based training accelerates surgical skills acquisition by trainees in significant numbers to address the acute shortage of cataract surgeons in the developing countries.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Cataract Free Communities

HelpMeSee’s mission is to eliminate blindness caused by cataracts globally over the next 20 years. Completely eliminating the backlog would mean that an area is "cataract free.” From that point on, the expectation is that only newly developed cases are being seen by local specialists.

In addition to understanding how an area is defined, it is also important to understand how HelpMeSee utilizes the latest technologies paired with the support of community-based volunteer groups to make this happen.

HelpMeSee’s first Cataract Free Community was declared on October 2, 2014 by the State of Utter Pradesh, India. The 42 partner surgeons at Shri Sadguru Seva Sangh Trust (SSST) completed almost 10,000 surgeries with support from HelpMeSee, completely eliminating the backlog of untreated cataract blindness cases.

The HelpMeSee—SSST campaign partnership—which began in 2011—was established with the mutual goal of implementing an evidence-based approach for eliminating blindness due to cataracts. As such, our partners in Chitrakoot agreed to be the pilot study site for HelpMeSee’s Geographic Positioning and Patient Information System and community health worker program. The process includes:
• Mapping of remote locations in the regions surrounding city centers
• Assigning one community mobilizer to each defined geographic area with a population of 250,000
• Equipping community health workers with handheld Android devices

The handheld devices, with the HelpMeSee Android App, will allow community health workers to:
• Screen and locate patients
• Ensure optimal distribution of MSICS providers
• Build community awareness
• Surgical scheduling of patients
• Facilitate post-surgical follow-up
• Implement sustained screening to maintain cataract-free status

Population(s) Served
People with vision impairments

HelpMeSee is proud of the patient-centered approach to our mission. The patient care delivery model includes several key components that will ensure that everyone who needs help receives it, and that they receive the best possible care.

HelpMeSee recruits best in class, highly trained surgical partners. Once chosen, our surgical partners are required to follow strict safety and quality standards. HelpMeSee’s single-use, pre-sterilized MSICS surgical kits are just one example. The kits are distributed to our partners and use will reduce post-operative complications and infection rates, particularly when surgeries are performed in remote environments with limited resources and power for proper sterilization techniques.

$50 USD—One adult surgery (single eye)
$350 USD—One child surgery (single eye)

HelpMeSee promotes patient centered standards and requires partners to follow appropriate patient care standards. The Quality Assurance (QA) Guidelines describe HMS minimum standards for surgical safety and excellence. It is the responsibility of the partner to determine how best to use these standards as a guideline for each specific situation where HelpMeSee funding will be used. However, these guidelines do not supersede or replace the partner’s own medical judgment of any local medical care standards or licensure requirements.

The QA Guidelines cover general safety and sterility requirements, patient selection criteria, and specific considerations for local and general anesthetic Manual Small Incision Cataract Surgical (MSICS) cases. HMS places the highest priority on the safety of the patients and staff, as well as the quality of surgical outcomes.

Though these guidelines cannot guarantee success, HelpMeSee expects partners to demonstrate the due diligence needed to ensure safe and effective surgery and to provide for the ongoing review and improvement of the quality of care.

MSICS is a highly effective, low-cost method of saving or restoring sight. However, the per surgery costs paid to partner surgeons do not reflect the costs involved in establishing a medical practice in a remote region which will be necessary to reach everyone in need. HelpMeSee provides start-up funding to newly trained MSICS specialists willing to set up clinics in areas of high need. All trained MSICS specialists will have the necessary skills and support to establish their own surgical practices to deliver 2,500 high quality cataract surgeries yearly. This will provide financial independence, employ additional personnel, and create a positive and enduring presence within their communities.

$15,000 USD—Clinic Start-Up Funding
$102,000 USD—New Clinic (Ground Up)
$42,000 USD—Clinic Annual Operating Costs

Population(s) Served
People with vision impairments

A critical component to delivery of HelpMeSee’s mission is community-based mobilization. Such strategies have been successfully developed and proven for the elimination of other diseases—such as smallpox in India, as detailed in the book House on Fire by William H. Foege, where it was described as "a spectacular triumph of medicine and public health.” An adapted version is now being implemented by the Bill & Melinda Gates Foundation and UNICEF for the eradication of polio in India. In the countries where we work, HelpMeSee will utilize this proven method by:
• Mapping remote communities and locations in least served geographic regions
• Assigning one community mobilizer to each defined geographic area with a population of 250,000
• Equipping community health workers with handheld Android devices

The Android handheld devices will allow community health workers to:
• Locate patients
• Ensure optimal positioning of MSICS providers
• Build community awareness
• Schedule, screening,patient selection and surgical services
• Facilitate post-surgical follow-up

The availability of Geographic Information System (GIS) technology at this critical point in HelpMeSee’s story will allow us—with the help of community health workers—to capture data about the exact locations of each cataract patient we encounter as well as help us pinpoint the nearest HelpMeSee partner. In turn, the partners will be able to store and add to the data as the individual becomes a patient. Finally, HelpMeSee can analyze all of the data, ultimately having a clear picture of the prevalence, distribution, surgical rate and, ultimately, the success of the HelpMeSee campaign toward the elimination of cataract blindness around the world.

Community Mobilization Geographic Positioning and Patient Information Systems (GPPIS) Costs
Incentive paid to community healthworkers ($0.75 per patient per 1M patients): $750,000
Technology costs (handheld devices, network, IP network): $500,000
HelpMeSee GPPIS Android APP and cloud-based hardware and server costs: $750,000
Total: $2,000,000

Population(s) Served
People with vision impairments

A well-designed training system and curriculum is required for effective and efficient training. HelpMeSee’s innovative Training Management System (TMS) is a platform that can be modified for use within any industry and for use across a variety of training needs. Our flexible software allows users to create highly customized eLearning units and features highly interactive tools that allow trainers and trainees to get the most from the system—and each other.

Our integrated system is rich with features, including:
• Standard roles
• Flexible privileges
• Author multiple programs geared toward different audiences
• Create new assignments via a wizard-driven system
• Create curriculum
• Build assignment workflow
• Standardized curriculum developed and/or customized for each training need
• Able to publish approved new units and make updates available to end users
• Digital asset library

Empower our instructors with standardized training resources, training tools and performance data:
• Demonstrate assignment—up to 4 trainees
• Customize assignment (as per assignment specifications)
• View real time assignment attempts on TMS display (of the trainee)
• Access enhanced performance data (Instructor tab)
• Access to additional functions to customize the assignment attempt using the TMS display (of the trainee), e.g. activate a challenge during an attempt, use training tools such as pointers, scale (Instructor tab), mark cue points
• Replay attempts
• View performance data—real time and post attempt
• View performance history (using SBLS)
• Override standard flow—for differentiation
• Use open assignments—create nonstandard assignments on the fly for quick demonstration and differentiation of training

We ensure our trainees get the most out of their eLearning experience by allowing them to:
• View list of enrolled program(s)
• Perform assignments
• Individualized training—computer guided activation of assignments to maintain standards, flow based on individual accomplishment and demonstration of proficiency
• View demonstrations by instructor in 3D (using exceptional setup in the lab or within each simulator pod)
• View attempt videos on TMS display (peers and instructor)
• View real time and post-attempt performance parameters
• Evaluation of performance—both objective and subjective (supported with entry by instructors). Can also be scored
• Feedback—based on the evaluation
• Access to support of training tools such as guidelines, OV, real time alerts, error tones, feedback metrics, etc.
• View reports
• Flag attempts and add comments
• Review performance history

The estimated training cost is $12,000 per student. Will vary based on countries/ regions and duration of training.

Population(s) Served
Students

Within the next 20 years, HelpMeSee aims to train 30,000 highly skilled cataract surgical specialists at training centers established by the organization. Trainee competence will be determined by objective measurements of skills, training, and independent validation. The project would also train nurses, administrative assistants, and technicians skilled in specialized areas relating to cataract surgery. Each surgical specialist will be capable of delivering at least 2,500 high quality cataract surgeries per year, leading to vision restoration for millions of underprivileged visually impaired and blind people, while eliminating the current backlog of cataract blindness globally.

HelpMeSee plans to establish 6–7 training centers across the world wherein aspiring cataract surgical specialists can enroll and undergo a thorough proficiency based training program on Manual Small Incision Cataract Surgery (MSICS).

Contingent on each individual’s background and experience, a trainee will be able to reach proficiency in MSICS within six months. A distinctive feature of the HelpMeSee training program is the use of an innovative, high fidelity MSICS surgical simulator. The simulator will utilize the same training methodologies and principles that have proven to be highly effective in the field of aviation for training pilots.

The HelpMeSee MSICS simulator is a high fidelity surgical simulation system that will allow simulation of the entire MSICS procedure and enable comprehensive training in a wide range of scenarios for pre-existing patient characteristics. The simulator will also have a range of more than 200 errors, challenges, and complication scenarios that the surgeons may face in the operating room during live cataract surgery. The well-designed curriculum and instructional delivery system for effective use of the HelpMeSee MSICS simulator will result in successful training of the thousands of cataract surgical specialists necessary to eliminate the backlog of blindness due to cataracts. Instructional activities will include simulator lab practice in an immersive simulation lab,classroom instruction, lab activity, self-study and live mentored surgeries performed at surgical partner sites.

Cataract Surgical Specialist Trainees are expected to undergo around 400 to 700 hours of learning based on their prior knowledge and skills. 60% of this time will be spent on simulator practice and evaluation, 20% on classroom instruction and lab activity, and 20% on self-study.

Population(s) Served
Students

HelpMeSee is designing, developing and manufacturing a virtual reality simulator and courseware to train cataract surgical specialists in Manual Small Incision Cataract Surgery (MSICS). The design calls to achieve a level of realism that is virtually indistinguishable from live surgery performed by an experienced surgeon. This will replace traditional MSICS training with simulator-based proficiency training rather than using it as an adjunct to live training. HelpMeSee is applying the aviation FAA level D (one of the highest standards in aviation) simulator standard both as a quality standard and as a template for developing the simulator.

The groundbreaking HelpMeSee MSICS Simulator will provide visual and tactile realism, coupled with sophisticated courseware, enabling trainees to practice the MSICS procedure under every pre-existing and nearly every complication scenario.

HelpMeSees’s use of such high-fidelity simulation is based on commercial pilot training, where high-fidelity simulation has been proven to produce outstanding safety and performance outcomes. HelpMeSee’s surgical simulator will replicate aviation’s enviable record of consistent safety and performance results while providing training that is quick, effective, and cost-efficient—enabling HelpMeSee to treat more people more quickly and ensuring that all surgical procedures are performed at the highest quality and at minimal cost.

The simulator, used in conjunction with sophisticated courseware software, provides an endless supply of virtual eyes and unlimited opportunities for practice without endangering patients. The simulator training will be combined with Instructor Based Training (IBT), Computer Based Training (CBT) and Simulator Based Training (SBT) instructional curriculum and learning management systems.

Population(s) Served
Students

Where we work

Awards

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Total number of surgeon trainee partners

This metric is no longer tracked.
Totals By Year
Related Program

Accessible and Affordable High Quality Cataract Surgical Care Delivery

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Our surgeon partners work every day to deliver high-quality MSICS procedures to patients suffering from cataract blindness. With a brief procedure, they restore sight to tens of thousands each year.

Number of sight-restoring procedures supported since 2012

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with vision impairments

Related Program

Cataract Free Communities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

This figure is the total number of sight-restoring MSICS procedures we have supported since we began our hospital partnerships in 2012.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

HelpMeSee is a campaign to eliminate cataract blindness worldwide, by delivering safe, effective and low cost surgeries to adults and children in communities living in the most austere economic and social conditions:

- This will be achieved through delivery of million manual small incision cataract surgeries

- Training of 30,000 cataract surgical specialists using advanced simulation based technologies adapted from experience in aviation.

- Establishing at least one surgical facility for every 250,000 population capable of delivering 2,500 surgeries a year.

- Global campaign to raise the financial resources to eliminate cataract blindness with significant partnership and contributions by country governments, private and public fundraising and major funding commitment by participants in the 'giving pledge'.

HelpMeSee strategy is composed of the following:

1. Design and development of a surgical training simulator using physics based model of the human eye with virtually indistinguishable properties. The simulator will enable repeated surgical practice to train to proficiency and every possible complication and combinations.

2. Establishment of 4 - 6 regional learning centers capable of training 1,000 trainees at any given time and support recurrent training for 7,000 to 8,000 qualified surgeons.

3. Implementation of a standardized patient safety: surgical quality assurance; patient outcome; and partner performance reporting system using cloud based network and communications systems.

4. Standardized use of pre-sterilized, single use, surgical kits to ensure quality and eliminate surgical infection.

5. Community level surveillance, awareness and mobilization using geographic information systems and voice based data gathering systems to evidence based practice of cataract blindness elimination.

6. Payment for surgical services and incentives to specialist cataract surgeons participating in the HelpMeSee campaign.

HelpMeSee is a world-class team drawn from fields of surgical medicine, simulation, learning, information technology, marketing and international health and development.

HelpMeSee has a globally distributed net-work of corporate and institutional partners who provide the most specialized technical components.

1. As of January 2017 - over 253,000 sight saving surgeries successfully completed.

2. Over 290 cataract specialist surgical partners enrolled with HelpMeSee.

3. Cataract surgical simulator prototype successfully tested, courseware design completed, version 1 production in progress.

4. Training centers in initial stages.

5. Single use, pre-sterilized surgical kits developed & in use by partners.

6. Surgical quality assurance and reporting systems successfully piloted and operational.

7. Geographic information systems based community mobilization and evidence based cataract elimination practice in pilot.

Financials

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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

HelpMeSee

Board of directors
as of 12/06/2021
SOURCE: Self-reported by organization
Board chair

Mr. James Ueltschi

James T. Ueltschi Foundation, Al Ueltschi Foundation

James Tyler Ueltschi

Al Ueltschi Foundation, James T. Ueltschi Foundation

Jeff P Mullen

Treasurer, Airbnb

Saro Jahani

No Affiliation

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 12/2/2021

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
Decline to state
Gender identity
Male

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data