High Risk Hope Inc

Tampa, FL   |  www.highriskhope.org

Mission

High Risk Hope provides support, encouragement, information and resources to women and families who are experiencing a high risk pregnancy resulting in hospital bed rest, potential premature birth and neonatal intensive care after delivery.

Ruling year info

2011

Executive Director

Bailey Nicholas

Main address

1702 N Avenida Republica de Cuba

Tampa, FL 33605 USA

Show more contact info

EIN

27-5129716

NTEE code info

Family Services (P40)

Children's and Youth Services (P30)

Patient Services - Entertainment, Recreation (E86)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2020, 2019 and 2018.
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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Premature birth affects one in ten babies in the U.S. every year and is a leading cause of death for newborns and children under five. Infants born prematurely are more likely to have health problems that can last into adulthood, such as intellectual disabilities, behavioral problems, cerebral palsy, lung issues, and vision and hearing loss. While many hospitals have invested in advanced NICU medical equipment, many needs remain. Bed rest causes physiological and psychosocial side effects. Unfortunately, negative reactions and stressors brought on by bed rest can speed up an impending premature delivery. HRH’s Bed Rest Basket program provides the information and tools that mothers on bed rest need to reduce stress. Postpartum depression (PPD) affects 15% of new moms, however, studies demonstrate the rate of PPD in moms of premature babies in the NICU ranges from 40-60%. NICU Napsacks seek to improve the mental health of NICU parents and provide the tools to positively impact health.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Bed Rest Baskets

HRH volunteers assemble and deliver Bed Rest Baskets to newly admitted, long-term high risk obstetric hospital patients. Bed Rest Baskets provide over 50 personal items that a mom-to-be needs to survive long-term hospital bed rest. The items included are not provided by hospitals and ensure every patient’s basic needs are met so the patients can focus on a healthy mom and baby. This program also provides practical and emotional support to hospital patients and hope that their family can leave the hospital with a healthy baby.

Population(s) Served
Adults
Economically disadvantaged people
Pregnant people

HRH volunteers assemble and deliver NICU Napsacks to families of newly admitted premature infants to the NICU. NICU Napsacks provide 25 personal items that are crucial to a long term hospital stay and are not currently supplied by hospitals or any other non-profit organizations. NICU Napsacks ensure a family’s basic needs are met so parents can focus on the health of their baby.

Population(s) Served
Economically disadvantaged people
Young adults
Infants and toddlers
Families
Parents

Each NICU Napsack includes children’s books as part of HRH’s Books for Babies
program. Premature babies face a number of challenges, including a known risk
of speech and language delay. Three separate 2015 studies from Harvard, Brown
and Vanderbilt Universities documented the short and long-term benefits of
parents reading (talking or singing) to their premature infants in the NICU.
HRH’s Books for Babies program ensures NICU parents are educated about the
importance of reading to their baby in the NICU, giving them a proven and
simple opportunity to help their baby.

Population(s) Served
People with disabilities
Infants and toddlers

Sadly, not all NICU families leave the hospital with their baby. With the guidance of one HRH mom’s thoughtful considerations, HRH provides resources and items that give comfort to these families during this difficult time. The program includes a bereavement box that includes keepsake items and items to aid in healing and recovery.

Population(s) Served
Families
Parents
Families
Parents

Where we work

Awards

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of donations made by board members

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Number of attendees present at rallies/events

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth, Adults, Families

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

This reflects the number of registrants for High Risk Hope's annual premature birth awareness walk, the Tot Trot. In 2016, HRH added Give Day Tampa Bay. The 2020 Tot Trot was virtual due to pandemic.

Number of return website visitors

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Context Notes

This data includes combined return website visitors to both High Risk Hope websites, www.highriskhope.org and www.tottrot.org.

Average grant amount

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Average number of dollars received per donor

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Number of unique website visitors

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Context Notes

This data includes combined return website visitors to both High Risk Hope websites, www.highriskhope.org and www.tottrot.org.

Total dollar amount of grants awarded

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of donors retained

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Total number of grants awarded

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of new programs/program sites

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of new donors

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Number of volunteers

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

In 2020, our office was closed to assembly volunteers due to the pandemic.

Number of clients served

This metric is no longer tracked.
Totals By Year
Population(s) Served

Infants and toddlers, Families, Parents

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

In 2020, programs at hospitals paused for a couple months due to the COVID-19 Pandemic.

Number of organizational partners

This metric is no longer tracked.
Totals By Year
Population(s) Served

Infants and toddlers, Families, Parents

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of print, radio, or online ads developed

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of overall donors

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Number of first-time donors

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Average number of dollars given by new donors

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Number of Facebook Followers

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Context Notes

Data includes likes of both High Risk Hope Facebook pages.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

HRH's outreach programs were designed with the ultimate goal of prolonging pregnancies and encouraging families both before and after the birth of a premature infant. HRH does this by providing Bed Rest Baskets to women on long-term hospital bed rest and NICU Napsacks to the families of premature babies being cared for in the NICU.

Over the long term, HRH's goal is to deliver a Bed Rest Basket to every woman on long-term hospital bed rest and a NICU Napsack to every family that delivers a baby prematurely in the United States. At present, HRH is fully meeting the needs of eligible patients at regional hospital partners. This includes pregnant women on hospital bed rest and premature babies who are expected to spend two or more weeks in the hospital. HRH reaches 2,250 families in crisis annually.

1. Identify hospitals for future expansion of services - When evaluating an expansion, HRH selects hospital partners that have designated Level III and IV NICUs (preference given to RPICC hospitals ) with the highest number of patient beds. These hospitals attract regional patient transfers of women with the most severe pregnancy complications and critically ill premature infants, ensuring HRH donations make it to the most deserving patients.

2. Deliver Bed Rest Baskets to qualified patients on long-term hospital bed rest and NICU Napsacks to the families of premature infants in the NICU.

Hospital Relationships
HRH has built strong relationships with our existing hospital partners through annual Memorandums of Understanding (MOU) and weekly conversations assessing the hospital's needs.

Physical Assets
• HRH headquarters is a 2,500 square foot office space owned by Barrow Realty. Barrow Realty currently donates the office space and overhead costs (telephone, Internet, insurance, and utilities) to High Risk Hope, and has guaranteed the space for five years. In HRH's expansion city, Sarasota, HRH leases storage space that measures serves as inventory storage and volunteer hubs for HRH programs in that city.
• Expertly designed HRH websites with access to professional IT management
• Computers, printers, phones, fax machine, professional camera, adobe creative suite design software, and Wi-Fi.
• Fully functioning inventory storage room and tracking system.

Volunteers
Volunteers allow HRH to carry out its programs with minimal overhead costs. In Tampa, the base of HRH volunteers has grown from just five in 2011 to nearly 175 today. Many families served by HRH, in turn, serve as volunteers.

Vendors
• Sensory 5 designs and prints and paper items included in the bags including gift tags, survival guides, and thank you notes.
Dollar Tree or SAMs Club

When High Risk Hope was founded in 2011, the goal was to deliver Bed Rest Baskets to one or two families per month at one local hospital. Today, HRH delivers 140 Bed Rest Baskets and NICU Napsacks per month to seven partner hospitals, reaching over 1,750 families in crisis each year. From 2011-2020, HRH helped 10,000 families.

WEDU, Tampa's local PBS station, selected HRH as its Nonprofit Organization of the Year at the 10th Annual WEDU Be More Awards in 2015, and HRH received the Children's Board of Hillsborough County Top Business Plan Award in 2014.

By the Numbers

3,425 GENEROUS DONORS
$2,463,000 IN CASH AND IN-KIND DONATIONS
300 DEDICATED VOLUNTEERS
6 HOSPITAL PARTNERS
2,500 HIGH RISK PREGNANCIES PROLONGED
8,700 NICU FAMILIES SUPPORTED
2,000 NEW PATIENTS SERVED EACH YEAR
PRICELESS LIFELONG IMPACT FOR PREMATURE INFANTS

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Focus groups or interviews (by phone or in person), Constituent (client or resident, etc.) advisory committees, Suggestion box/email,

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • What significant change resulted from feedback?

    As George Floyd's death reverberated across the world and finally awoke many in the white community to our implicit bias, HRH has been evaluating how being an organization founded and run by white women has created blind spots in our programs. We want to ensure that women of color receive all the items necessary for a long-term hospital stay by re-evaluating our Bed Rest Basket and NICU Napsack items. We collected input from women of color who have been beneficiaries of our programs and added hygiene and supportive items specifically tailored to their needs.

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board, Our funders, Our community partners,

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded,

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, We are constrained by HIPPA guidelines,

Financials

High Risk Hope Inc
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Operations

The people, governance practices, and partners that make the organization tick.

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

High Risk Hope Inc

Board of directors
as of 5/18/2021
SOURCE: Self-reported by organization
Board chair

Heather Barrow

High Risk Hope

Term: 2011 - 2021

Heather Barrow

High Risk Hope

Susie Bray

none

Elizabeth Carrere

none

Betsy Graham

Lauren Strahan

South Tampa Kids Dental Krewe

Alfonso Vargas

Padiatrix Medical Group

Kate DeSantis

Community Volunteer

Tracie Domino

Tracie Domino Events

Bennett Barrow

Barrow Asset Management

Paul Dolcimascolo

UBS

Courtney Robinson

10News WTSP

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 05/18/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability

Equity strategies

Last updated: 05/18/2021

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.