PLATINUM2023

COLON CANCER COALITION

"Its More Than a Race"

aka Get Your Rear in Gear & Tour de Tush   |   Edina, MN   |  www.coloncancercoalition.org

Mission

Empower local communities to promote prevention and early detection of colon cancer and to provide support to those affected.

Ruling year info

2006

President

Chris Evans

Main address

5666 Lincoln Dr Suite 270

Edina, MN 55436 USA

Show more contact info

EIN

30-0377727

NTEE code info

Alliance/Advocacy Organizations (E01)

Cancer (G30)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

The 5K race industry is saturated so we are working in 3 main areas to ensure our continued funding for our programs.
1) Differentiate our events and identify our key stakeholders in the cause.
2) Develop alternate fundraising vehicles utilizing the creativity of our participants.
3) Develop and strengthen strategic partnerships

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

*Don’t Miss It – Public Awareness Campaign

Public awareness campaign utilizing various media such as billboards, radio, TV, Subway placards, social media to promote the general public to be aware of colorectal symptoms and on-time screening.

Population(s) Served
Adults

The Colon Cancer Coalition is funding a FIT screening program from the underserved and uninsured population in Austin, TX.

Population(s) Served
Adults

The Colon Cancer Coalition is helping ColorCancer’s CareBOX program provide free at-home care supplies that are not covered by insurance to colon cancer patients in need.

Population(s) Served
Adults

Cancer Services supports the entire community by providing services to family members and caregivers in Greater Baton Rouge. The grant from Get Your Rear in Gear – Baton Rouge provides nutritional supplement, moral support, and activities for children that are affected by the disease.

Population(s) Served
Adults

Funds from Get Your Rear in Gear - Savannah help provide screening and diagnostic testing for the under and uninsured population served by the Lewis Cancer & Research Pavilion in Savannah. The funds are earmarked for immunoassay fecal occult screening and colonoscopy for those determined to be at high risk of developing this disease.

Population(s) Served
Adults

The Colon Cancer Foundation of Iowa (formerly David’s Fight) uses the grant from the Colon Cancer Coalition to build colorectal cancer awareness in Iowa through public, physician, and patient education, utilizing a variety of different programs, activities, and resources.
Through 2013, funds from Get Your Rear in Gear – Des Moines had helped provide nearly 50 colonoscopies through Fighting Funds to citizens of Iowa, and provided chemotherapy patients with snow removal during the winter months, funded the Super Colon, and other projects used to build colorectal cancer awareness.

Population(s) Served
Adults

Through a partnership with the Colon Cancer Coalition, Trinity Hospital in Muscatine, and the State of Iowa Public Health Department, funds raised through Get Your Rear in Gear – Muscatine help fund colorectal screening programs for the uninsured.

Through this program over 120 under or uninsured patients have been screened.

Population(s) Served
Adults

This program provides colonoscopy screenings and financial assistance to underinsured and uninsured individuals to help cover the cost of colonoscopies.

Population(s) Served
Adults

Wind River Cancer Wellness Retreats bring together men and women who want to further explore their cancer journey, focusing on living more fully and authentically – mind, body and spirit.

Population(s) Served
Adults

Funds raised at Get Your Rear in Gear – Beaver provided colon cancer awareness and educational information at local wellness events, events specifically targeting women’s health care.

Population(s) Served
Adults

The Colon Cancer Coalition partners with Southcoast Center for Cancer Care in the Boston-area for colon cancer prevention education for underserved populations, including FIT screening tests and a 6-week nutrition program focused on healthy eating and exercise. The grant also provides for educational training for community health workers, and a colon cancer survivor celebration.

Population(s) Served
Adults

A grant from funds raised at Get Your Rear in Gear – Boston is helping the Family Van by adding education and screening options to help reach underserved minority communities in the Boston-area.

Population(s) Served
Adults

Boston Health Care for the Homeless Program (BHCHP) is committed to providing access to the high-quality health care for Boston’s homeless men, women and children. A grant from Get Your Rear in Gear – Boston will allow the BHCHP to enhance efforts behind colorectal cancer screening and detection. The grant money is focused on both patient and provider education and tools to help make advances in colon cancer screening successful for the homeless population.

Population(s) Served
Adults

The Cancer Patient Support Program (CPS) is an independent, non-profit organization dedicated to offering cost free comprehensive supportive services to cancer patients and their families throughout Vermont and upstate New York. A portion of the grant money gives financial and emotional support to colon cancer patients, providing everything from transportation to helping pay bills.

Population(s) Served
Adults

A grant from funds raised in Columbus will be used to fund programs and activities related to hereditary colon cancer and the Ohio Colorectal Cancer Prevention Initiative (OCCPI).

Population(s) Served
Adults

Funds raised at Get Your Rear in Gear – Elgin allowed the Colon Cancer Coalition the opportunity to fund free colonoscopies, FOBT testing and educational events and programming at Advocate Sherman Hospital.

Population(s) Served
Adults

Funds raised through Get Your Rear in Gear -Fort Worth help provide financial assistance for patients currently undergoing treatment for colon cancer.

Population(s) Served
Adults

Grant dollars raised at Get Your Rear in Gear & Tour de Tush – Fort Worth are helping provide financial assistance for patients currently undergoing treatment for colon cancer.

Population(s) Served
Adults

Funds raised in southeastern Virginia through Get Your Rear in Gear – Hampton Roads helps cover colon cancer screening for the area’s underserved and uninsured populations.

Population(s) Served
Adults

Through the partnership with the Colon Cancer Coalition and funds raised at Get Your Rear in Gear – Kansas City, the University of Kansas Department of Family Medicine is working to educate and screen under served and under- and uninsured residence through FIT screening tests.

Population(s) Served
Adults

Get Your Rear in Gear – Milwaukee partners with the Medical College of Wisconsin for colon cancer awareness, education, and research programs.

Population(s) Served
Adults

The grant to Victory Health Partners provided FIT colon cancer screening tests as well as educational and wellness opportunities for the underserved population in Mobile.

Population(s) Served
Adults

The grant from funds raise at Get Your Rear in Gear – New Hampshire supports a FIT screening program for the uninsured and under served communities served by Harbor Care Health & Wellness Center.

Population(s) Served
Adults

The Colon Cancer Coalition is building and funding a FIT screening program to address the Seacoast community’s uninsured and underserved population.

Population(s) Served
Adults

Funds raised at Get Your Rear in Gear – New Hampshire fund a FIT screening program for the uninsured and underserved populations in Manchester.

Population(s) Served
Adults

Through a partnership with the Colon Cancer Coalition, Trinity Hospital in Muscatine, and the State of Iowa Public Health Department, funds raised through Get Your Rear in Gear – Muscatine help fund colorectal screening programs for the uninsured.

Through this program over 120 under or uninsured patients have been screened.

Population(s) Served
Adults

The grant from the Colon Cancer Coalition helps AliveAndKickn and The Genetic Alliance launch a National Lynch Syndrome Registry, allowing genetic research, support for Lynch survivors and previvors, and other Lynch Syndrome awareness and education.

Population(s) Served
Adults

Money raised at Get Your Rear in Gear – Orlando funds the Young Adult Colon Cancer Education in Central Florida targeting young adults between the ages of 18 – 30. The program will specifically seeking to educate African Americans and Hispanics in the Central Florida about the risks and symptoms of colorectal cancer.

Population(s) Served
Adults

Funds support the Jefferson University Medical – Department of Colorectal Surgery and the Kimmel Cancer Center with leading-edge research in colon cancer and compassionate care in Philadelphia.

Population(s) Served
Adults

Funds raised in Philadelphia allowed the American Association for Cancer Research (AACR) to work with health professionals to increase colon cancer screening in the area through education and intervention.

Population(s) Served
Adults

Projects funded at the Fox Chase Cancer Center include:

2017: Researching treatment options and outcomes for early rectal cancer patients.
2016: Finding colon cancer and compassionate care in Philadelphia.
2015: Quality of Life research project: Understanding Quality of Life Issues following Recovery from Colon Cancer Treatment.

Population(s) Served
Adults

Money raised by participants of Get Your Rear in Gear – Philadelphia help fund Penn Medicine’s patient navigation program for colorectal cancer screening.

Population(s) Served
Adults

Periodically colorectal cancer patients in the Philadelphia-area will be awarded with a grant to help cover the cost of treatment and other cost of living expenses while they are in treatment.

Population(s) Served
Adults

The Colon Cancer Awareness and Patient Assistance Project funded by money raised at Get Your Rear in Gear – Portland aims to promote and improve early detection through increasing awareness and breaking down barriers for underserved patients. This program will provide financial assistance for screening and other costs associated with colon cancer screening procedures and treatments.

Population(s) Served
Adults

Money raised through Get Your Rear in Gear – Raleigh will help build a colon cancer screening program focusing on FIT for the underserved and uninsured community.

Population(s) Served
Adults

A grant from the Colon Cancer Coalition will help High Country Community Health build a FIT colon cancer screening program for the underserved and uninsured populations. The program is built around a patient navigator who will help patients navigate the screening process and ensure completed screening. A public awareness billboard campaign will accompany the roll-out of the screening initiative.

Population(s) Served
Adults

This grant from funds raised through Get Your Rear in Gear – San Antonio will help the Brent Lewis Bridges Foundation develop educational program for early detection, screening and treatment of colon cancer targeting firefighters.

Population(s) Served
Adults
Emergency responders

Hill Country Mission for Health has partnered with two local gastroenterology groups (San Antonio Gastroenterology Associates and Gastroenterology Consultants of San Antonio) who are providing colon cancer screening at a reduced cost to the clinic. These partnerships will allow these funds to be used for the benefit of a larger number of patients.

Population(s) Served
Adults

ThriveWell Cancer Foundation supports eligible adult colorectal cancer patients with assistance to cover their co-insurance costs of chemotherapy or radiation treatments along with transportation assistance for active cancer treatment throughout San Antonio, TX.

Population(s) Served
Adults

Through a partnership with Operation Access, funds raised at Get Your Rear in Gear – San Francisco support colorectal screening for the underserved communities in the Bay Area.

Population(s) Served
Adults

Funds from Get Your Rear in Gear – Savannah help provide screening and diagnostic testing for the under and uninsured population served by the Lewis Cancer & Research Pavilion in Savannah. The funds are earmarked for immunoassay fecal occult screening and colonoscopy for those determined to be at high risk of developing this disease.

Population(s) Served
Adults

Funds raised at Get Your Rear in Gear – Seattle help support colorectal cancer screening for the under served and uninsured in Seattle and the surrounding community.

Population(s) Served
Adults

The Cancer Support Center provides a networking group; individual and family counseling; patient and caregiver support groups; and education, nutrition and wellness programs.

Population(s) Served
Adults

Funds raised by the Get Your Rear in Gear 5K Run/Walk in Tucson support screening programs through El Rio Health Center to provide colorectal cancer screening for underserved and uninsured patients in Tucson, AZ.

Population(s) Served
Adults

A grant from funds raised at Get Your Rear in Gear – Tulsa helps pay for hospital, lab, and other fees needed to complete colorectal cancer screening following a positive stool-based test in the under served communities in Tulsa.

Population(s) Served
Adults

A Community Health Center serving northeast Oklahoma, Morton Comprehensive Health Services is providing free preventative colon cancer screenings and patent education to at-risk and uninsured patients. Free colon cancer educational materials will also be distributed at local outreach events.

Population(s) Served
Adults

Funds raised at Get Your Rear in Gear – Twin Cities will help the Minnesota Department of Health fund three International Medical Graduation (IMG) navigators to provide patient navigation services at three partner community clinics. Priority populations to screen include communities with high populations of native Spanish, Somali, Amharic, and Swahili speakers.

Population(s) Served
Adults

Through funds raised at Get Your Rear in Gear – Twin Cities, the Colon Cancer Coalition is able to fund FIT screening and education program for the under served and uninsured in Saint Paul, MN.

Population(s) Served
Adults

With money raised at Get Your Rear in Gear – Twin Cities, the Colon Cancer Coalition is able to help the Native American Community Clinic (NACC) fund a FIT screening program to directly benefit Native American populations.

Population(s) Served
Adults
Indigenous peoples

The Colon Cancer Coalition is helping fund the implementation of the Phrazer device to help increase screeening in Minneapolis’ diverse populations.

Population(s) Served
Adults

Funds raised through Get Your Rear in Gear – Twin cities help the Colon Cancer Coalition to enhance the genetic content of the website and bring accurate resources to constituents, in order to impact the health of the families of all impacted by colorectal cancer.

Population(s) Served
Adults

Funds raised at Get Your Rear in Gear – Wichita are being granted to Via Christi Hospital, providing colon cancer screening for the underinsured and uninsured population.

Population(s) Served
Adults

Through Get Your Rear in Gear – Winston-Salem the Colon Cancer Coalition provided Cancer Services of North Carolina money to give financial assistance for medications and other cancer-related needs of colon cancer patients, specifically the under-served populations.

Population(s) Served
Adults

As a member of the EAO group, materials targeting the under 50 age group were created. A Times Square electronic billboard ran in the holiday season specifically aimed at the younger population to make them aware of colorectal cancer symptoms.

Population(s) Served
Adults

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of participants engaged in programs

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, People with diseases and illnesses

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

These are the amount of people actively participating in our Get Your Rear in Gear/Tour de Tush race series. The amount of people actually attending these awareness events are 2x this amount.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Colon cancer is the 2nd leading cause of cancer death and we know that with on-time screening we can reduce that number. That means making people aware of symptoms and family history and giving them the means to follow through with their medical providers. Right now we are facing the largest % increase in diagnosed cancers in the under 45 population so a main objective is to reframe our message to make sure we are speaking to that demographic. Partnerships with other colon cancer organizations is a continued goal of our organization. Each of use brings a unique piece of the puzzle to fighting this disease.

Our organization has a unique structure that allows us to have relationships with local gastroenterologists in each of our markets. We have been able to work through our community grants to set up FIT testing, free screening and nurse navigators at the local level.

We are a founding partner in the Early Adult Onset (EAO) consortium that is working on the under 45 population cancer increases.

We have added a variety of events to compliment our Get Your Rear in Gear races series. We offer people the opportunity to do benefits and Fundraise Your Way events on our behalf which has grown our revenues significantly over the last 4 years. Our strength is in our large network of passionate volunteers who want to direct an event to benefit the coalition.

We have grown from a single event in 2006 to 36+ events in 2022.
Our model allows individuals to impact their community vs other organizations that take all of the money nationally. Our 2022 grants distributed were $1.3M

Financials

COLON CANCER COALITION
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

COLON CANCER COALITION

Board of directors
as of 04/25/2023
SOURCE: Self-reported by organization
Board chair

Matthew Sorochty

Woodard, Hernandez, Roth & Day, LLC

Matt Flory

Account Representative, State Health Systems, American Cancer Society, Inc.

Lisa Laliberte

MNGI Digestive Health

Brian Shelly

Athena Health

Mary Harris, Ph.D.

Austin Community College

Allison Rosen

UT Health

Monica Bringle

Toro

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 1/18/2022

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

No data