Alzheimers Community Care, Inc.

We place a safety net around patients and caregivers every day.™

West Palm Beach, FL   |  www.alzcare.org

Mission

Alzheimer’s Community Care is dedicated to promoting and providing community-based, family-centered care for patients and their caregivers living with neurocognitive disorders, through the belief, that where there is help, there is hope.

Ruling year info

1996

President and CEO

Ms, Mary M. Barnes

Main address

800 Northpoint Parkway Suite 101-B

West Palm Beach, FL 33407 USA

Show more contact info

EIN

31-1481653

NTEE code info

Alzheimer's (G83)

Health Support Services (E60)

Brain Disorders (G48)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Nearly 66,000 people in Alzheimer’s Community Care’s (ACC) three-county footprint (Palm Beach, Martin, and St. Lucie Counties) have Alzheimer’s disease or other dementia. Seventy percent of these patients are cared for by family at home. Both the Alzheimer’s patient and caregiver need dementia-specific services to maintain quality of life and live in the community in safety and dignity. Families want to care for their loved ones with Alzheimer’s, but the burden can be overwhelming. Patients cannot be left alone, and their behavior is misunderstood by society. As a result, caregivers become isolated and depressed and patients face empty days. Studies show that without support, 40% to 70% of caregivers die before the patient from the stress and burden of caregiving. To maintain health, caregivers need respite from the challenges of caring for their loved one and patients need cognitive stimulation and socialization to have quality of life. ACC’s comprehensive model of care does both.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Specialized Alzheimer's Day Care

It is critical that Alzheimer’s patients experience structure, stimulation, safety, acceptance and socialization to stabilize medical and behavioral symptoms and decrease the severe depression and isolation so common in the disease. Specialized Alzheimer's Day Care is designed specifically for this purpose. One of the defining characteristics of Specialized Alzheimer’s Day Care is the . Patients and caregivers are our entire reason for being. It is our mission to provide love, care and compassion at this most difficult and painful passage in their lives.

Population(s) Served
People with diseases and illnesses
Caregivers

Licensed nurses with specialized training in dementia provide education, support and links to services for Alzheimer's patients and caregivers. Services include evaluations, home visits, emotional support and regular follow-up.

Population(s) Served
People with diseases and illnesses
Caregivers

Registered nurses are available 24 hours per day, 7 days per week, to provide telephone support and crisis intervention related to problems with Alzheimer's disease and related dementia disorders. The nurses work closely with law enforcement officers through the crisis line, guiding them through situations involving an individual with possible dementia.

Population(s) Served
Caregivers

Dementia-specific training is provided to health and social service professionals, first responders, caregivers and the community as a whole. Alzheimer's Community Care is an approved provider of continuing education for nurses, nursing home administrators, social workers, marriage and family therapists, and mental health counselors.

Population(s) Served
Adults

The ID Locator Service, which has no enrollment fee,
provides an additional safety tool for patients
with Alzheimer’s disease and a related
neurocognitive disorder who may wander
away from a safe and supervised setting. Patients are fitted with a light weight bracelet that utilizes the latest technology, allowing law enforcement to track patients in wooded areas, building and even water, allowing law enforcement agencies to find and return wandering patients to safety.

Population(s) Served
People with diseases and illnesses
Caregivers

Where we work

Accreditations

Joint Commission 2017

Non-Profits First 2019

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of volunteers

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Holding steady

Number of support groups offered

This metric is no longer tracked.
Totals By Year
Related Program

Family Nurse Consultant

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Number of crisis hotline calls answered

This metric is no longer tracked.
Totals By Year
Related Program

Family Nurse Consultant

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Percent of caregivers who learned/utilized new strategies that make caring for their loved one with Alzhiemer's at home possible.

This metric is no longer tracked.
Totals By Year
Related Program

Family Nurse Consultant

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Holding steady

Percent of caregivers indicating that they intend to continue to provide community-based care.

This metric is no longer tracked.
Totals By Year
Related Program

Family Nurse Consultant

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Holding steady

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The overarching goal of the Organization is to help Individuals with Alzheimer’s disease or other neurocognitive disorder remain living in community-based settings throughout each stage of the disease progression. Families want to keep their promise to their loved ones and provide care for them in the familiar surroundings of home. For many families, the challenge of providing community-based care is overwhelming. These families need dementia-specific guidance to navigate the ever-changing manifestations of the disease as well as the overwhelming stress and burden of providing round-the-clock care.

The Organization remains on the cutting-edge of dementia-care, bringing new strategies and techniques to patients and caregivers to improve the quality of life for both patients and caregivers. Our 11 Specialized Alzheimer’s Day Care Centers provide therapeutic care to patients throughout the day. Special offerings include Music Therapy, Art Therapy, Pet Therapy (live and robotic), as well as music and dance performances. Special luncheons for patients and caregivers to celebrate Thanksgiving and Caregiver Appreciation provide fellowship among families and staff, who are all working together on behalf of patients.

As the incidence of Alzheimer’s disease increases, the Organization, understanding that healthcare professionals must be equipped with the most current information to effectively work with these patients, whether being treated for Alzheimer’s disease itself, or other illnesses like diabetes, has trained over 1,000 nursing and health professional students and 120 physicians. As a result, these professionals are adapting patient education techniques for disease management to meet the special needs of Alzheimer’s patients, creating a culture of care that respects the dignity of each patient regardless of the level of cognitive decline.

The hallmark of Alzheimer’s Community Care’s model of care is the emphasis on the health and well-being of BOTH the patient and caregiver. Caring for an Alzheimer’s patient is extremely stressful. As the disease progresses the patient cannot be left alone. As the patient’s behaviors become more unpredictable and inappropriate families isolate which leads to empty days for patients and feelings of depression among caregivers. Family Nurse Consultants create care plans for both patient and caregiver. As a care partner, nurses provide families with education, resources and support that reduce the burden of care, improving the quality of life for both. Caregivers receive life-saving respite through patient enrollment in Specialized Alzheimer’s Day Care. The ID Locator Bracelet Service also helps to reduce caregiver stress, as they know that should the unthinkable happen and their loved one wanders, they will be found quickly and returned to safety. Together the model of care keeps families together and helps to avoid or delay costly nursing home placement.

Alzheimer’s Community Care is taking a broad approach to changing the paradigm for Alzheimer’s patients and families. On the micro level, the organization provides programing designed to assist individual families to continue to provide home-based care. These services include the Family Nurse Consultant Program, Specialized Alzheimer’s Day Care (11 locations), Carergiver Support Groups, Case Management Services, an ID Locator Bracelet Service, and a 24-Hour Alzheimer’s Crisis Line to improve the quality of life for both Alzheimer’s patients and their family caregivers.

On the macro level, Alzheimer’s Community Care is working to reduce the stigma associated with Alzheimer’s disease or other neurocognitive disorder, improve the care of Alzheimer’s patients across the state of Florida and create dementia-friendly communities. The Organization partners with eight colleges to present dementia-specific care training for our community’s future healthcare providers. Students are given the latest information as researchers learn more about neurocognitive diseases. For example, for patients with Lewy Body Dementia, anesthesia may be fatal. Alzheimer’s Community Care keeps abreast of research and brings the latest information to clinicians to help them improve patient care. importance. A partnership with the Veterans Administration brings dementia-specific care training to their staff, who see increasing numbers of combat veterans experiencing Alzheimer’s disease and other neurocognitive disorders as a direct result of their service to the country. The organization continues to develop partnerships with educational, faith-based and law enforcement organizations to foster a culture that respects the dignity of and provides support to dementia patients and their families.

Alzheimer’s Community Care has been educating the community through the Annual Alzheimer’s Educational Conference since 1997, bringing nationally recognized speakers and researchers in Alzheimer’s disease and other neurocognitive disorders to present to caregivers and professionals to improve care for patients and the quality of life for caregivers.

Alzheimer’s Community Care is also spearheading a pilot project to create a dementia-friendly community across Martin County, Florida. This includes providing sector-specific training to retail, healthcare and government employees to increase Alzheimer’s disease awareness and sensitivity. Based on the success of the initiative, the Organization will be expanding the work into Palm Beach and St. Lucie Counties.

The Organization also advocates legislatively to improve the care of Alzheimer’s patients, including the successful passage of the Specialized Alzheimer’s Services Adult Day Care Act, which provides additional regulations and raises the bar for services to patients with Alzheimer’s disease or other neurocognitive disorder.

Mary M. Barnes is the founding director of Alzheimer’s Community Care. She has been the President and CEO throughout the 23-year history of the organization. Ms. Barnes has been working in the field of gerontology for her entire career and emerged as a leading advocate for Alzheimer’s disease and related disorders in 1985 when she became the founding Executive Director of the Greater Palm Beach Chapter of a National Florida Alzheimer’s Association. She serves on numerous committees including Florida’s Alzheimer’s Disease Advisory Committee’s Home and Community-Based Services Subcommittee, Palm Beach County’s Special Needs Shelter Interagency Committee and Florida’s Silver Alert Support Committee.

The board and senior leadership of the organization remain committed to working locally to give patients and caregivers compassionate and culturally appropriate care that is embedded in communities through partnerships with faith-based and other organizations. Even the term local has changed as needs emerged. The initial focus of Palm Beach County has grown as other areas request services and support. Through leadership’s vision the organization has grown rapidly as community needs emerge. For example, after creating the successful Silver Alert, Ms. Barnes continued forward to include Lost on Foot, that now incorporates the ID Locator Bracelet Service. Ms. Barnes and the board lend their voice to policy advocates at the local, state, and national level to promote policies that support community-based, family-centered care for all who suffer from Alzheimer’s disease and other neurocognitive disorders.

Karen Gilbert, DNP, MS, RN, CDP serves as the Vice President of Education and Quality Assurance and as such, supervises the Family Nurse Consultant Program. She has worked with Alzheimer's patients for over 21 years and is recognized as a Certified Dementia Practitioner (CDP) by the National Council of Certified Dementia Practitioners. As a Certified Alzheimer’s disease trainer, Ms. Gilbert plans and delivers monthly in-service training to give all nursing and direct service staff knowledge of new and emerging care strategies for Alzheimer’s patients and their family caregivers. Ms. Gilbert has been instrumental in ACC’s recent Joint Commission reaccreditation with high marks and outstanding Palm Beach County Financially Assisted Agency audit. All Family Nurse Consultants (FNC) are licensed nurses with specialized training and expertise in working with Alzheimer's patients and their family caregivers.

All staff, regardless of their role in the Organization, receive Dementia-Specific Level I and Level II training within six months of hire.

In its 23-year history, Alzheimer’s Community Cares’ (ACC) comprehensive approach has improved access to healthcare for Alzheimer’s patients and caregivers, improved health outcomes for underserved and uninsured Floridians and has fostered systemic change in the funding and treatment of patients and families coping with Alzheimer’s disease.

The organization has grown from one location to 11 Specialized Alzheimer’s Day Care Centers, (a 12th is currently in the planning phase), one Family Nurse Consultant to seven (with an additional four Family Nurse Consultant Assistants),an ID Locator Bracelet Program serving over 250 patients each year, and educational programs serving caregivers and professionals.

The Organization’s demonstrated success includes ACC becoming the first community-based, dementia-specific organization in the nation to receive accreditation by the Joint Commission. In 2014 ACC received the Rosalyn Gilbert Caregiver Legacy Award for outstanding work with minority populations and in 2015 the Organization was the National Merit Award Winner from the Mutual of America Foundation for innovations in healthcare education.
ACC’s strategic priority for the immediate future is advocating for standard, routine cognitive screening across all healthcare settings, making cognition the sixth vital sign. This strategy would allow for the early identification of symptoms of cognitive impairment. As a result of the prompt evaluation, any treatable causes, such as hypothyroidism, malnutrition/dehydration, vitamin deficiencies, menopause, or brain tumor could be treated immediately. If there is an underlying dementia, some causes of cognitive decline, while not reversable, may be treatable to slow the rate of further decline. Any treatments of Alzheimer’s disease or other neurocognitive disorder are typically more effective when started early in the disease process. Also, diagnoses are more accurate early in the disease process. A full understanding of which neurocognitive disorder is impacting the brain is important in developing care plans. Obtaining an accurate diagnosis once most of the brain has become affected is difficult.
For patients and families, an early diagnosis is empowering. Patients are able to participate in their own legal, financial and long-term care planning. They are then able to make their wishes known to family members. With early diagnosis, patients can spend their time focusing on what matters most to them, such as recording family history or making memories with grandchildren while they still can. Early diagnosis also helps patients and families develop realistic expectations and plan for the future together which will result in reduced stress and feelings of burden and regret later in the disease process. Taken altogether, these advantages result in a higher quality of life for the person afflicted, less stress for family care partners, and more time to treasure the present and prepare for the future.

Financials

Alzheimers Community Care, Inc.
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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Alzheimers Community Care, Inc.

Board of directors
as of 7/21/2021
SOURCE: Self-reported by organization
Board co-chair

Mr. Robert Gorman

Robert J. Gorman PA

Term: 2019 - 2023


Board co-chair

Mr. G. Mark Shalloway

Shalloway and Shalloway

Term: 2019 - 2023

Randy Johnson

Communications by Johnson

Clark Bennett

Spectrum Municipal Service

Judy Rappaport

Preferred Lifestyle Services

Kevin Wrenne

Banyan Place

William Armstead

Boys and Girls Club of St. Lucie County

Bonney Johnson

US Trust Bank of America

Robert Rollins

Beacon Group, Inc.

Linda Spielmann

American Cancer Society

Deborah Diaz

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 08/20/2019

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

No data

Disability

Equity strategies

Last updated: 08/20/2019

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.