BRONZE2023

Foundation for Prader-Willi Research, Inc.

aka FPWR   |   Covina, CA   |  www.fpwr.org

Mission

The Foundation for Prader-Willi Research (FPWR) is a national non-profit tax exempt organization whose mission is to eliminate the challenges of Prader-Willi syndrome through the advancement of research and therapeutic development.

Ruling year info

2001

Executive Director

Susan Hedstrom

Director of Research Programs

Theresa Strong

Main address

440 N Barranca Ave #3620

Covina, CA 91723 USA

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EIN

31-1763110

NTEE code info

Birth Defects (G20)

Birth Defects, Genetic Diseases Research (H20)

Alliance/Advocacy Organizations (H01)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Annual PWS Research Grant Program

The Foundation for Prader-Will Research is dedicated to supporting research to advance the understanding and treatment of Prader-Willi syndrome (PWS). FPWR is particularly interested in supporting innovative research that will lead to the development of new therapies to alleviate the symptoms associated with PWS. The Foundation awards research grants to qualified scientific investigators. All research proposals undergo a rigorous review for scientific merit, innovation, and relevance to the PWS community.

Population(s) Served
Researchers

Where we work

Financials

Foundation for Prader-Willi Research, Inc.
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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Foundation for Prader-Willi Research, Inc.

Board of directors
as of 01/26/2023
SOURCE: Self-reported by organization
Board chair

Paul Wissmann

FPWR

Keegan Johnson

FPWR

Mark Greenburg

FPWR

Rachel Tugon

FPWR

Jessica Howard

FPWR

Shawn Johnson

FPWR

Daniel Chorney

FPWR

Rachel Fernandez Hansen

FPWR

Tanya Johnson

FPWR

Jeannine Kowal

FPWR

Andrew Zinn M.D., Ph.D.

Rachel Wevrick Ph.D.

Maithe Tauber M.D.

Jim Resnick Ph.D.

Tony Goldstone M.A., M.D., MRCP, Ph.D

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 1/26/2023
info Candid has made improvements to the race and ethnicity options.

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or straight
Disability status
Person without a disability

The organization's co-leader identifies as:

No data

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data