DOWN SYNDROME ASSOCIATION OF BREVARD INC

Respect. Include. Support. Educate.

aka Down Syndrome Association of Brevard Inc.   |   Merritt Island, FL   |  http://www.dsabrevard.org

Mission

Our mission is: To RESPECT the unique gifts of people with Down syndrome To INCLUDE individuals with Down syndrome in all aspects of our community To SUPPORT individuals with Down syndrome and their families To EDUCATE families, medical communities, government and local agencies Our vision is to build a culture of respect, inclusion, support, and education in Brevard County where individuals with Down syndrome can RISE to their full potential at all stages of their lives.

Notes from the nonprofit

During 2019 and 2020 we have worked intentionally to build up and strengthen our foundation (bylaws, policies and procedures, technology tools, etc.) so that we can continue to grow and develop from a small grassroots nonprofit to a more robust one that utilizes the very best practices to serve our mission efficiently and effectively. We have come a long way...and know that we have far to go still and are grateful to our donors, fellow nonprofit professionals and the many families we serve for continuously educating and inspiring us.

Ruling year info

2007

Board President

Victoria Timberlake

Main address

1170 Grand Cayman Dr

Merritt Island, FL 32952 USA

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Formerly known as

FEDS of Brevard, Inc.

EIN

32-0185913

NTEE code info

Developmentally Disabled Services/Centers (P82)

Disabled Persons' Rights (R23)

Youth Development Programs (O50)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Healthcare Provider Outreach

We train and provide best-practice resources to the medical community in Brevard county so that they can provide up-to-date, accurate information to families impacted by Down syndrome. This includes materials, in partnership with the University of Kentucky and Down Syndrome Diagnosis Network, for supporting healthcare providers in delivering a diagnosis of Down syndrome prenatally and postnatally.

Population(s) Served
Academics
Adults

Annual low-cost event for families of all ages to connect in person to celebrate together.

Population(s) Served
Families
People with intellectual disabilities

For newly diagnosed parents (prenatal or postnatal), a basket of positive, up to date and accurate information on Down syndrome and the first year of life--includes books, pamplets, and new-baby gifts to celebrate the birth of their baby.

Population(s) Served
Parents

In 2020 we hosted more than a dozen FREE webinars featuring national and local experts on a variety of topics: estate planning, guardianship options, educational (IEP) advocacy, making the most of tele-health, speech therapy, occupational therapy, physical therapy behavior therapy strategies for at-home, etc.

In partnership with other Ds groups around the country (Down Syndrome Affiliates in Action, Down Syndrome Assn of Delaware, Down Syndrome Association of Greater St. Louis) we have hosted 4-5 weekly classes on yoga, music, boxing, movement, storytime, etc. since April 2020.

Population(s) Served
Infants and toddlers
Children and youth

Twice-monthly free e-newsletter filled with local resources and experts, upcoming events, etc. goes to 400+ families in the region.

Population(s) Served
Adults

We have hosted this family festival day annually for 18 years. While many people support it as a fundraiser, it is also our largest community outreach program, including dozens of vendors/exhibitors and more than 800+ participants. The day includes carnival games, free food and entertainment, etc.

Population(s) Served
Adults

Where we work

Affiliations & memberships

Down Syndrome Affiliates in Action 2020

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Focus groups or interviews (by phone or in person),

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve,

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board, Our funders, Our community partners,

  • Which of the following feedback practices does your organization routinely carry out?

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback,

Financials

DOWN SYNDROME ASSOCIATION OF BREVARD INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

DOWN SYNDROME ASSOCIATION OF BREVARD INC

Board of directors
as of 02/22/2022
SOURCE: Self-reported by organization
Board chair

Victoria Timberlake

Victoria Timberlake

Tracy Kiernan

Emily DeWoody

Jay Freeland

James Rudolph

Shannon Dowdell

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes