NMD United, Inc.
Connecting adults living with neuromuscular disabilities.
Mission
NMD United is a non-profit organization composed of adults living with neuromuscular disabilities. This peer-led organization will foster meaningful interactions and provide informational resources to increase self-direction while promoting independence.
Ruling year
2014
President
Emily Wolinsky
Vice President
T.K. Small
Main address
3310 W. Braker Lane Suite 300, #927
Austin, TX 78758 USA
EIN
32-0441691
NTEE code
Alliance/Advocacy Organizations (W01)
Disabled Persons' Rights (R23)
Programs and results
What we aim to solve
NMD United is working to address a dearth of information and resources available to adults living with the various forms of neuromuscular disabilities. NMD United addresses the needs through peer support, advocacy and direct grant opportunities.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Alex Landis Emergency Fund (ALEF)
The Alex Landis Emergency Fund (ALEF) is named after one of NMD United's founders who died unexpectedly in 2015. The purpose of the fund is to help adults with neuromuscular disabilities who are experiencing a crisis related to their ability to live independently.
Virtual University
NMD United Virtual University is the place for adults with neuromuscular disabilities to discuss important issues relevant to their lives and independence. We host webinar discussions on an as-needed, as-requested basis. These discussions and informative webinars cost nothing to attend.
Where we work
External reviews
Our results
How does this organization measure their results? It's a hard question but an important one.
Total number of grants awarded
This metric is no longer tracked.Totals By Year
Population(s) Served
People with physical disabilities, Economically disadvantaged people, Unemployed people
Related Program
Alex Landis Emergency Fund (ALEF)
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
The number of Alex Landis Empowerment Fund Independent Living micro-grants awarded to adults living with neuromuscular disabilities.
Total revenue earned to support advocacy efforts
This metric is no longer tracked.Totals By Year
Population(s) Served
People with physical disabilities, Economically disadvantaged people, Unemployed people
Related Program
Alex Landis Emergency Fund (ALEF)
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Context Notes
Approximate total of individual donations made to NMD United through PayPal, Facebook, Facebook and Amazon Smile.
Number of clients who self-report increased skills/knowledge after educational program/intervention
This metric is no longer tracked.Totals By Year
Population(s) Served
Economically disadvantaged people, Unemployed people, People with physical disabilities
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Increasing
Context Notes
Approximate number of adults with neuromuscular disabilities who received direct peer support, guidance, or an ALEF Independent Living grant from an NMD United program.
Number of clients participating in support groups
This metric is no longer tracked.Totals By Year
Population(s) Served
People with physical disabilities, Economically disadvantaged people, Unemployed people
Related Program
Alex Landis Emergency Fund (ALEF)
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
Adults with neuromuscular disabilities participating in the Living with MD Facebook support group.
Number of adults with disabilities receiving sufficient social and emotional support
This metric is no longer tracked.Totals By Year
Population(s) Served
People with physical disabilities, Economically disadvantaged people, Unemployed people
Related Program
Alex Landis Emergency Fund (ALEF)
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
People invited to participate in educational programming created and facilitated by NMD United.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
NMD United is working to make living with a neuromuscular disability easier.
What are the organization's key strategies for making this happen?
NMD United uses a combination of peer support, information distribution, service referral, advocacy and financial relief efforts.
What are the organization's capabilities for doing this?
The entire Board of Directors of NMD United is fully comprised of people successfully living with neuromuscular disabilities. We all fundamentally understand the challenges and barriers of this target population.
What have they accomplished so far and what's next?
The most successful initiative of NMD United so far is our Alex Landis Empowerment Fund (ALEF) grant opportunities. Under this program, NMD United provides direct cash grants to help cover the expenses of Personal Care Assistant Advertising, Consumable Medical Supplies, Assistive Technology, Durable Medical Equipment & Accessible Vehicle Maintenance and Repair.
https://www.nmdunited.org/projects
Another successful component of NMD United is our "Virtual University". With this effort, we use videoconferencing to provide community engagement and practical information distribution.
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
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NMD United, Inc.
Board of directorsas of 10/6/2021
Emily Wolinsky
T.K. Small
Thomas Small
Maria Sotnikova
Kendra Scalia
Dan Darkow
Brooklyn Marx
Michael Wasser
Ali Ramos
Val Vera
Aubrie Lee
Liz Persaud
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? No
Organizational demographics
Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.
Leadership
The organization's leader identifies as:
The organization's co-leader identifies as:
Race & ethnicity
Gender identity
Sexual orientation
No data
Disability
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