NMD United, Inc.

Connecting adults living with neuromuscular disabilities.

aka NMD United   |   Austin, TX   |  http://nmdunited.org/

Mission

NMD United is a non-profit organization composed of adults living with neuromuscular disabilities. This peer-led organization will foster meaningful interactions and provide informational resources to increase self-direction while promoting independence.

Ruling year info

2014

President

Emily Wolinsky

Vice President

T.K. Small

Main address

3310 W. Braker Lane Suite 300, #927

Austin, TX 78758 USA

Show more addresses

EIN

32-0441691

NTEE code info

Alliance/Advocacy Organizations (W01)

Disabled Persons' Rights (R23)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

NMD United is working to address a dearth of information and resources available to adults living with the various forms of neuromuscular disabilities. NMD United addresses the needs through peer support, advocacy and direct grant opportunities.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Alex Landis Emergency Fund (ALEF)

The Alex Landis Emergency Fund (ALEF) is named after one of NMD United's founders who died unexpectedly in 2015. The purpose of the fund is to help adults with neuromuscular disabilities who are experiencing a crisis related to their ability to live independently.

Population(s) Served

In 2019, NMD United will provide a tip/trick/resource for living more independently on our social media pages.

Population(s) Served

NMD United Virtual University is the place for adults with neuromuscular disabilities to discuss important issues relevant to their lives and independence. We host webinar discussions on an as-needed, as-requested basis. These discussions and informative webinars cost nothing to attend.

Population(s) Served

NMD United Unites Texas is an NMD United project dedicated to adults living with neuromuscular disabilities who live in Texas! Texans with NMDs will be able to seek and make invaluable connections to peer support networks and resources in their local communities, as well as around the state.

Population(s) Served

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Total number of grants awarded

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Related Program

Alex Landis Emergency Fund (ALEF)

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The number of Alex Landis Empowerment Fund Independent Living micro-grants awarded to adults living with neuromuscular disabilities.

Total revenue earned to support advocacy efforts

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Related Program

Alex Landis Emergency Fund (ALEF)

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Context Notes

Approximate total of individual donations made to NMD United through PayPal, Facebook, Facebook and Amazon Smile.

Number of clients who self-report increased skills/knowledge after educational program/intervention

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

Approximate number of adults with neuromuscular disabilities who received direct peer support, guidance, or an ALEF Independent Living grant from an NMD United program.

Number of clients participating in support groups

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Related Program

Alex Landis Emergency Fund (ALEF)

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Adults with neuromuscular disabilities participating in the Living with MD Facebook support group.

Number of adults with disabilities receiving sufficient social and emotional support

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Related Program

Alex Landis Emergency Fund (ALEF)

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

People invited to participate in educational programming created and facilitated by NMD United.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

NMD United is working to make living with a neuromuscular disability easier.

NMD United uses a combination of peer support, information distribution, service referral, advocacy and financial relief efforts.

The entire Board of Directors of NMD United is fully comprised of people successfully living with neuromuscular disabilities. We all fundamentally understand the challenges and barriers of this target population.

The most successful initiative of NMD United so far is our Alex Landis Empowerment Fund (ALEF) grant opportunities. Under this program, NMD United provides direct cash grants to help cover the expenses of Personal Care Assistant Advertising, Consumable Medical Supplies, Assistive Technology, Durable Medical Equipment & Accessible Vehicle Maintenance and Repair.

https://www.nmdunited.org/projects

Another successful component of NMD United is our "Virtual University". With this effort, we use videoconferencing to provide community engagement and practical information distribution.

Financials

NMD United, Inc.

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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

NMD United, Inc.

Board of directors
as of 12/6/2019
SOURCE: Self-reported by organization
Board co-chair

Emily Wolinsky


Board co-chair

T.K. Small

Thomas Small

Maria Sotnikova

Kendra Scalia

Andraea LaVant

Dan Darkow

Brooklyn Marx

Michael Wasser

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No