PLATINUM2023

CHILDHOOD CANCER FOUNDATION OF SOUTHERN CALIFORNIA INC

Where there is light, there is HOPE.

aka CCFSC   |   Loma Linda, CA   |  https://ccfsocal.org/

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Mission

To provide emotional, social, educational, and financial assistance to families who have or have had a child with cancer

Ruling year info

1981

Executive Director

Stephanie Avila

Main address

PO Box 1663

Loma Linda, CA 92354 USA

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EIN

33-0536599

NTEE code info

Cancer (G30)

Youth Development Programs (O50)

Human Service Organizations (P20)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Each year in the U.S. there are an estimated 15,780 children between the ages of birth and 19 years of age who are diagnosed with cancer. In a Statistical Brief by the Healthcare Cost and Utilization Project of the Agency for Healthcare Research and Quality findings, the average cost of a stay in a hospital for a child with cancer is $40,000. With an average stay of 12 days, and sometimes several stays per child, the cost of treatment for children diagnosed with cancer is alarming. Although insurance can largely cover the medical costs associated with the life-threatening illness, that isn’t the only financial burden on these families. There are so many additional out-of-pocket expenses in caring for their cancer diagnosed child that include: travel expenses for daily and weekly hospital/clinic visits (gas and/or car maintenance), meals, hotels, childcare for siblings, and more. We aim to step in to provide resources so families can dedicate time and finances to their child's care.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Family Assistance and Education Program

This program is vital to our organization and our approach to bring a social support system to families dealing with the challenges of a cancer diagnosis. The entire family not only the child who receives a cancer diagnosis is affected.
The majority of the families we serve are low- and moderate income leading to limited access to similar resources that may be available in other areas. CCF meets directly with each family and works in coordination with hospital social workers to reach as many families as possible providing an increased opportunity for families to become familiar with the many support opportunities offered by CCFSC.
Teen Connection, a program of CCF, provides a unique social support system for those struggling with adolescent cancer. This program provides our participants with the building blocks and support necessary to enjoy life as a teen despite their current circumstance helping them move on to adulthood as confident and productive individuals.

Population(s) Served
Children and youth
Adults

Being a teen is a very difficult and challenging time in life and having cancer compounds that difficulty. Being able to speak and interact with other teens experiencing cancer can be helpful. Teen Connection was formed at the teens request in July 2002 providing ample opportunities for teens diagnosed with cancer to meet with youth and adult facilitators to enjoy life as a teen, socialize, share experiences and receive peer support. Teen Connection gets together about once a month to do various activities which include trips to: Disneyland, Knott's Scary Farm, Gameworks, bowling alleys, and so much more at no cost to the teen patient.

The teenagers we serve through this program benefit from a program that gives them the opportunity to have normal life experiences in spite of their life threatening diagnosis. We provide ample opportunities for teens diagnosed with cancer to meet with youth and adult facilitators to provide support through their cancer journey.

Population(s) Served
Adolescents

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Average number of service recipients per month

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth, Caregivers, Families

Related Program

Family Assistance and Education Program

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of new clients within the past 12 months

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with disabilities, Chronically ill people, Terminally ill people, Children and youth

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of youth who volunteer/participate in community service

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

#1 Provide effective support program to over 700 families who have a child diagnosed with cancer.\n\n#2 Provide yearly family events that offer a safe environment for patients and siblings to enjoy of activities as well as provide parents the opportunity to interact with other parents who "have been there" as a form of emotional and social support. Currently transitioned into Drive-Thru socially distanced events. \n\n#3 Provide educational materials to families who have a child who has been diagnosed with cancer to aid in the understanding of their treatment and in dealing with problems that cancer can manifest within the family structure.\n\n#4 Effectively promote childhood cancer awareness\n\n#5 Facilitate social development among cancer stricken teenagers leading toward a social and productive adulthood.\n\n#6 Provide a home-away-from home for families receiving treatment at Loma Linda Children's Hospital.

#1 Provide effective support program to over 700 families who have a child diagnosed with cancer.\r\no Provide Family Registration Information to families who reside throughout Southern California and have a child who has or has had cancer between the ages of birth to 18 years.\r\no Maintain an 80% positive response rate in Family Registration.\r\no Work in conjunction with the hospital social workers from Loma Linda Children's Hospital and Kaiser Fontana to reach as many families as possible and provide the individual emergency support needed by each family.\r\n\r\n#2 Provide yearly family events that offer a safe environment for patients and siblings to enjoy of activities as well as provide parents the opportunity to interact with other parents who "have been there" as a form of emotional and social support.\r\no Schedule Family events to include: Spring Egg Hunt, Family Camp, Family Picnic, Pumpkin Patch Party and Christmas Celebration.\r\no Monitor attendance at family events to evaluate program.\r\n\r\n#3 Provide educational materials to families who have a child who has been diagnosed with cancer to aid in the understanding of their treatment and in dealing with problems that cancer can manifest within the family structure.\r\no Provide materials to a minimum of 30 Newly Diagnosed Families registered with CCFSC.\r\n\r\n#4 Effectively promote childhood cancer awareness\r\no Encourage the awareness of the signs and symptoms of childhood cancer which is key in saving the lives of young people battling the disease by providing Signs & Symptoms cards at each event.\r\no Efficiently use volunteers as a major factor in helping promote childhood cancer awareness at CCFSC family events and fundraising activities.\r\no Promote childhood cancer awareness in conjunction with fundraising activities to raise funds to continue services offered to families.\r\no Actively enhance our social media reach to raise awareness of the program and signs & symptoms of childhood cancer\r\n\r\n#5 Facilitate social development amongst cancer stricken teenagers leading toward a social and productive adulthood.\r\no Host a minimum of 10 support meetings to help facilitate social development amongst cancer stricken teenagers; leading to the development of a social and productive adulthood.\r\no Increase communication amongst teens diagnosed with cancer at each Teen Connection event leading to emotional and social support.\r\n\r\n#6 Provide a home-away-from home for families receiving treatment at Loma Linda Children's Hospital.\r\no Maintain a fully stocked pantry to provide accessibility of meals for patients and parents.\r\no Provide essential services to families that include laundry room service, kitchen accessibility, and bedrooms.\r\no Maintain a Caretaker who lives on grounds that is available to check-in/check-out families, and also available in case of any emergencies or questions.

CCFSC works directly with families to identify their need for support. Direct interaction with each family allows us to better understand the individual and general need of each family. Emergency assistance will be provided to families in coordination with the hospital social workers assigned to their individual case. Working with the hospital social workers allows us to efficiently identify their social, educational and emergency needs and how to best assist each individual family. Communication with another family experiencing this devastating disease is very beneficial to each family member. CCFSC support meetings and family activities/events provide this support. With the coordinated support of the community and volunteers we will manage and continue our annual family events that provide interaction between our organization and families who have a child with cancer as well as between the families.\r\n\r\nTeen Connection facilitates social development amongst the cancer stricken teenagers of San Bernardino and Riverside Counties. Monthly support meetings that include trips to various locations would be dedicated for the progress, support and interaction of the teens within this demographic. Friendships will be formed and Teen Connection members will be able to continue in their social development and progress toward a social and productive adulthood. The teenagers that participate in the Teen Connection program are members of the community and when they are avid participants in the program, they will gain personal values of accountability and confidence that will help them move on to adulthood and become confident and productive individuals in the community.

Today, CCFSC is now more than 800 families strong committed to serving children with cancer and their families throughout Southern California emotionally, financially, educationally and with emergency assistance. CCFSC works directly with the families to identify their need for support. Communication with another family experiencing this devastating disease is very beneficial. CCFSC support meetings and family activities/events provides this support. We hope to expand program funding in order to provide additional support to families who have unmet needs.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We act on the feedback we receive

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, It is difficult to find the ongoing funding to support feedback collection

Financials

CHILDHOOD CANCER FOUNDATION OF SOUTHERN CALIFORNIA INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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CHILDHOOD CANCER FOUNDATION OF SOUTHERN CALIFORNIA INC

Board of directors
as of 07/06/2023
SOURCE: Self-reported by organization
Board co-chair

Peter Brierty

Retired San Bernardino County Fire Chief

Term: 2006 -


Board co-chair

Frank Schnetz

Vanir Development Company, Inc.

Term: 2014 -

Terry Lundy

Wayne Williams

Southern California Edison

Sara Romero

Rebecca Hoggarth

CSU, San Bernardino

Ryan Stelzner

Southern California Edison

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 2/23/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
Hispanic/Latino/Latina/Latinx
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 04/14/2021

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.