PANCREATIC CANCER ACTION NETWORK INC

aka Pancreatic Cancer Action Network   |   Manhattan Beach, CA   |  www.pancan.org

Mission

Our mission is to take bold action to improve the lives of everyone impacted by pancreatic cancer by advancing scientific research, building community, sharing knowledge and advocating for patients. PanCAN's vision is to create a world in which all patients with pancreatic cancer will thrive.

Ruling year info

1999

President & CEO

Ms. Julie M. Fleshman, JD, MBA

Main address

1500 Rosecrans Avenue Suite 200

Manhattan Beach, CA 90266 USA

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Formerly known as

PanCAN

EIN

33-0841281

NTEE code info

Alliance/Advocacy Organizations (E01)

Alliance/Advocacy Organizations (H01)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

PanCAN Patient Services

PanCAN Patient Services is the place to contact when facing pancreatic cancer. Our highly trained and compassionate Case Managers provide free, personal one-to-one support and information about the disease. We can also find resources for any questions you have related to pancreatic cancer, including genetic and biomarker testing, clinical trial searches, finding a specialist, treatment options, diet and nutrition and more.

No organization supports pancreatic cancer patients like we do. Through our Patient Services, we provide more resources and speak with more pancreatic cancer patients and caregivers than any other organization in the world.

Population(s) Served

Every pancreatic cancer patient is different. Patients who receive treatment based on their biology can live longer. The Pancreatic Cancer Action Network strongly recommends all pancreatic cancer patients get genetic testing for inherited mutations as soon as possible after diagnosis and biomarker testing of their tumor tissue to help determine the best treatment options. Patients should discuss both tests with their care team. The tests can be available through their treating institution or PanCAN’s Know Your Tumor® precision medicine service.

Population(s) Served

Pancreatic cancer patients who participate in clinical research have better outcomes. Every treatment available today was approved through a clinical trial. The Pancreatic Cancer Action Network strongly recommends clinical trials at diagnosis and during every treatment decision.
We maintain the most comprehensive and up-to-date database of pancreatic cancer clinical trials available in the United States.
Our Patient Services Case Managers can run a search for you and provide a personalized list of clinical trials that match what you need. They will base the search on information you provide, such as how far you’re willing to travel, your diagnosis, and your treatment history. Or you can start your own search with this easy-to-use online tool. Select the trials you're interested in and request additional information from our Case Managers.

Population(s) Served
Adults
Caregivers
Adults
Caregivers
Adults
Caregivers

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Patient Services Interactions

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Total Research Investment

This metric is no longer tracked.
Totals By Year
Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

PanCAN’s vision is to create a world in which all patients with pancreatic cancer will thrive.

Our goals by 2030 are ambitious:
Drive the 5-year survival from 10% to 20%
Thanks to PanCAN's approach to fighting pancreatic cancer, the survival rate reached double digits in 2020. In 2022, it increased to 11%. Now we're working to get to 20% by 2030 through funding scientific research, disrupting the traditional pancreatic cancer clinical trials system with our own new approach, leading an early detection initiative, and more.

Raise $80M annually
Donors fund every bit of progress we make. Individual gifts, corporate partnerships, DIY and peer-to-peer fundraising are all critical to our lifesaving research and keeping our vital patient and caregiver programs and services operating – free of charge. Our signature fundraising event, PanCAN PurpleStride, takes local action with a nationwide impact as tens of thousands of supporters take steps to end pancreatic cancer in 60 communities – fueling PanCAN’s life-changing programs.

Grow awareness of PanCAN in the U.S. from 14% to 30%
More people need to know about pancreatic cancer – symptoms, risk factors, treatment options and how PanCAN is here to help patients and families at every step. We'll increase awareness through national campaigns, media coverage, strategic partnerships, events and more, and we'll continually measure our success.

PanCAN's mission is to take bold action to improve the lives of everyone impacted by pancreatic cancer by advancing scientific research, building community, sharing knowledge and advocating for patients.

PanCAN’s Comprehensive Approach
PanCAN was the first organization dedicated to fighting pancreatic cancer in a comprehensive way, and for more than two decades, we’ve grown a nationwide movement tackling the disease from all angles.

Scientific Research and Clinical Initiatives
PanCAN is leading large-scale, groundbreaking research initiatives that will be the catalyst for transforming the way pancreatic cancer is detected and treated. No single pancreatic cancer organization has taken on such a comprehensive approach. As an unbiased stakeholder, PanCAN is uniquely positioned to bring together the nation’s key thought leaders and experts in pancreatic cancer research to help patients thrive.
Thanks to generous donors, we fund our own research grants, and we also bring to life revolutionary clinical projects – all of which are making progress against pancreatic cancer.

PanCAN Patient Services
PanCAN Patient Services is the first place to contact when facing pancreatic cancer. Our highly trained and compassionate Case Managers provide free, personal one-to-one support and information about the disease. We can also find resources for any questions you have related to pancreatic cancer.
No organization supports pancreatic cancer patients like we do. Through our Patient Services, we provide more resources and speak with more pancreatic cancer patients and caregivers than any other organization in the world.

Government Advocacy
More than 80% of pancreatic cancer research funding comes from the federal government. PanCAN advocates drive legislative support for increased federal funding by urging Congress to prioritize pancreatic cancer and lifesaving cancer research to accelerate progress for the third leading cause of cancer-related death in the United States. When we come together as one voice, Congress listens. Since starting our efforts in 1999, National Cancer Institute funding for pancreatic cancer has been boosted by 970%.

Community Engagement
We are the only pancreatic cancer organization with a nationwide grassroots army, inspiring their communities to take action and accelerate progress. Thanks to this dedicated volunteer network, we mobilize year-round to raise awareness and funds to fight the world’s toughest cancer. Our committed volunteer leaders connect us to survivors, caregivers, HCPs and the local pancreatic cancer community in 57 affiliates across the country.
We are a founding member of the World Pancreatic Cancer Coalition, now with more than 100 patient advocacy organization members representing more than 30 countries.

Since our founding in 1999 as a three-person nonprofit, PanCAN has grown into the leading pancreatic cancer organization with a committed staff of more than 170 and a nationwide network of volunteers, survivors, caregivers, Key Opinion Leaders, top cancer scientists, clinicians and healthcare professionals from institutions across the United States who specialize in pancreatic cancer. We’ve built a powerful community, driven by our mission to improve the lives of everyone impacted by pancreatic cancer.

PanCAN was the first organization dedicated to fighting pancreatic cancer in a comprehensive way. We’ve grown a nationwide movement tackling the disease from all angles.

The talent and expertise comprising our programmatic areas drive our ambitious goals and initiatives. PanCAN Patient Services, Research and Clinical Initiatives, Government Advocacy and Community Engagement are led by and staffed with experienced, knowledgeable and passionate people.

We’ve convened a group of experts – all leaders in the field who advise us on how to move forward, dedicated to creating a world in which all pancreatic cancer patients will thrive.
Research is a PanCAN priority – each year we’ve increased investment in our leading-edge scientific and clinical initiatives and Research Grants Program funding. We’ve invested more than $149M since 2003, with an additional $28M in FY22.

Our ambitious goals demand challenging plans and projects. It’s essential that we are a nimble organization, able to pivot swiftly when necessary, to ensure our goals are on track.

When PanCAN launched in 1999, there was simply nowhere for patients and their families to turn for support. Since then, PanCAN has:
• Been called on by more than 325,000 patients, caregivers and healthcare providers for free information and vital programs and resources
• Since 2003, invested approximately $149M in research, including our Research Grants Program and leading-edge scientific and clinical initiatives
• Boosted National Cancer Institute funding for pancreatic cancer by more than 970%, thanks to our relentless advocacy
• Launched Precision PromiseSM , PanCAN’s groundbreaking clinical trial platform to accelerate new treatment options for pancreatic cancer patients and PanCAN’s Early Detection Initiative to study whether imaging at the time of new-onset diabetes leads to earlier detection of pancreatic cancer
• Published data from PanCAN’s Know Your Tumor® precision medicine service that showed patients who are able to go on therapies that match their tumor biology live an average of one year longer compared to patients who don’t
• Built a dedicated community of nationwide, driven by 700+ volunteer leaders inspiring local action to raise awareness about our mission
• Earned Charity Navigator’s highest rating of four-stars for 17 consecutive years. The distinction is one that fewer than 1% of charities evaluated can claim and means PanCAN has taken the steps to show our donors and constituents that we are accountable, transparent and financially healthy – vigilant stewards of our donors’ funds.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • Who are the people you serve with your mission?

    Anyone affected by pancreatic cancer: patients, caregivers, family members and healthcare professionals.

  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Case management notes, Constituent (client or resident, etc.) advisory committees,

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • With whom is the organization sharing feedback?

  • Which of the following feedback practices does your organization routinely carry out?

  • What challenges does the organization face when collecting feedback?

Financials

PANCREATIC CANCER ACTION NETWORK INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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PANCREATIC CANCER ACTION NETWORK INC

Board of directors
as of 06/09/2022
SOURCE: Self-reported by organization
Board chair

Ms. Hilarie Koplow-McAdams

No Affiliation

Julie Fleshman, JD, MBA

Pancreatic Cancer Action Network Inc

Peter Cashion

Michael Korengold

Jason Kuhn

Craig Rogerson

Barbara Kenner, PhD.

Karen Young, CPA

Vice Chair

Marco Argenti

Dennis Cronin

Lisa Kulok

Nancy Stagliano, Ph.D.

Karyn Temple

Rod Williams, MBA

Hilarie Koplow-McAdams

Chair

Organizational demographics

SOURCE: Self-reported; last updated 4/18/2022

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data