Schizophrenia & Psychosis Action Alliance

Improving Lives Affected by Psychosis

aka Schizophrenia & Psychosis Action Alliance   |   Alexandria, VA   |  www.sczaction.org

Mission

We are a Global Impact Organization Moving Individuals, Families, and Policies Forward to Improve and Save Lives For people living with schizophrenia and psychosis, every day without treatment can mean the difference between life and death. We are committed to changing the treatment paradigm, accelerating scientific knowledge, and promoting policies that improve and save lives. We stand for hope and recovery by promoting peer-based support programs, accelerating scientific research, identifying effective treatments, and promoting productive public policies.

Ruling year info

2008

Chief Executive Officer

Gordon Lavigne

Main address

2308 Mount Vernon Ave. Suite 207

Alexandria, VA 22301 USA

Show more contact info

EIN

33-1213657

NTEE code info

Mental Health Disorders (F70)

Alliance/Advocacy Organizations (E01)

Civil Rights, Advocacy for Specific Groups (R20)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

The Schizophrenia and Related Disorders Alliance of America promotes improvement in lives affected by schizophrenia-related brain illnesses (mental illnesses involving psychosis). SARDAA promotes hope and recovery through support programs, education, collaboration, and advocacy. Our vision is that every person living with a schizophrenia-related brain disorder receives respect, appropriate treatment and an opportunity to live a meaningful and satisfying life in a compassionate community free of discrimination.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Training and Support for Schizophrenia Alliance

Provide training and support for Schizophrenia Alliance (SA), a peer support/self-help step program for persons who have schizophrenia or a related illness.

Population(s) Served
Adults

Peer run support for family and friends of individuals living with a schizophrenia and related illnesses.

Population(s) Served
Caregivers

Free app to help a caregiver or their loved one with Schizophrenia and related disorders. Choose what they want to track and be able to see all their inputs in one place so that they can see patterns and trends to help better manage schizophrenia and related disorders. We are planning to add provision of phones and data plans to support the app and transportation for the first 3 months following hospital discharge for those who need these with a goal to decrease hospitalization.

Population(s) Served
Adults

Schizophrenia Alliance (SA) is a self-help group for persons who have schizophrenia or a schizophrenia-related illness. SA was founded in the Detroit area in July of 1985 and since that time, thousands of people have participated in meetings. There are currently more than 150 groups meeting throughout 31 states, as well as Australia, Brazil, Canada, Mexico, France, India, and Venezuela.

Statement of Purpose: Schizophrenia Alliance is organized and managed by persons experiencing schizophrenia or a related disorder. It is administered in partnership with SARDAA. The SA statement of purpose is as follows:

To help restore dignity and sense of purpose for persons who are working for recovery from schizophrenia or related disorders.
To offer fellowship, positive support, and companionship in order to achieve good mental health.
To improve our own attitudes about our lives and our illness.
To provide members with latest information regarding schizophrenia.
To encourage members to take positive steps towards recovery from the illness.

Population(s) Served
Adults

Where we work

Awards

Inspiration 2016

Alkermes

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

SARDAA advocates for increased awareness that schizophrenia-related brain development disorders are physiological; there is hope - treatment works and must be provided. We provide support groups in an empathic environment for individuals who are diagnosed and their loved ones. The support groups provide encouragement to collaborate in treatment and foster recovery.

We are working to reclassify schizophrenia as a brain illness so people with schizophrenia will be treated like people with other neurological diseases such as Alzheimer’s and Parkinson’s and we can eliminate incarceration and homelessness.

We are developing a campaign for media to pledge to change the narrative and recognize that schizophrenia-related illnesses are brain disorders and stop using derogatory terms and misinformation.

Ultimately, we work to improve lives affected by schizophrenia-related brain illnesses.

The Schizophrenia Alliance Coordinator reaches out to other national organizations to encourage the initiation of new support groups utilizing the SA protocols. The coordinator maintains contact with the groups leaders after mentoring them through their start-up and encourages maintenance of their groups. We need to provide SA workshops to help train and encourage new SA leaders throughout the USA.

We are offering a Doctoral student the opportunity to study the effectiveness of the SARDAA Health Storylines app bundled with transportation for their dissertation. Some funding sources have been identified, but more are needed and we will continue to research for more sources with our fund development team.

We are researching how other organizations have strategized changing classification of their disease and increasing the access to treatment. We are seeking funding for planning and implementation of a signed pledge.

We have new guest speakers for our conference call groups to help diagnosed individuals and caregivers learn of new tools, research and coping with their unique challenges.

We have campaign for media to pledge to change the narrative and recognize that schizophrenia-related illnesses are brain disorders and stop using derogatory terms and misinformation.

We have a art installation Hearing Voice of Support website to share videos of those living with schizophrenia and caregivers who share their stories to bring more awareness. The visiting art installation has been located in NYC and on Capitol Hill in Washington D.C.

We have several layers of capable volunteers, including professionals in the area of psychiatry, fund development, administration and lived experience. We have seed funding and potential funding for our projects and potential doctoral students to consider the pilot study.

SA has been in existence since 1985 and has grown to include other countries and the conference call groups have been successfully lead by capable SA leaders. We have developed training materials for workshops that have been successful. We have support group member manuals .

New collaborative organizations express the desire to join with us to advocate for the changes elaborated.

We have developed a great user friendly, helpful app. We have outlined the program to be implemented and studied.
We have developed many collaborations.
We have increased national and international status.
We have committees researching strategies for changing the classification of schizophrenia-related brain disorders into the classification of neurology.
We have an excellent volunteer professional grant writing team.
We are very frugal when securing vendors and materials.
We need to strengthen the Board of Directors so they are capable of securing more funding.
We have a Communications Committee to drive the media campaign.
We need to secure general funding as well as project funding and educational funding sources.

Financials

Schizophrenia & Psychosis Action Alliance
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Compare nonprofit financials to similar organizations

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Schizophrenia & Psychosis Action Alliance

Board of directors
as of 4/5/2021
SOURCE: Self-reported by organization
Board chair

Mary Palafox

Susan Sheena

Marketer, Educator and Entrepreneur

Mary Palafox

A Registered Nurse, of 35 yrs in Nursing Administration, Supervision, and Patient Care Coordination for in-patient and ambulatory care services.

Russ Stalters

SARDAA

Robert Laitman

Neurologist

Sandy Dimiterchik

SA Staff Supporter

Tim Murphy

Ph.D.

Angela Babaev

Community Volunteer

Kurt Talbot

Community Volunteer

Linda Stalters

CEO

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 04/05/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

No data

Race & ethnicity

Gender identity

 

Sexual orientation

No data

Disability

No data