LUPUS FOUNDATION OF AMERICA, GREATER OHIO CHAPTER, INC
Help Us Solve the Cruel Mystery
Programs and results
What we aim to solve
The Lupus Foundation of America, Greater Ohio Chapter envisions a world without lupus. We are working to address the advancement of science and medicine of lupus to find a cure and improve the quality of life for all people affected by lupus.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
New Patient Education Classes
Provide information and conduct programs to increase awareness and knowledge of the disease for people affected by lupus.
Optimal Health Lupus Support Groups
Improving the quality of life for persons affected by Lupus by providing emotional support for the person and their respective family - an estimated 1,500-2000 persons benefited during the year
Lupus Summits
Educational programs presented by physicians and other medical professionals on specific topics pertaining to lupus which include current treatments, diet and nutrition, current research trends and strategies for managing chronic disease.
Where we work
Affiliations & memberships
Better Business Bureau Wise Giving Alliance - Organization 2011
Better Business Bureau Wise Giving Alliance-Organization 2021
External reviews

Photos
Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Hours of support group services offered
This metric is no longer tracked.Totals By Year
Population(s) Served
Adults, Ethnic and racial groups, Health, Children and youth
Related Program
Optimal Health Lupus Support Groups
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Context Notes
This year we trained over 24 Patient Navigators. They are charged with reaching out to those impacted by lupus. They are a patient and or caregiver. Their role is education, resources, and support.
Number of support groups offered
This metric is no longer tracked.Totals By Year
Population(s) Served
Health, Age groups, Ethnic and racial groups
Related Program
Optimal Health Lupus Support Groups
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Context Notes
These groups offer a safe place for people to come together with their peers and share their achievements and their challenges.. Peer to Peer support is vital to their journey.
Number of clients participating in support groups
This metric is no longer tracked.Totals By Year
Population(s) Served
Age groups, Ethnic and racial groups, Family relationships, Health
Related Program
Optimal Health Lupus Support Groups
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Increasing
Context Notes
Often after the first visit to the group the patient feels better after sharing with their peers and may go on without the group and will return when hurdles come their way. Many foster relationships.
Number of adults with disabilities receiving sufficient social and emotional support
This metric is no longer tracked.Totals By Year
Population(s) Served
Health, Family relationships, Ethnic and racial groups, Age groups
Related Program
New Patient Education Classes
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
Most lupus patients are living with a chronic disease that also brings along other chronic diseases. Many are on disability and feel alone and isolated. We provide a lupus community .
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
The Lupus Foundation of America, Greater Ohio Chapter is dedicated to improving the quality of life for all people affected by lupus through programs of research, education and advocacy. The organization will advance the science and medicine of lupus to find a cure and improve the quality of life for all people affected by lupus.
What are the organization's key strategies for making this happen?
The Lupus Foundation of America, Greater Ohio Chapter focuses on research, advocacy and education. We host annual walks throughout Ohio to raise funds for lupus research, provide multiple monthly support groups and new patient education classes throughout Ohio and hold a variety of events and fundraisers. It is vital that the patient receives the latest and most accurate information about lupus. This mysterious disease is difficult to diagnosis and to treat. Together we strive to constantly ensure that there is an arsenal of clinicians and new treatments to take on the enormous task of treating this cruel disease that impacts mostly women and women of color worst.
The journey with lupus is complex and often lonely and misunderstood. It does not have to be. Together we can have a better quality of life. We are here for education, awareness, support and resources until the cause or cure is found.
What are the organization's capabilities for doing this?
Unfortunately we are a grassroots organization that needs much more in the area of support and resources to truly fight the enormous fight. The funding for lupus is minimal compared to other diseases. Lupus does not get the funding that it deserves. We do our best to meet the needs of our constituents but much more needs to be done.
Until the public knows lupus we will struggle in getting to there being NO LUPUS.
We have a small, dedicated and passionate staff that take huge leaps everyday to meet the demands placed upon them. Most have lupus themselves. It is important to them to be here to make a difference.
What have they accomplished so far and what's next?
Here in the state of Ohio we were able to work with the Ohio Department of Health in doing the first ever in the state, The Ohio Lupus Needs Assessment. This project is a road map for the direction needed to be successful at meeting the needs of those who serve the patient as well as the patient.
From this direction we have succeeded at education over 600 clinicians in Ohio about lupus. They earned CME's and CEU's. The goal was to provide a tool kit to be on the look out for lupus and how to best treat it. This project also allowed us to create much needed community partners across the state to help us create awareness about lupus. This year we succeed in educating patients and their families about lupus at our various educational summits across the state.
Our digital footprint has grown into the thousands and our in person direct support is in the hundreds.
Our state and national advocacy efforts are the driving force towards advancements on the treatment and cure of lupus.
We are building a community that cares about lupus and together we support each other so that no one does this journey alone.
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
LUPUS FOUNDATION OF AMERICA, GREATER OHIO CHAPTER, INC
Board of directorsas of 02/22/2022
Maria Woyma
Cleveland Clinic
Term: 2013 - 2016
Suzanne Tierney
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
The organization's co-leader identifies as: