Human Services


Supporting & Celebrating Down Syndrome in Northeast Ohio

aka USOD



To provide support, education, and advocacy for people with Down syndrome, their families and communities throughout Northeast Ohio.

Ruling Year


Executive Director

Toni Mullee

Main Address

PO Box 31720


Formerly Known As

Up Side of Downs of Greater Cleveland


Down syndrome, Downs, Northeast ohio,





Cause Area (NTEE Code)

Services to Promote the Independence of Specific Populations (P80)

Alliance/Advocacy Organizations (E01)

Fund Raising and/or Fund Distribution (T12)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Social Media

Programs + Results

What we aim to solve

The Up Side of Downs provides support, education and advocacy for people with Down syndrome, their families, and communities in 16 counties in Northeast Ohio. USOD is the primary source in Northeast Ohio for accurate and up-to-date information to families, the medical community, schools and the larger community about Down syndrome. USOD also addresses the need for programs for parents and people with Ds, including support groups, parent education, math & reading enrichment for students, and social programs.

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

New & Expectant Parent Support

Social Programming

Family Grants Program


Medical Outreach

Where we work

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have they accomplished so far and what's next?

The Up Side of Downs is working to provide support through programming and resources to parents, people with Down syndrome, community members, and professionals who serve them to support individuals with Down syndrome in order that they achieve their goals in school, employment, and community. USOD's work is done so that people with Down syndrome are accepted, included and empowered. The Up Side of Downs works toward creating a community where people with Down syndrome have limitless opportunities and the ability to pursue their dreams.

USOD’s strategy for addressing the issues individuals with Ds face, is to educate and support individuals with Ds, their families and the wider community through targeted programs and communication, utilizing the most accurate and up-to-date resources available. Programs are offered and information is shared throughout our service area. We also advocate on behalf of the Down syndrome community at the local, state and national levels through strategic partnerships with other Down syndrome organizations with similar goals.

USOD has 11 staff members (1 full-time and 10 part-time) providing valuable programming and support to individuals with Down syndrome, their families and the broader community throughout 16 counties in Northeast Ohio. We have a Medical Advisory Board comprised of medical professionals throughout NEO who provide information relating to medical issues. Our board is comprised of professionals in a variety of fields and they support our mission and programs as well.

USOD tracks progress in a variety of ways, including program attendance, feedback from participants, and an open line of communication regarding the need for additional offerings with parents, self-advocates, the medical community and schools. Adjustments are made to address the needs of our constituents on an ongoing basis. The organization engages in strategic planning by creating, with board and staff, a 3-year strategic plan that is reviewed annually.

The Up Side of Downs has created robust programming in several areas. The organization provides supplemental education programs for children from toddlers to teens. USOD has steadily added programs over the past several years in order to accomplish this. Additionally, education programs for adults with Down syndrome have also increased as the organization has determined a great need in this area. Medical outreach has been expanded and includes a medical advisory that meets annually and provides ongoing support to the organization throughout the year. Support groups have been added and, when necessary, retooled to meet parent needs. Social programs with a focus on skill building, such as golf, bowling, and bike camp, are being expanded throughout our service area.

External Reviews

Affiliations & Memberships

National Down Syndrome Society 1995




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  • Address, phone, website and contact information
  • Forms 990 for 2017, 2016 and 2015
  • A Pro report is also available for this organization.

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The people, governance practices, and partners that make the organization tick.

Need more info?

FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2017, 2016 and 2015
  • A Pro report is also available for this organization.

See what's included

Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization


Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?



Has the board conducted a formal, written assessment of the chief executive within the past year?



Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?



Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?



Has the board conducted a formal, written self-assessment of its performance within the past three years?