Cure JM Foundation

Our Mission: To find a cure and better treatments for Juvenile Myositis and improve the lives of families affected by JM.

Cure JM will proactively seek to fund and help create cutting-edge basic and translational research to rapidly advance improved treatments and a cure for juvenile myositis.

Cure JM seeks to improve the lives of families affected by Juvenile Myositis.
Immediate Goals:
-Expand the Cure JM Clinical Care Network and fund the work of more children's hospitals acrossthe U.S. to achieve continuous improvement in quality of care.
-Further strengthen Cure JM's partnership with the National Institutes of Health to accelerateclinical trials already underway to validate newer and better drugs to treat JM.
-Increase laboratory research funding to expand our knowledge of the underlying causes of JM,which, when further understood, will lead to more individualized patient-centered treatments.
-Reactivate Cure JM's national chapter leadership structure
to support families and children and young adults as the threat of COVID-19 recedes and parts of the country safely reopen.
-Bring 100 new family leaders onboard who bring the vision and passion to
drive our mission and reach higher levels of success in 2022.

Cure JM will support research through our 2 grant cycles per year with up to $200,000 of grants available per cycle.

Cure JM has invested in a drug discovery program at the National Center for Advancing Translational Sciences.

We will strengthen existing Cure JM research and treatment centers; and ultimately add 2-5 additional research and treatment centers to increase our research capabilities and improve patients' access to expert treatment.

Cure JM Foundation has established regional chapters and a National Walk Program to ignite our fundraising efforts and bring JM families together.

Cure JM has held 9 annual national conferences for JM families and will continue to sponsor this annual event. Cure JM also holds regional conferences in many areas and plans to expand upon these events.

Cure JM provides families with educational and support materials to help them with their battle against Juvenile Myositis. We funded the first-ever book about JM called "Myositis and You," a 465-page book with contributions from over 75 medical professionals.

Cure JM is launching the Cure JM Clinical Care Network and funding our fifth Center of Excellence. We have almost $5 million committed to research and new drug development, including several clinical trials that, if successful, will bring improved treatments to our children.

Cure JM Foundation has an Executive Director with over 30 years of nonprofit experience, and we have hired many dedicated staff, including a Chief Scientific Officer, Director of Development and Family Engagement, Mental Health Coordinator, Communications Manager, two Development Managers, Development Associate, and a Data Program Manager.

We have a talented and passionate Board of Directors who are connected to a patient with JM, and they all dedicate many hours to the organization. Cure JM has over 200 volunteers who serve in various roles, such as Family Support Network Representative, Grandparent Support Network Representative, Fundraising Coach, Committee Member, and more.

Our National Leadership Council has members representing every area of the United States.

Cure JM Foundation has made significant progress already by raising more than $19 million for JM research and education. The Foundation has helped establish 5 Centers of Excellence at Children's Hospital of Chicago Research Center and George Washington University in Washington, D.C., Duke Children's Hospital and Medical Center, Seattle Children's Hospital, and University of California, San Francisco. Cure JM has held 9 annual national educational conferences for families affected by JM, and 7 conferences for the JM medical community, offering CME credits to medical professionals. The Foundation funded the first-ever book solely about JM entitled "Myositis and You". Cure JM provides additional educational materials including Welcome Kits, videos for newly diagnosed patients, brochures, and more. Cure JM Foundation has a strong Family Support Network for the families affected by JM, and a Grandparent Support Network for grandparents of JM patients. Cure JM has a comprehensive website with JM resources and active support communities on social media. There are several new treatments for JM on the horizon.

Cure JM is launching the Cure JM Clinical Care Network and funding our fifth Center of Excellence. We have almost$4 million committed to research and new drug development, including several clinical trials that, if successful, will bring improved treatments to our children.

Cure JM brought 5 Cure JM families before the FDA to raise JM’s profile andtestify for the critical need for better drugs, this is an important step forward to raising our profile with the FDA to move new and re-purposed treatments through the drug pipeline. Cure JM is providing funding to moveclinical trials
forward to find new and better treatments for JM.
Cure JM has invested $5M in research investments to advance treatments and carefor JM.

Cure JM has supported breakthrough genetics studies at the world-renowned Center for Applied Genomics at Children’s Hospital of Philadelphia.

Cure JM has supported major drug discovery initiatives at the National Center for

Cure JM is advancing Translational Sciences at NIH and has formed
partnerships with biotech companies with investigational new autoimmune drugs.

For families, Cure JM has provided vital resources and connections for over 3,000 patients and families, supported four major Centers of Excellence to advance JM research and deliver the highest quality of care to patients, including second opinions. Cure JM also provides education to families through monthly Town Halls with healthcare providers and Family News publications.

Since its inception, Cure JM has invested more than 90% of contributions directly into research and programs to move its mission forward.

Since inception Cure JM has invested over $19 million to find better treatments and improve care for children with JM.